Falling asleep abnormally

[Guest guest]

Hello everyone,

I’ve been dealing with symptoms for a few years now on and off. It’s

something that a dear friend from our group had problems with and now another

has had similar symptoms. My two friends had Lupus though. I’ve posted a

little about it but I’m going to post again and ask if anyone that has these

symptoms too will reply.

At least five years ago I started falling asleep during the day suddenly as if I

had Narcolepsy. I do have sleep apnea and wear a C-pap machine. When this first

started I took it as needing to sleep and would just do so. I was married and my

husband always drove so although inconvenient that I was falling asleep in the

middle of anything at times, not too big an issue. It happened rarely and then

would go without happening for long periods of time. Months to even over a year

without an episode. Then a over a year and half ago it became more often. My

relationship ended and I then realized how much it would overtake me while

driving. I started talking to doctors but the usual first answer is medications.

Not until you say the word driving and falling asleep do you get real attention.

For over six months I voluntarily didn’t/ couldn’t drive because of these

episodes. Finally last winter one of my doctors said to me, we can’t always

find the cause but we must treat the symptoms. So, I was put on medication for

Narcolepsy daily and that has worked.

I did reading on Narcolepsy last year and my symptoms are the same, brought on

the with the same circumstances and now being controlled with medication,

thankfully. Part of the reason I’m asking is that my friend Kathleen was an

RN and always said if it were Narcolepsy the episodes would not come and go over

the years. She passed away this year without ever finding out the cause of hers

either.

Do any of you have these symptoms? It’s not just falling asleep, it’s that

suddenly I cannot keep my eyes open. It’s not my blood sugars, medications and

several other tests I’ve had done for epilepsy, etc. turn out fine so I’m

turning to you all because I have another friend now too experiencing some of

the similar issues.

If you have an thoughts, thank you.

[Guest guest]

I have random episodes at work when I just can't stay awake and like you say

it's to the point that I can't even keep them open of I tried. It happens way to

often when I drive. Any answers I would appreciate also. Thanks

Nik

Sent from my iPhone

> Hello everyone,

>

> I’ve been dealing with symptoms for a few years now on and off. It’s

something that a dear friend from our group had problems with and now another

has had similar symptoms. My two friends had Lupus though. I’ve posted a

little about it but I’m going to post again and ask if anyone that has these

symptoms too will reply.

>

> At least five years ago I started falling asleep during the day suddenly as if

I had Narcolepsy. I do have sleep apnea and wear a C-pap machine. When this

first started I took it as needing to sleep and would just do so. I was married

and my husband always drove so although inconvenient that I was falling asleep

in the middle of anything at times, not too big an issue. It happened rarely and

then would go without happening for long periods of time. Months to even over a

year without an episode. Then a over a year and half ago it became more often.

My relationship ended and I then realized how much it would overtake me while

driving. I started talking to doctors but the usual first answer is medications.

Not until you say the word driving and falling asleep do you get real attention.

For over six months I voluntarily didn’t/ couldn’t drive because of these

episodes. Finally last winter one of my doctors said to me, we can’t always

find the cause but we must treat the symptoms. So, I was put on medication for

Narcolepsy daily and that has worked.

>

> I did reading on Narcolepsy last year and my symptoms are the same, brought on

the with the same circumstances and now being controlled with medication,

thankfully. Part of the reason I’m asking is that my friend Kathleen was an RN

and always said if it were Narcolepsy the episodes would not come and go over

the years. She passed away this year without ever finding out the cause of hers

either.

>

> Do any of you have these symptoms? It’s not just falling asleep, it’s that

suddenly I cannot keep my eyes open. It’s not my blood sugars, medications and

several other tests I’ve had done for epilepsy, etc. turn out fine so I’m

turning to you all because I have another friend now too experiencing some of

the similar issues.

>

> If you have an thoughts, thank you.

>

>

[Guest guest]

I used to have a major problem with falling asleep all the time, even though I

was sleeping at night. (I was born with stills, and this happened in my 30s.)

It turned out that my doctor diagnosed me with secondary fibromyalgia - which

caused me to not have quality sleep at all. I would nod off trying to take

dictation as a secretary. The medication he subscribed was flexeril - brand

name only - for its side effect of causing deep sleep. It was not a sleeping

pill, and didn't guarantee a good night - but the sleep was very deep. He

warned me to take it for the first time on a weekend, and I slept until late

afternoon the next day and felt wonderful for the first time in years.

My insurance has stopped covering this - will only cover the generic which

doesn't have the same side effect. It helps, but not in the same way. I'm

experimenting with some herbal remedies as well as thinking good thoughts! My

cat seems to know when I'm in exceptional pain, and he'll fashion himself into a

little furry heating cushion to help ease the pain. What a guy!

>

> > Hello everyone,

> >

> > I’ve been dealing with symptoms for a few years now on and off. It’s

something that a dear friend from our group had problems with and now another

has had similar symptoms. My two friends had Lupus though. I’ve posted a

little about it but I’m going to post again and ask if anyone that has these

symptoms too will reply.

> >

> > At least five years ago I started falling asleep during the day suddenly as

if I had Narcolepsy. I do have sleep apnea and wear a C-pap machine. When this

first started I took it as needing to sleep and would just do so. I was married

and my husband always drove so although inconvenient that I was falling asleep

in the middle of anything at times, not too big an issue. It happened rarely and

then would go without happening for long periods of time. Months to even over a

year without an episode. Then a over a year and half ago it became more often.

My relationship ended and I then realized how much it would overtake me while

driving. I started talking to doctors but the usual first answer is medications.

Not until you say the word driving and falling asleep do you get real attention.

For over six months I voluntarily didn’t/ couldn’t drive because of these

episodes. Finally last winter one of my doctors said to me, we can’t always

find the cause but we must treat the symptoms. So, I was put on medication for

Narcolepsy daily and that has worked.

> >

> > I did reading on Narcolepsy last year and my symptoms are the same, brought

on the with the same circumstances and now being controlled with medication,

thankfully. Part of the reason I’m asking is that my friend Kathleen was an RN

and always said if it were Narcolepsy the episodes would not come and go over

the years. She passed away this year without ever finding out the cause of hers

either.

> >

> > Do any of you have these symptoms? It’s not just falling asleep, it’s

that suddenly I cannot keep my eyes open. It’s not my blood sugars,

medications and several other tests I’ve had done for epilepsy, etc. turn out

fine so I’m turning to you all because I have another friend now too

experiencing some of the similar issues.

> >

> > If you have an thoughts, thank you.

> >

> >

[Guest guest]

I used to have a major problem with falling asleep all the time, even though I

was sleeping at night. (I was born with stills, and this happened in my 30s.)

It turned out that my doctor diagnosed me with secondary fibromyalgia - which

caused me to not have quality sleep at all. I would nod off trying to take

dictation as a secretary. The medication he subscribed was flexeril - brand

name only - for its side effect of causing deep sleep. It was not a sleeping

pill, and didn't guarantee a good night - but the sleep was very deep. He

warned me to take it for the first time on a weekend, and I slept until late

afternoon the next day and felt wonderful for the first time in years.

My insurance has stopped covering this - will only cover the generic which

doesn't have the same side effect. It helps, but not in the same way. I'm

experimenting with some herbal remedies as well as thinking good thoughts! My

cat seems to know when I'm in exceptional pain, and he'll fashion himself into a

little furry heating cushion to help ease the pain. What a guy!

>

> > Hello everyone,

> >

> > I’ve been dealing with symptoms for a few years now on and off. It’s

something that a dear friend from our group had problems with and now another

has had similar symptoms. My two friends had Lupus though. I’ve posted a

little about it but I’m going to post again and ask if anyone that has these

symptoms too will reply.

> >

> > At least five years ago I started falling asleep during the day suddenly as

if I had Narcolepsy. I do have sleep apnea and wear a C-pap machine. When this

first started I took it as needing to sleep and would just do so. I was married

and my husband always drove so although inconvenient that I was falling asleep

in the middle of anything at times, not too big an issue. It happened rarely and

then would go without happening for long periods of time. Months to even over a

year without an episode. Then a over a year and half ago it became more often.

My relationship ended and I then realized how much it would overtake me while

driving. I started talking to doctors but the usual first answer is medications.

Not until you say the word driving and falling asleep do you get real attention.

For over six months I voluntarily didn’t/ couldn’t drive because of these

episodes. Finally last winter one of my doctors said to me, we can’t always

find the cause but we must treat the symptoms. So, I was put on medication for

Narcolepsy daily and that has worked.

> >

> > I did reading on Narcolepsy last year and my symptoms are the same, brought

on the with the same circumstances and now being controlled with medication,

thankfully. Part of the reason I’m asking is that my friend Kathleen was an RN

and always said if it were Narcolepsy the episodes would not come and go over

the years. She passed away this year without ever finding out the cause of hers

either.

> >

> > Do any of you have these symptoms? It’s not just falling asleep, it’s

that suddenly I cannot keep my eyes open. It’s not my blood sugars,

medications and several other tests I’ve had done for epilepsy, etc. turn out

fine so I’m turning to you all because I have another friend now too

experiencing some of the similar issues.

> >

> > If you have an thoughts, thank you.

> >

> >

[Guest guest]

I used to have a major problem with falling asleep all the time, even though I

was sleeping at night. (I was born with stills, and this happened in my 30s.)

It turned out that my doctor diagnosed me with secondary fibromyalgia - which

caused me to not have quality sleep at all. I would nod off trying to take

dictation as a secretary. The medication he subscribed was flexeril - brand

name only - for its side effect of causing deep sleep. It was not a sleeping

pill, and didn't guarantee a good night - but the sleep was very deep. He

warned me to take it for the first time on a weekend, and I slept until late

afternoon the next day and felt wonderful for the first time in years.

My insurance has stopped covering this - will only cover the generic which

doesn't have the same side effect. It helps, but not in the same way. I'm

experimenting with some herbal remedies as well as thinking good thoughts! My

cat seems to know when I'm in exceptional pain, and he'll fashion himself into a

little furry heating cushion to help ease the pain. What a guy!

>

> > Hello everyone,

> >

> > I’ve been dealing with symptoms for a few years now on and off. It’s

something that a dear friend from our group had problems with and now another

has had similar symptoms. My two friends had Lupus though. I’ve posted a

little about it but I’m going to post again and ask if anyone that has these

symptoms too will reply.

> >

> > At least five years ago I started falling asleep during the day suddenly as

if I had Narcolepsy. I do have sleep apnea and wear a C-pap machine. When this

first started I took it as needing to sleep and would just do so. I was married

and my husband always drove so although inconvenient that I was falling asleep

in the middle of anything at times, not too big an issue. It happened rarely and

then would go without happening for long periods of time. Months to even over a

year without an episode. Then a over a year and half ago it became more often.

My relationship ended and I then realized how much it would overtake me while

driving. I started talking to doctors but the usual first answer is medications.

Not until you say the word driving and falling asleep do you get real attention.

For over six months I voluntarily didn’t/ couldn’t drive because of these

episodes. Finally last winter one of my doctors said to me, we can’t always

find the cause but we must treat the symptoms. So, I was put on medication for

Narcolepsy daily and that has worked.

> >

> > I did reading on Narcolepsy last year and my symptoms are the same, brought

on the with the same circumstances and now being controlled with medication,

thankfully. Part of the reason I’m asking is that my friend Kathleen was an RN

and always said if it were Narcolepsy the episodes would not come and go over

the years. She passed away this year without ever finding out the cause of hers

either.

> >

> > Do any of you have these symptoms? It’s not just falling asleep, it’s

that suddenly I cannot keep my eyes open. It’s not my blood sugars,

medications and several other tests I’ve had done for epilepsy, etc. turn out

fine so I’m turning to you all because I have another friend now too

experiencing some of the similar issues.

> >

> > If you have an thoughts, thank you.

> >

> >

[Guest guest]

That same thing has been my problem for the past five years. One doc says I have

a form of narcolepsy and he treated me for it but my problem is even though the

meds keep me awake I am still tired all the time. My eyes get so heavy and tired

I have to close them. But I'm still awake, halfway! Hope things get better!

------------------------------

>I used to have a major problem with falling asleep all the time, even though I

was sleeping at night. (I was born with stills, and this happened in my 30s.)

It turned out that my doctor diagnosed me with secondary fibromyalgia - which

caused me to not have quality sleep at all. I would nod off trying to take

dictation as a secretary. The medication he subscribed was flexeril - brand

name only - for its side effect of causing deep sleep. It was not a sleeping

pill, and didn't guarantee a good night - but the sleep was very deep. He

warned me to take it for the first time on a weekend, and I slept until late

afternoon the next day and felt wonderful for the first time in years.

>

>My insurance has stopped covering this - will only cover the generic which

doesn't have the same side effect. It helps, but not in the same way. I'm

experimenting with some herbal remedies as well as thinking good thoughts! My

cat seems to know when I'm in exceptional pain, and he'll fashion himself into a

little furry heating cushion to help ease the pain. What a guy!

>

>

>>

>> > Hello everyone,

>> >

>> > I’ve been dealing with symptoms for a few years now on and off.

It’s something that a dear friend from our group had problems with and

now another has had similar symptoms. My two friends had Lupus though.

I’ve posted a little about it but I’m going to post again and ask

if anyone that has these symptoms too will reply.

>> >

>> > At least five years ago I started falling asleep during the day suddenly as

if I had Narcolepsy. I do have sleep apnea and wear a C-pap machine. When this

first started I took it as needing to sleep and would just do so. I was married

and my husband always drove so although inconvenient that I was falling asleep

in the middle of anything at times, not too big an issue. It happened rarely and

then would go without happening for long periods of time. Months to even over a

year without an episode. Then a over a year and half ago it became more often.

My relationship ended and I then realized how much it would overtake me while

driving. I started talking to doctors but the usual first answer is medications.

Not until you say the word driving and falling asleep do you get real attention.

For over six months I voluntarily didn’t/ couldn’t drive because

of these episodes. Finally last winter one of my doctors said to me, we

can’t

always find the cause but we must treat the symptoms. So, I was put on

medication for Narcolepsy daily and that has worked.

>> >

>> > I did reading on Narcolepsy last year and my symptoms are the same, brought

on the with the same circumstances and now being controlled with medication,

thankfully. Part of the reason I’m asking is that my friend Kathleen was

an RN and always said if it were Narcolepsy the episodes would not come and go

over the years. She passed away this year without ever finding out the cause of

hers either.

>> >

>> > Do any of you have these symptoms? It’s not just falling asleep,

it’s that suddenly I cannot keep my eyes open. It’s not my blood

sugars, medications and several other tests I’ve had done for epilepsy,

etc. turn out fine so I’m turning to you all because I have another

friend now too experiencing some of the similar issues.

>> >

>> > If you have an thoughts, thank you.

>> >

>> >

[Guest guest]

Howdy ....I don't have trouble alike yours, but I am tired all day

and wired all night. If life allowed for it I would sleep until 3 or 4:00PM

and go to bed by 5-6:00 AM. There is a medical term for this but it escapes

me at the moment. I had one Dr. think I was Narcoleptic but after all of

his " tests " and such he decided I wasn't. I never pass out while driving or

doing anything from reading a book to doing heavier work, but the moment I

lie down I can pass out in minutes, except at night!

Hope you get the answers you need soon! Kirk

> **

>

>

> Hello everyone,

>

> I’ve been dealing with symptoms for a few years now on and off. It’s

> something that a dear friend from our group had problems with and now

> another has had similar symptoms. My two friends had Lupus though. I’ve

> posted a little about it but I’m going to post again and ask if anyone that

> has these symptoms too will reply.

>

> At least five years ago I started falling asleep during the day suddenly

> as if I had Narcolepsy. I do have sleep apnea and wear a C-pap machine.

> When this first started I took it as needing to sleep and would just do so.

> I was married and my husband always drove so although inconvenient that I

> was falling asleep in the middle of anything at times, not too big an

> issue. It happened rarely and then would go without happening for long

> periods of time. Months to even over a year without an episode. Then a over

> a year and half ago it became more often. My relationship ended and I then

> realized how much it would overtake me while driving. I started talking to

> doctors but the usual first answer is medications. Not until you say the

> word driving and falling asleep do you get real attention. For over six

> months I voluntarily didn’t/ couldn’t drive because of these episodes.

> Finally last winter one of my doctors said to me, we can’t always find the

> cause but we must treat the symptoms. So, I was put on medication for

> Narcolepsy daily and that has worked.

>

> I did reading on Narcolepsy last year and my symptoms are the same,

> brought on the with the same circumstances and now being controlled with

> medication, thankfully. Part of the reason I’m asking is that my friend

> Kathleen was an RN and always said if it were Narcolepsy the episodes would

> not come and go over the years. She passed away this year without ever

> finding out the cause of hers either.

>

> Do any of you have these symptoms? It’s not just falling asleep, it’s that

> suddenly I cannot keep my eyes open. It’s not my blood sugars, medications

> and several other tests I’ve had done for epilepsy, etc. turn out fine so

> I’m turning to you all because I have another friend now too experiencing

> some of the similar issues.

>

> If you have an thoughts, thank you.

>

>

[Guest guest]

i also have haishimotos thyroiditis but i have never experience whatr you

describe i did however have an awful time with the meds they gaave me my

reaction to it was terrible

 

________________________________

To: Stillsdisease

Sent: Wednesday, June 13, 2012 11:11 PM

Subject: Re: Falling asleep abnormally

 

I believe you would be considered to be nocturnal. More like a cat, lol

a

From: Kirk Bonanny

Sent: Wednesday, June 13, 2012 11:08 PM

To: Stillsdisease

Subject: Re: Falling asleep abnormally

Howdy ....I don't have trouble alike yours, but I am tired all day

and wired all night. If life allowed for it I would sleep until 3 or 4:00PM

and go to bed by 5-6:00 AM. There is a medical term for this but it escapes

me at the moment. I had one Dr. think I was Narcoleptic but after all of

his " tests " and such he decided I wasn't. I never pass out while driving or

doing anything from reading a book to doing heavier work, but the moment I

lie down I can pass out in minutes, except at night!

Hope you get the answers you need soon! Kirk

> **

>

>

> Hello everyone,

>

> I’ve been dealing with symptoms for a few years now on and off. It’s

> something that a dear friend from our group had problems with and now

> another has had similar symptoms. My two friends had Lupus though. I’ve

> posted a little about it but I’m going to post again and ask if anyone that

> has these symptoms too will reply.

>

> At least five years ago I started falling asleep during the day suddenly

> as if I had Narcolepsy. I do have sleep apnea and wear a C-pap machine.

> When this first started I took it as needing to sleep and would just do so.

> I was married and my husband always drove so although inconvenient that I

> was falling asleep in the middle of anything at times, not too big an

> issue. It happened rarely and then would go without happening for long

> periods of time. Months to even over a year without an episode. Then a over

> a year and half ago it became more often. My relationship ended and I then

> realized how much it would overtake me while driving. I started talking to

> doctors but the usual first answer is medications. Not until you say the

> word driving and falling asleep do you get real attention. For over six

> months I voluntarily didn’t/ couldn’t drive because of these episodes.

> Finally last winter one of my doctors said to me, we can’t always find the

> cause but we must treat the symptoms. So, I was put on medication for

> Narcolepsy daily and that has worked.

>

> I did reading on Narcolepsy last year and my symptoms are the same,

> brought on the with the same circumstances and now being controlled with

> medication, thankfully. Part of the reason I’m asking is that my friend

> Kathleen was an RN and always said if it were Narcolepsy the episodes would

> not come and go over the years. She passed away this year without ever

> finding out the cause of hers either.

>

> Do any of you have these symptoms? It’s not just falling asleep, it’s that

> suddenly I cannot keep my eyes open. It’s not my blood sugars, medications

> and several other tests I’ve had done for epilepsy, etc. turn out fine so

> I’m turning to you all because I have another friend now too experiencing

> some of the similar issues.

>

> If you have an thoughts, thank you.

>

>

[Guest guest]

i also have haishimotos thyroiditis but i have never experience whatr you

describe i did however have an awful time with the meds they gaave me my

reaction to it was terrible

 

________________________________

To: Stillsdisease

Sent: Wednesday, June 13, 2012 11:11 PM

Subject: Re: Falling asleep abnormally

 

I believe you would be considered to be nocturnal. More like a cat, lol

a

From: Kirk Bonanny

Sent: Wednesday, June 13, 2012 11:08 PM

To: Stillsdisease

Subject: Re: Falling asleep abnormally

Howdy ....I don't have trouble alike yours, but I am tired all day

and wired all night. If life allowed for it I would sleep until 3 or 4:00PM

and go to bed by 5-6:00 AM. There is a medical term for this but it escapes

me at the moment. I had one Dr. think I was Narcoleptic but after all of

his " tests " and such he decided I wasn't. I never pass out while driving or

doing anything from reading a book to doing heavier work, but the moment I

lie down I can pass out in minutes, except at night!

Hope you get the answers you need soon! Kirk

> **

>

>

> Hello everyone,

>

> I’ve been dealing with symptoms for a few years now on and off. It’s

> something that a dear friend from our group had problems with and now

> another has had similar symptoms. My two friends had Lupus though. I’ve

> posted a little about it but I’m going to post again and ask if anyone that

> has these symptoms too will reply.

>

> At least five years ago I started falling asleep during the day suddenly

> as if I had Narcolepsy. I do have sleep apnea and wear a C-pap machine.

> When this first started I took it as needing to sleep and would just do so.

> I was married and my husband always drove so although inconvenient that I

> was falling asleep in the middle of anything at times, not too big an

> issue. It happened rarely and then would go without happening for long

> periods of time. Months to even over a year without an episode. Then a over

> a year and half ago it became more often. My relationship ended and I then

> realized how much it would overtake me while driving. I started talking to

> doctors but the usual first answer is medications. Not until you say the

> word driving and falling asleep do you get real attention. For over six

> months I voluntarily didn’t/ couldn’t drive because of these episodes.

> Finally last winter one of my doctors said to me, we can’t always find the

> cause but we must treat the symptoms. So, I was put on medication for

> Narcolepsy daily and that has worked.

>

> I did reading on Narcolepsy last year and my symptoms are the same,

> brought on the with the same circumstances and now being controlled with

> medication, thankfully. Part of the reason I’m asking is that my friend

> Kathleen was an RN and always said if it were Narcolepsy the episodes would

> not come and go over the years. She passed away this year without ever

> finding out the cause of hers either.

>

> Do any of you have these symptoms? It’s not just falling asleep, it’s that

> suddenly I cannot keep my eyes open. It’s not my blood sugars, medications

> and several other tests I’ve had done for epilepsy, etc. turn out fine so

> I’m turning to you all because I have another friend now too experiencing

> some of the similar issues.

>

> If you have an thoughts, thank you.

>

>