Re: Doctors Versed in Stills Disease. (San Diego Co. CA)

[Guest guest]

and others,

I have driven to see my RA from Idyllwild for 27 years because he diagnosed

me and has been an excellent doctor! He is a bit of a drive being in North

San Diego County but well worth it. Not nearly as far as I have always

chosen to see him since 1977. Often doctors will not tell you how many Still

s patents they do have but that doesn't mean they don't know how to treat

Still's disease. My doctor is J. Nolan he has myself and another Still

s patient. But diagnosed my AOSD in 1977.

Just my opinion.

Best of luck all,

-- Doctors Versed in Stills Disease.

Hi Folks:

Well, every once in a while I try this over again so I will try

it once more? I know that each of you has a Doctor that you go to for your

Stills Disease. Now that Doctor may be just a Rheumatologist or He/She may

be learning Stills Disease or may have seen many Stills Patients. What we

need for our Foundation Files is a list of these Doctors so that when

someone calls me, like tonight, I am not all embarrassed because I cannot

furnish that person the name of a Stills Doctor or a Doctor that knows what

Stills is at least? So if each of you would be so kind as to at least send

me the name, address and phone number of the Doctor that is treating you for

Stills, it sure would help the Foundation a whole lot. When I asked for this

information about a year ago someone told me that they would have to get

their Doctors permission to do this? WHY? I can get the same information

from the phone book if I live in your area or from the AMA list of

Rheumatologist's. All we are trying to do is boil it down to someone with

Stills knowledge. So would you please take a few minutes and jot down your

Doctors information for me and I will add it to our book and later I can add

it to our web page? It sure would be appreciated. It would also help if you

would add your opinion of your Doctors experience with Stills. Thank You so

very much and you will be saving me from a lot more embarrassment! Love Ya

ll!



Bob (Dad)

Secretary/Treasurer

Panama City, FL 32404

Please visit the International Stills Disease Foundation Inc. Web Site at

www.stillsdisease.org . Please make TAX DEDUCTIBLE Donations to the all

volunteer, International Stills Disease Foundation (ISDF), 1123 S. Kimbrel

Ave., Panama City, FL 32404. Thanks!

[Guest guest]

and others,

I have driven to see my RA from Idyllwild for 27 years because he diagnosed

me and has been an excellent doctor! He is a bit of a drive being in North

San Diego County but well worth it. Not nearly as far as I have always

chosen to see him since 1977. Often doctors will not tell you how many Still

s patents they do have but that doesn't mean they don't know how to treat

Still's disease. My doctor is J. Nolan he has myself and another Still

s patient. But diagnosed my AOSD in 1977.

Just my opinion.

Best of luck all,

-- Doctors Versed in Stills Disease.

Hi Folks:

Well, every once in a while I try this over again so I will try

it once more? I know that each of you has a Doctor that you go to for your

Stills Disease. Now that Doctor may be just a Rheumatologist or He/She may

be learning Stills Disease or may have seen many Stills Patients. What we

need for our Foundation Files is a list of these Doctors so that when

someone calls me, like tonight, I am not all embarrassed because I cannot

furnish that person the name of a Stills Doctor or a Doctor that knows what

Stills is at least? So if each of you would be so kind as to at least send

me the name, address and phone number of the Doctor that is treating you for

Stills, it sure would help the Foundation a whole lot. When I asked for this

information about a year ago someone told me that they would have to get

their Doctors permission to do this? WHY? I can get the same information

from the phone book if I live in your area or from the AMA list of

Rheumatologist's. All we are trying to do is boil it down to someone with

Stills knowledge. So would you please take a few minutes and jot down your

Doctors information for me and I will add it to our book and later I can add

it to our web page? It sure would be appreciated. It would also help if you

would add your opinion of your Doctors experience with Stills. Thank You so

very much and you will be saving me from a lot more embarrassment! Love Ya

ll!



Bob (Dad)

Secretary/Treasurer

Panama City, FL 32404

Please visit the International Stills Disease Foundation Inc. Web Site at

www.stillsdisease.org . Please make TAX DEDUCTIBLE Donations to the all

volunteer, International Stills Disease Foundation (ISDF), 1123 S. Kimbrel

Ave., Panama City, FL 32404. Thanks!

[Guest guest]

Hey ,

That’s great confirmation that Bob can add to his list about Dr. Nolan.

That’s why I listed the ones I did, was because since they did not say one way

or another, does not mean that they will not treat Still’s patients and they

are available. I can imagine where you are having slim to no pickings for

doctors, that’s kind of remote. You are actually within driving distance from

me. I’m in Lakeside, in San Diego County. Being diagnosed since 1977 is a heck

of a long time. I feel for you. I’m so happy that you confirmed this , it

can help so many people. This is also great to know since for me and my

daughter, it’s always an option to get her up to Vista since we go from visit

to visit and aren’t positive we like the treatment at times, and of course

have never had a second opinion which would be worth the drive as well.

Thanks so much . I think of this as fate and can’t thank you enough for

speaking up about this.

enjoy your evening ok?

From: windsinging@...

Sent: Sunday, March 11, 2012 7:49 PM

To: stillsdisease

Subject: Re: Doctors Versed in Stills Disease. (San Diego Co.

CA)

and others,

I have driven to see my RA from Idyllwild for 27 years because he diagnosed

me and has been an excellent doctor! He is a bit of a drive being in North

San Diego County but well worth it. Not nearly as far as I have always

chosen to see him since 1977. Often doctors will not tell you how many Still

s patents they do have but that doesn't mean they don't know how to treat

Still's disease. My doctor is J. Nolan he has myself and another Still

s patient. But diagnosed my AOSD in 1977.

Just my opinion.

Best of luck all,

-- Doctors Versed in Stills Disease.

Hi Folks:

Well, every once in a while I try this over again so I will try

it once more? I know that each of you has a Doctor that you go to for your

Stills Disease. Now that Doctor may be just a Rheumatologist or He/She may

be learning Stills Disease or may have seen many Stills Patients. What we

need for our Foundation Files is a list of these Doctors so that when

someone calls me, like tonight, I am not all embarrassed because I cannot

furnish that person the name of a Stills Doctor or a Doctor that knows what

Stills is at least? So if each of you would be so kind as to at least send

me the name, address and phone number of the Doctor that is treating you for

Stills, it sure would help the Foundation a whole lot. When I asked for this

information about a year ago someone told me that they would have to get

their Doctors permission to do this? WHY? I can get the same information

from the phone book if I live in your area or from the AMA list of

Rheumatologist's. All we are trying to do is boil it down to someone with

Stills knowledge. So would you please take a few minutes and jot down your

Doctors information for me and I will add it to our book and later I can add

it to our web page? It sure would be appreciated. It would also help if you

would add your opinion of your Doctors experience with Stills. Thank You so

very much and you will be saving me from a lot more embarrassment! Love Ya

ll!



Bob (Dad)

Secretary/Treasurer

Panama City, FL 32404

Please visit the International Stills Disease Foundation Inc. Web Site at

www.stillsdisease.org . Please make TAX DEDUCTIBLE Donations to the all

volunteer, International Stills Disease Foundation (ISDF), 1123 S. Kimbrel

Ave., Panama City, FL 32404. Thanks!