Guest guest Posted August 4, 2012 Report Share Posted August 4, 2012 We stay in India, Bangalore. let me know if someone can help we with any reference doctor on weight loss, as currently am on 80mg/day and the dosage will take another 3 months to come to 20mg/day. This was the first time we heard about this disease. Surely will need lot of info and support from all of you in the forum. Help me also to know more about this disease. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2012 Report Share Posted August 22, 2012 Hi all, I would like to share that after my few years on steroids the weight did come off but I know it’s so hard to be over weight and sick at the same time. Often if we ask our doctors they may give us isometric exercises pamphlets to keep the muscles toned at least. Another thing that helped me was buying a Tai Chi CD on Amazon for Arthritis. It was a long time that I did just the warm up of 15 minutes but it moves your body easily without stress, helps with balance and strength. Doctors have found the benefits to be much more than just for the joints. Just some suggestions, good day all Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2012 Report Share Posted August 22, 2012 I am down to 1.5 mg/day but being that they had to stop my Kineret I am certainly feeling very lethargic, and it doesn't seem as if this intestinal infection is in a hurry to leave me anytime soon. I am also due for another Cortisol Stimulant test, which I've failed every year I've been tested, but this is the first time since I got whacked that I have been under 3mg. Now my back flared up in a big way today and I'm nervous as I want to try and go without the morphine pump implant, even though my history doesn't make me feel too confident that I'll be able to pull it off. I saw my Neuro Surgeon today and he is sending me for another MRI. I have to wait 6 weeks for the damn thing but I guess that is life. One thing I do each and every summer aside from coaching football is that I walk (or GIMP with a cane in my case!) @ the local high school track as it is rubber and very easy on the joints. I'd LOVE to be able to run again, but my back simply will not take the impact. When I walk I do at least 3/4 of a mile, and on really rare days I may be able to go 1.5 miles. I always lose some weight in the summer only to rediscover it (and than some) during the winter when I am bedridden more often than not. I finally started to eat healthier, and I've lost over 30 lbs, but most of that is due to the C-Dif infection. Best of luck.....I know what this does to our bodies and inevitably our self confidence, but we must strive to overcome our own hang ups and not care what anyone else thinks! It's been working just fine for me for the past 5-6 years! Kirk. > ** > > > I have been on steroid for over 10 years and this 2.5 has been the lowest > dose so far. The weight I'm hoping will go down but I exercise almost every > day and still no weight lose yet. Frustrating!!! > > Sent from my iPhone > > > > > Hi all, > > > > I would like to share that after my few years on steroids the weight did > come off but I know it’s so hard to be over weight and sick at the same > time. Often if we ask our doctors they may give us isometric exercises > pamphlets to keep the muscles toned at least. Another thing that helped me > was buying a Tai Chi CD on Amazon for Arthritis. It was a long time that I > did just the warm up of 15 minutes but it moves your body easily without > stress, helps with balance and strength. Doctors have found the benefits to > be much more than just for the joints. > > > > Just some suggestions, good day all > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2012 Report Share Posted August 23, 2012 Hi ,  We can all figure it out together. I think starting slowly is the best bet. Besides we have not choice if our bodies are just not wanting to cooperate!  It's nice to hear from you on the group. I'm on my way down on hydrocortisone, and it's the same way. The doc said I could expect to feel bad and tired when the dose dropped and I had to rest and go with it. Giving up more physical exurtion is best while the body adjusts to the new dose or it's just going to hold on to the weight thinking it's in a crisis, which it kind of is.  So let's keep in touch, with the other ladies on the group who are interested in loosing steroid weight, (around the mid section), and help each other as much as we can. I believe we can learn to stretch this and make slow concentrated movements that will help. I need to put my money where my mouth is and do it!  I need to wait until I feel better after being in the hospital and so sick sitll. Then I need to put my nose to the grindstone and push a little at a time. Don't overdo, or your body will retaliate and you'll be much worse off....Good Luck  All My Best, in San Diego >To: " Stillsdisease " <Stillsdisease > >Sent: Wednesday, August 22, 2012 7:49 PM >Subject: Re: Re: Prednisone weight gain > > > >I have been on steroid for over 10 years and this 2.5 has been the lowest dose so far. The weight I'm hoping will go down but I exercise almost every day and still no weight lose yet. Frustrating!!! > >Sent from my iPhone > >On Aug 22, 2012, at 5:40 PM, " " <mailto:windsinging%40hotmail.com> wrote: > >> Hi all, >> >> I would like to share that after my few years on steroids the weight did come off but I know it’s so hard to be over weight and sick at the same time. Often if we ask our doctors they may give us isometric exercises pamphlets to keep the muscles toned at least. Another thing that helped me was buying a Tai Chi CD on Amazon for Arthritis. It was a long time that I did just the warm up of 15 minutes but it moves your body easily without stress, helps with balance and strength. Doctors have found the benefits to be much more than just for the joints. >> >> Just some suggestions, good day all >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2012 Report Share Posted August 23, 2012 Hi ,  We can all figure it out together. I think starting slowly is the best bet. Besides we have not choice if our bodies are just not wanting to cooperate!  It's nice to hear from you on the group. I'm on my way down on hydrocortisone, and it's the same way. The doc said I could expect to feel bad and tired when the dose dropped and I had to rest and go with it. Giving up more physical exurtion is best while the body adjusts to the new dose or it's just going to hold on to the weight thinking it's in a crisis, which it kind of is.  So let's keep in touch, with the other ladies on the group who are interested in loosing steroid weight, (around the mid section), and help each other as much as we can. I believe we can learn to stretch this and make slow concentrated movements that will help. I need to put my money where my mouth is and do it!  I need to wait until I feel better after being in the hospital and so sick sitll. Then I need to put my nose to the grindstone and push a little at a time. Don't overdo, or your body will retaliate and you'll be much worse off....Good Luck  All My Best, in San Diego >To: " Stillsdisease " <Stillsdisease > >Sent: Wednesday, August 22, 2012 7:49 PM >Subject: Re: Re: Prednisone weight gain > > > >I have been on steroid for over 10 years and this 2.5 has been the lowest dose so far. The weight I'm hoping will go down but I exercise almost every day and still no weight lose yet. Frustrating!!! > >Sent from my iPhone > >On Aug 22, 2012, at 5:40 PM, " " <mailto:windsinging%40hotmail.com> wrote: > >> Hi all, >> >> I would like to share that after my few years on steroids the weight did come off but I know it’s so hard to be over weight and sick at the same time. Often if we ask our doctors they may give us isometric exercises pamphlets to keep the muscles toned at least. Another thing that helped me was buying a Tai Chi CD on Amazon for Arthritis. It was a long time that I did just the warm up of 15 minutes but it moves your body easily without stress, helps with balance and strength. Doctors have found the benefits to be much more than just for the joints. >> >> Just some suggestions, good day all >> >> Quote Link to comment Share on other sites More sharing options...
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