Re:Hello Fran

[Guest guest]

Thought I say hello from hot South Texas. My name is man, I am 29

and have had Adult onset Still's Disease for the past 11 years.

So you live in Scotland. I have to admit that is one of the many places I would

love to visit. Just for the scenery.

At the moment I think I am going through another flare. I have never been in

remission. All I know is that my body hurts all over, even my muscles hurt to

the touch. I also have fibromyaglia, hypothyroid, gastroparesis (my stomach

muscles are very slow and do not digest food correctly), and type II diabetes.

I also go to school, I am in a medical program scooting along in the classes

because it can become difficult to go to class and sit there and learn without

having brain fog or any of that other junk. It is frustrating at times because I

use to be an honor student and now my brain just doesn't want to work the

properly. Well I just thought I would say hello and hope things are good on your

side of the world.

Hugs and many blessings,

man

Corpus Christi, Tx

[Guest guest]

Hello Fran,

The medications I have taken to help with AOSD are:

- Remicade, Kineret, plaqunil, rituxan, enbrel, orencia,

- Of course I am still on prednisone, I am on cymbalta (helps with depression

and fibromyaglia, I am on neurotin which helps with migraines and it is suppose

to help with fibro, and on methrotrexate as well.

I am currently on the pain medication nucynta which has helped me sleep and with

the pain.

Honestly Fran I don't know how I function day in and day out. At times when I am

surrounded by people I feel very much alone. No one around me understands what I

feel or go through except this group of people.

Well I hope all is going well with you. Please keep in touch

Hugs and many blessings,

man

Corpus Christi, Tx