Guest guest Posted October 10, 2000 Report Share Posted October 10, 2000 Did you go to the goflypsc web page? Would we be able to hook this into our e-groups web page? The problem with e-groups is that once the members start getting the posts by e-mail they forget about the web lists and databases we have set up and how to get to them. Course there are people like you that link us to them and that is great but our people aren't making the most of what we have, in my opinion, me included. If you are hunting back for pictures Larry posted ours back in the end of June and I think we got a bunch of others then too. We got a picture of and Handi after her tx, athan sent pictures of his family. Roy sent a picture of he and and their daughter just after Christmas. has sent a couple. But I don't have all of them in my gallery. I think Dawn started it all with her picture of her little boy in his devil costume a year ago. I can't remember when Penny sent the one of her and Jim. It would really be great to get group pictures when we have get togethers. I forgot to take one when we met up with Pam and Quantell. I have Diane and her Dog , so we have drooling dogs as well as babies and don't remember if I sent a picture of our furry child Spunky to everyone or just my kitty buddies. Let's see there is one of Spring and her family and that's about it, and of course yours, lacking drool of course. I've found it really fun to put the faces with posts and see how differently people look than I imagined. I have a video of JQ and pictures of her kids. (She won't send me a picture since her tx with her, as she calls it " moon face " . Peg Re: PSC-Database- photos > > > >They were sent as jpeg attachments. > > perfect! > > > > >What did you have in mind? > > putting them all together on a web site.. > where we (and anyone else who stumbles in) can see.. > and, those who want can put " their story " there, so as we introduce ourselves > we can just put in an address the newbie can click on, instead of having to > type it over and over and over... > > > > >That would be something else nice for the > >webpage. had a picture in her goflypsc web page. Have you seen > >that? > > no, I've not yet found anyone who knows the real address (including ) > any one have the correct address? > > > > >Many of the stories on that have changed and many aren't posting in > >the group anymore. > > but, don't you think it would be nice to preserve that, as a group history, if > nothing else.. > and, who knows, maybe some of them are just waiting for an invitation to come > back... > if they need our help, I think we should try.. > > DenverD: husband of Mette (44), UC '73, dx PSC 6/2000 > alive in Denmark <www.Texan.dk> Email: OrdSmed@... > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2000 Report Share Posted October 10, 2000 >They were sent as jpeg attachments. perfect! > >What did you have in mind? putting them all together on a web site.. where we (and anyone else who stumbles in) can see.. and, those who want can put " their story " there, so as we introduce ourselves we can just put in an address the newbie can click on, instead of having to type it over and over and over... >That would be something else nice for the >webpage. had a picture in her goflypsc web page. Have you seen >that? no, I've not yet found anyone who knows the real address (including ) any one have the correct address? >Many of the stories on that have changed and many aren't posting in >the group anymore. but, don't you think it would be nice to preserve that, as a group history, if nothing else.. and, who knows, maybe some of them are just waiting for an invitation to come back... if they need our help, I think we should try.. DenverD: husband of Mette (44), UC '73, dx PSC 6/2000 alive in Denmark <www.Texan.dk> Email: OrdSmed@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2000 Report Share Posted October 10, 2000 >They were sent as jpeg attachments. perfect! > >What did you have in mind? putting them all together on a web site.. where we (and anyone else who stumbles in) can see.. and, those who want can put " their story " there, so as we introduce ourselves we can just put in an address the newbie can click on, instead of having to type it over and over and over... >That would be something else nice for the >webpage. had a picture in her goflypsc web page. Have you seen >that? no, I've not yet found anyone who knows the real address (including ) any one have the correct address? >Many of the stories on that have changed and many aren't posting in >the group anymore. but, don't you think it would be nice to preserve that, as a group history, if nothing else.. and, who knows, maybe some of them are just waiting for an invitation to come back... if they need our help, I think we should try.. DenverD: husband of Mette (44), UC '73, dx PSC 6/2000 alive in Denmark <www.Texan.dk> Email: OrdSmed@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2000 Report Share Posted October 10, 2000 In a message dated 10/10/2000 4:28:13 PM Central Daylight Time, OrdSmed@... writes: << had a picture in her goflypsc web page >> I have seen this page with the pics and stories but can't find it now. Good idea to update it and add more pictures. If I find it I will let you know. Barby Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2000 Report Share Posted October 11, 2000 Hey All I found the old web page of 's but it is no longer accessible. Here's what it used to be: <A HREF= " http://fly.to/pscs " >http://fly.to/pscs</A> I have downloaded and saved most of the pics that people have sent but I also have ones from the Liver Support Group in the same folder. I could probably send Denver or whomever wants them. Take Care, Dianne Arneill AIH/PSC/Lupus/Sjogren's Dpa1228@... (Castle Rock, CO) Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.