Guest guest Posted January 10, 2012 Report Share Posted January 10, 2012 Hi Sue: That really sounds great. And you are so right. While we are attempting to sleep you are awake and joining each other I hope. If there is any way we can help you from here just let us know. You can use the chat room on the web site at any time as it is open 24/7. The only little quirk that it has is sometimes you have to click on chat once in a while in order to stay in the chat, other wise you will be sitting there by yourself getting no response from anyone and wondering why, lol. OK, like I said let us/me know if you need anything. Take care now.  Bob (Dad) Secretary/Treasurer ISDF Panama City, FL 32404 Please visit the International Stills Disease Foundation Inc. Web Site at www.stillsdisease.org . Please make TAX DEDUCTIBLE Donations to the all volunteer, International Stills Disease Foundation (ISDF), 1123 S. Kimbrel Ave., Panama City, FL 32404. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2012 Report Share Posted January 10, 2012 Hello, I wish you luck with your new group, however we are such a small community Internationally and this illness is so uncommon that world wide unity is so important. I hope that you will remain members of this group as well and can still share your chat regarding issues with funding, DLA and PCT as well as issues we commonly share. I am members of multiple groups myself and know how important it is to stay in contact with as many resources as possible. I know that for me, I learn a lot hearing about new drug therapy etc. that becomes approved in other countries before it is available here in the USA. So people from around the World, “YOU DO MAKE A DIFFERENCE!†Peace and Unity, From: Sue Sent: Tuesday, January 10, 2012 7:22 AM To: Stillsdisease Subject: New UK Stills group Hi All, I've started a new Yahoo group - stillsuk. I hope people can join so we can chat whilst our larger American sister is sleeping. It will also be useful to share some issues that specifically affect us in the UK such as PCT funding, DLA and other Things relevant to just us. I'd love to meet you on this group. All the very best Suex Quote Link to comment Share on other sites More sharing options...
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