New Member

[Guest guest]

Hello -

I am a new member to this group and would like to give you some info

about myself.

I am 29 yrs old and live in NYC. I was diagnosed with PSC almost a

year ago, shortly after the birth of my 1st child. I really didn't

take this too seriously until recently when I started doing research on

the disease. I think the doc who diagnosed me " softened " the blow a

little too much when he told me about it.

I also have ulcerative colitis (for about 10 yrs). I am taking Asacol

for the UC and Actigall for the PSC. I get my liver function (blood

test) every three months, and so far they have been normal.

I joined this group to get more information about the disease and

treatments. I would like to know what are the symptoms others are

experiencing and what treatments you are using. Also, I would like to

know if anyone knows of specialists in my area (I currently am seeing

just my gastroenterologist).

I also joined for the support. It is hard to talk about this disease

with my family because they don't understand what I am going through.

Also, I think my husband downplays the disease becasue he doesn't want

to deal with it.

Thanks for listening and I appreciate any info you can give me.

Dawn.