Guest guest Posted June 17, 2012 Report Share Posted June 17, 2012 My flares were coming every 2 weeks. I have now been on pred two weeks this coming Tuesday and I can feel a very slight flare happening. Not sure if it will remain really mild or not on the pred. The next couple of days will tell. The uncomfortable throat issue has never really gone away but knees have been much better. I can go for walks now. I have had a few very light headed moments this weekend, like I do when I have a flare, could be the anemia? I also feel a slight pleural effusion but very slight right now. Is this normal when you are taking prednisone? Thanks, a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2012 Report Share Posted June 19, 2012 Thanks I do need to keep a record of my symptoms. a Sent: Monday, June 18, 2012 12:48 PM To: Stillsdisease Subject: Re: Question Good day a, I’m glad your knees are a bit better so that you’re able to walk a bit. We can’t know why you’re getting light headed but it is possible for the anemia to be a cause. Try and have a chair around the places you stand and move slowly when you get up. Something that may help is to write down your symptoms each day and times of day with fever spikes. This can be a most helpful tool for you to learn your disease and for your doctor to see what patterns and symptoms you are having with each treatment plan. Taking Prednisone can relieve so much of the symptoms but does not stop the disease so yes, still having any symptoms can be normal but always ask and keep your doctor informed so he/she can decide the best treatment at each stage. Keep your spirits up if you can and thank you for sharing with us. Smiles and hugs, From: celson001@... My flares were coming every 2 weeks. I have now been on pred two weeks this coming Tuesday and I can feel a very slight flare happening. The uncomfortable throat issue has never really gone away but knees have been much better. I can go for walks now. I have had a few very light headed moments this weekend, like I do when I have a flare, could be the anemia? I also feel a slight pleural effusion but very slight right now. Is this normal when you are taking prednisone? Thanks, a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2012 Report Share Posted June 19, 2012 Hi Everyone! I am FINALLY going to see the new doc at the Pain Clinic tomorrow.. really looking forward to being treated like a human, at least, I hope that will happen! My doc stopped prescribing pain meds for me last month, so I've been limping through on the little bit I had left. She decided that Still's disease is not painful, and that MS, which I also have 'only causes pain in a small percentage of the population.' WRONG! But, what I wanted to ask everyone is about unusual sweating. I sweat from my head only, whenever I do even small exertions, like unloading the dishwasher and such. Does this happen to anyone else? I thought it might be related to prednisone, but I've had this sweating even when I don't take it. Any ideas anyone? Blessings to all, Holly *Holly * * * *Holly Dorst* *Compassionate Help with Difficult Issues* *1050 N 3rd St., Ste B2* *Laramie, WY 82072* ** * Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2012 Report Share Posted June 19, 2012 Hi Everyone! I am FINALLY going to see the new doc at the Pain Clinic tomorrow.. really looking forward to being treated like a human, at least, I hope that will happen! My doc stopped prescribing pain meds for me last month, so I've been limping through on the little bit I had left. She decided that Still's disease is not painful, and that MS, which I also have 'only causes pain in a small percentage of the population.' WRONG! But, what I wanted to ask everyone is about unusual sweating. I sweat from my head only, whenever I do even small exertions, like unloading the dishwasher and such. Does this happen to anyone else? I thought it might be related to prednisone, but I've had this sweating even when I don't take it. Any ideas anyone? Blessings to all, Holly *Holly * * * *Holly Dorst* *Compassionate Help with Difficult Issues* *1050 N 3rd St., Ste B2* *Laramie, WY 82072* ** * Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2012 Report Share Posted June 19, 2012 Hi Holly, A side affect from taking you off the pain meds could be all the sweating. I've been sweating a lot lately and don't know why. I've also had high bp, high pr, and don't know why. My doc mentioined Cushings Syndrome, too much cortisone. Let us know what your doc says. I'l keep you posted too. >________________________________ > >To: Stillsdisease >Sent: Tuesday, June 19, 2012 7:46 PM >Subject: Re: Question > >Hi Everyone! >I am FINALLY going to see the new doc at the Pain Clinic tomorrow.. really >looking forward to being treated like a human, at least, I hope that will >happen! My doc stopped prescribing pain meds for me last month, so I've >been limping through on the little bit I had left. She decided that >Still's disease is not painful, and that MS, which I also have 'only causes >pain in a small percentage of the population.' WRONG! > >But, what I wanted to ask everyone is about unusual sweating. I sweat from >my head only, whenever I do even small exertions, like unloading the >dishwasher and such. Does this happen to anyone else? > >I thought it might be related to prednisone, but I've had this sweating >even when I don't take it. >Any ideas anyone? > >Blessings to all, >Holly >*Holly * >* >* >*Holly Dorst* >*Compassionate Help with Difficult Issues* >*1050 N 3rd St., Ste B2* >*Laramie, WY 82072* >** >* Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2012 Report Share Posted June 19, 2012 Hi Holly, A side affect from taking you off the pain meds could be all the sweating. I've been sweating a lot lately and don't know why. I've also had high bp, high pr, and don't know why. My doc mentioined Cushings Syndrome, too much cortisone. Let us know what your doc says. I'l keep you posted too. >________________________________ > >To: Stillsdisease >Sent: Tuesday, June 19, 2012 7:46 PM >Subject: Re: Question > >Hi Everyone! >I am FINALLY going to see the new doc at the Pain Clinic tomorrow.. really >looking forward to being treated like a human, at least, I hope that will >happen! My doc stopped prescribing pain meds for me last month, so I've >been limping through on the little bit I had left. She decided that >Still's disease is not painful, and that MS, which I also have 'only causes >pain in a small percentage of the population.' WRONG! > >But, what I wanted to ask everyone is about unusual sweating. I sweat from >my head only, whenever I do even small exertions, like unloading the >dishwasher and such. Does this happen to anyone else? > >I thought it might be related to prednisone, but I've had this sweating >even when I don't take it. >Any ideas anyone? > >Blessings to all, >Holly >*Holly * >* >* >*Holly Dorst* >*Compassionate Help with Difficult Issues* >*1050 N 3rd St., Ste B2* >*Laramie, WY 82072* >** >* Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2012 Report Share Posted June 20, 2012 Hi a, I hope the pred. is starting to act as a leveller for you by now. How are you getting on? I think it's really positive that you are able to identify the signs of a flare - so hard to just STOP, I know, but hopefully you caught it. The throat, the throat...oh, the bain of my life. We have an over the counter throat tablet here in the UK called Tyrocet - it has a mild anesthetic in it. I wonder if you have anything similar? It definitely helps, plus a lot of fluids. Right behind on what she says re the lightheadedness. You'll keep an eye on that, right? Best wishes, Francesca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2012 Report Share Posted June 20, 2012 Holly, The best of wishes for the pain appointment! You will know how you feel when you meet the doctor I think. I think it is concerning that your doctor doesn't think your disease warrants any pain management medication. I realize there are different techniques of pain management and have used them also for years but medications have been necessary for me to function as well. Here in California we have a patients bill of rights and part of that says a person has the right to live in a certain amount of comfort. That is paraphrasing but close enough. I believe if someone hasn't shown a problem taking medications they should be given the opportunity to use what is available. It's only compassionate. I have had night sweats for years when I had fevers break but then a few years ago without a change in medications I started having the symptoms you are describing of such extreme sweating about the head and face when shopping or out that people were always seriously concerned. Even strangers. I started having to carry something to mop up the sweat. No doctors could ever tell my why except the medication answer. for some reason it went away and I've just had it return one summer since. I just try to always have liquids with me, even in stores and say it's for medical reasons if called on it to make sure I stay hydrated. Let us know how it goes will you? Smiles for your day, -----Original Message----- From: Holly Dorst I am FINALLY going to see the new doc at the Pain Clinic tomorrow.. My doc stopped prescribing pain meds for me last month, She decided that Still's disease is not painful, and that MS, which I also have 'only causes pain in a small percentage of the population.' WRONG! But, what I wanted to ask everyone is about unusual sweating. I sweat from my head only, whenever I do even small exertions, Does this happen to anyone else? Any ideas anyone? Blessings to all, Holly *Holly * Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2012 Report Share Posted June 20, 2012 Holly, The best of wishes for the pain appointment! You will know how you feel when you meet the doctor I think. I think it is concerning that your doctor doesn't think your disease warrants any pain management medication. I realize there are different techniques of pain management and have used them also for years but medications have been necessary for me to function as well. Here in California we have a patients bill of rights and part of that says a person has the right to live in a certain amount of comfort. That is paraphrasing but close enough. I believe if someone hasn't shown a problem taking medications they should be given the opportunity to use what is available. It's only compassionate. I have had night sweats for years when I had fevers break but then a few years ago without a change in medications I started having the symptoms you are describing of such extreme sweating about the head and face when shopping or out that people were always seriously concerned. Even strangers. I started having to carry something to mop up the sweat. No doctors could ever tell my why except the medication answer. for some reason it went away and I've just had it return one summer since. I just try to always have liquids with me, even in stores and say it's for medical reasons if called on it to make sure I stay hydrated. Let us know how it goes will you? Smiles for your day, -----Original Message----- From: Holly Dorst I am FINALLY going to see the new doc at the Pain Clinic tomorrow.. My doc stopped prescribing pain meds for me last month, She decided that Still's disease is not painful, and that MS, which I also have 'only causes pain in a small percentage of the population.' WRONG! But, what I wanted to ask everyone is about unusual sweating. I sweat from my head only, whenever I do even small exertions, Does this happen to anyone else? Any ideas anyone? Blessings to all, Holly *Holly * Quote Link to comment Share on other sites More sharing options...
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