This n that news

[Guest guest]

Good day all,

I started my day with a visit from a dear sister of our Still’s group. Lady El

has been with us for many years and is so very ill right now. She feels she has

had to be out of touch for so long and too sick to stay in touch. I ask that we

please support her with thoughts of love and healing comfort. She has many

conditions along with Still’s at this time and some are as yet undiagnosed.

However; we laugh at things we can, talk silly and remmaniss about years we

spent at conferences together.

I know it is so hard to find hope for better tomorrows when there are days that

go on with such illness. That is when it is time to reach out to the friends we

have that lift us up in spirit and share our heartbreak, sadness, fear and

insecurities.

I also spoke to Dad today. For the new members, Dad is Bob Himes, our

secretary/treasurer along with Mom, his wife Carole. Their daughter

passed with Still’s complications some years ago and they have since adopted

every single person and made this foundation their life’s work. Anyway, while

on a trip out of state, Dad became very ill and then when returning home needed

emergency surgery. He is finally home and doing better, but we just cannot keep

him down and he’s already back to catching up on all the many jobs he does for

the foundation. I ask thoughts of love and wellness for him as always too.

We are briskly moving towards the conference date and I encourage those that can

or are attending to make their reservations and put your party dresses on ;0) As

I’ve posted, our member Larry Brown is our guest speaker this year and the

topic will be on physical/occupational therapy and staying in motion throughout

the stages of this disease. We have waited a few years for Larry to be well

enough to join us and are so excited that he is finally at a place in time that

he will be able to.

I’d like to tell everyone to remember you’re thought of. Open a window,

smell the air, listen to the sounds, stretch and take comfort that others

understand and are at your fingertips whether it be the computer or the phone.

Smiles and love to all,