What are the chances that the CFS will return?

[Guest guest]

Today I was sitting in my doctor's office and a nice person next to make asked

me " Once I have improved, what are the chances that the CFS will return? " .

I didn't know what to say, she was diagnosed this year and I didn't want to

dismiss her hope but I've never met anyone who has fully recovered from CFS and

never experience it again.

I truly believe a CFS patient can get better but fully recover and never have a

relapse.. not sure.

Anyone have some input? I'd love to hear different points of view.

Thanks - P.J.

[Guest guest]

This is not exactly input on the subject but how is one diagnosed with CF?

Sincerely, Nightowl

>

> Today I was sitting in my doctor's office and a nice person next to make asked

me " Once I have improved, what are the chances that the CFS will return? " .

> I didn't know what to say, she was diagnosed this year and I didn't want to

dismiss her hope but I've never met anyone who has fully recovered from CFS and

never experience it again.

> I truly believe a CFS patient can get better but fully recover and never have

a relapse.. not sure.

> Anyone have some input? I'd love to hear different points of view.

> Thanks - P.J.

>

[Guest guest]

This is not exactly input on the subject but how is one diagnosed with CF?

Sincerely, Nightowl

>

> Today I was sitting in my doctor's office and a nice person next to make asked

me " Once I have improved, what are the chances that the CFS will return? " .

> I didn't know what to say, she was diagnosed this year and I didn't want to

dismiss her hope but I've never met anyone who has fully recovered from CFS and

never experience it again.

> I truly believe a CFS patient can get better but fully recover and never have

a relapse.. not sure.

> Anyone have some input? I'd love to hear different points of view.

> Thanks - P.J.

>

[Guest guest]

Nightowl, to my knowledge, CFS is only diagnosed by ruling out other conditions

with similar symptoms for which there *are* tests. For ex. I was sent to an

infectious disease spec because I had tested positive for a past Epstein Barre

infection. My regular doctor thought maybe it was CFS but sent me to her for her

input and further tests. I was tested several times by 3 different doctors for

rheumatoid arthritis, lupus, and HIV. I was tested once for Lyme's disease.

All were negative. (though I didnt understand the Lyme's disease result)

The infectious disease specialist agreed with my doctor that I might have CFS,

but, she sent me to a rheumatologist because she thought it might actually be

Fibromyalgia.

I did finally see the rheumatologist and while there isn't a blood test or

anything, he did do an exam in which several specific trigger points are

touched.

This doctor said I had only 9 of them- but, when he touched the specific spots I

about jumped off the table in with pain. So he says I have it. Due to my severe

reaction.

That and a history of my symptoms gave him the diagnosis.

From what I have read, CFS is more likely to have come about through past

viruses, epstein barre etc, or is a virus unto itself that's transferred through

the blood.

FMS(fibromyalgia syndrome) may develop after physical *or* emotional trauma.

(I have had both)

I was told more recently by a medical professional that *he* learned it as FMS

is a neurologial disorder.

One can have both CFS and FMS too( from what I understand ). .

I get sick a *lot* so I've wodered if I have CFIDS ( chronic fatigue immune

deficiency). But that's digessing. :-)

That's what I know, Nightowl. :-)

Others here may be more knowledgable about more recent information..

ps I'm a nightowl too.

Re: What are the chances that the CFS will return?

This is not exactly input on the subject but how is one diagnosed with CF?

Sincerely, Nightowl