questions and really no answers

July 17, 2012

So i read all the posts and often am left wondering does anyone really ever know

what exactly this disease syndrome is composed of and how much is the individual

genomes responsible for how it manifests in our bodies, and am i the only one

experiencing the bizarre symptoms often i come here and have wonderful ah ha

moments and sometimes a bit terrified too at the experiences others have that i

have not yet had, thinking oh great And like many i have the moments of

despondency at the lack of compassionate understanding from friends and family

and doctors but still keep the eternal hope that someday ill wake and my life

will be different. damn it Dorothy you didnt leave me any ruby slippers.I have

finally recieved some medical coverage and decided that i would become a patient

where a friend is the head nurse as she would be a great advocate that will be

able to validate some of my issues and not have them all pawned off to mental

health as the other doctor i had did of course there is going to be underlying

mh mr issues after all feeling like youve been dragged behind a pickup on a bad

dusty gravel road every day does something profound to your outlook on life hell

yeah im depressed im fourty seven years old and have lived with this crap since

1987 so now that i ranted on for a moment ?s does anyone else get extreme

headaches from taking pain meds i do not take them daily only on occasion if the

pain is truely unbearable but when i do within an hour i have a blaster of a

headache that i can actually feel building up and it literally ends up traveling

down my spine the only meds i take daily is nuerontin 300 mg and elavil 50 mgs

at night and occasionally for bad pain oxicodiene .0.5 and zanex .5 if i get

anxiety. so just wondering does anyone have a clue as to what this is and how do

i bring this up for the new doc and what works for pain thanks for hearing my

rant. franni

Recommended Posts