Guest guest Posted August 21, 2012 Report Share Posted August 21, 2012 Hi, all, Part of this post refers to a lack of celebrities with CFS. We have jazz great Jarrett; former women's soccer player and Olympic gold medal winner Akers; author Hillenbrand; and a couple dozen others listed at < http://en.wikipedia.org/wiki/List_of_people_with_chronic_fatigue_syndrome > The problem isn't a lack of celebrities - it is a lack of interest on the part of the media. The story of how an author writes a bestseller mostly from her bed because of a severe chronic illness hardly rates a mention in the book column, much less a front-page story like AIDS got many times over. Also, IMHO you can't believe what Obama says, you have to watch what he does. He hasn't followed up on this. Right now he can't afford to. And if he gets re-elected, its the expensive chronically ill who will be the first to suffer under his new plan - the National Health Care Coordinator (who has full access to all of your medical files AND all of your financial files) will see to that, to reduce our outrageously high national health care costs. Jerry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2012 Report Share Posted August 21, 2012 Hi, all, Part of this post refers to a lack of celebrities with CFS. We have jazz great Jarrett; former women's soccer player and Olympic gold medal winner Akers; author Hillenbrand; and a couple dozen others listed at < http://en.wikipedia.org/wiki/List_of_people_with_chronic_fatigue_syndrome > The problem isn't a lack of celebrities - it is a lack of interest on the part of the media. The story of how an author writes a bestseller mostly from her bed because of a severe chronic illness hardly rates a mention in the book column, much less a front-page story like AIDS got many times over. Also, IMHO you can't believe what Obama says, you have to watch what he does. He hasn't followed up on this. Right now he can't afford to. And if he gets re-elected, its the expensive chronically ill who will be the first to suffer under his new plan - the National Health Care Coordinator (who has full access to all of your medical files AND all of your financial files) will see to that, to reduce our outrageously high national health care costs. Jerry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2012 Report Share Posted August 21, 2012 Hi, all, Part of this post refers to a lack of celebrities with CFS. We have jazz great Jarrett; former women's soccer player and Olympic gold medal winner Akers; author Hillenbrand; and a couple dozen others listed at < http://en.wikipedia.org/wiki/List_of_people_with_chronic_fatigue_syndrome > The problem isn't a lack of celebrities - it is a lack of interest on the part of the media. The story of how an author writes a bestseller mostly from her bed because of a severe chronic illness hardly rates a mention in the book column, much less a front-page story like AIDS got many times over. Also, IMHO you can't believe what Obama says, you have to watch what he does. He hasn't followed up on this. Right now he can't afford to. And if he gets re-elected, its the expensive chronically ill who will be the first to suffer under his new plan - the National Health Care Coordinator (who has full access to all of your medical files AND all of your financial files) will see to that, to reduce our outrageously high national health care costs. Jerry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2012 Report Share Posted August 22, 2012 It is my opinion that it is the use of the name " chronic fatigue syndrome " more than anything that accounts for the lack of funding for research. People who aren't familiar with the disease see that name and don't read or listen any further because they dismiss it as " just tired " and think " well, I get tired plenty myself. " They don't even go far enough to learn about the other symptoms. Also, it is the National Health Care Coordinator for Information Technology which is tasked with implementation of data sharing between health care providers. The goal is to improve care and reduce costs and it does NOT include " all of your financial information " at all. The $716 billion that they are saying Obama " gutted " from medicare was in SAVINGS from wasteful spending with not a single reduction in benefits. Google fact checkers on it and you will see that this is true. That exact same $716 billion in savings was included in 's budget that was passed by House Republicans. If you check out 's budget that cuts spending for all kinds of things that affect the poor and disabled, you will see that there isn't any hope at all of increasing funding for medical research under that plan. Obama may not be able to increase funding for medical research soon due to the economy but he could influence the distribution of it so that more goes to Chronic Fatigue/ME out of the total available. I won't get into an argument about politics on this list as I don't believe it is an appropriate forum for that but I did want to add some facts for a bigger picture. I encourage people to look up information by organizations that do NON-PARTISAN fact checking on claims made by politicians on both sides this year. There is more inaccurate information in ads this year than I have ever seen before - again on both sides. Just google " Fact Check " and whatever subject you are interested in, like " fact check medicare " for example. Margie > > Hi, all, > > Part of this post refers to a lack of celebrities with CFS. We have jazz great Jarrett; former women's soccer player and Olympic gold medal winner Akers; author Hillenbrand; and a couple dozen others listed at > > < http://en.wikipedia.org/wiki/List_of_people_with_chronic_fatigue_syndrome > > The problem isn't a lack of celebrities - it is a lack of interest on the part of the media. The story of how an author writes a bestseller mostly from her bed because of a severe chronic illness hardly rates a mention in the book column, much less a front-page story like AIDS got many times over. > > Also, IMHO you can't believe what Obama says, you have to watch what he does. He hasn't followed up on this. Right now he can't afford to. And if he gets re-elected, its the expensive chronically ill who will be the first to suffer under his new plan - the National Health Care Coordinator (who has full access to all of your medical files AND all of your financial files) will see to that, to reduce our outrageously high national health care costs. > > > Jerry > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2012 Report Share Posted August 23, 2012 Thanks for posting this, Margaret---you said it much nicer than I would have! Lynn ________________________________ Subject: Re: Obama & ME/CFS It is my opinion that it is the use of the name " chronic fatigue syndrome " more than anything that accounts for the lack of funding for research. People who aren't familiar with the disease see that name and don't read or listen any further because they dismiss it as " just tired " and think " well, I get tired plenty myself. " They don't even go far enough to learn about the other symptoms. Also, it is the National Health Care Coordinator for Information Technology which is tasked with implementation of data sharing between health care providers. The goal is to improve care and reduce costs and it does NOT include " all of your financial information " at all. The $716 billion that they are saying Obama " gutted " from medicare was in SAVINGS from wasteful spending with not a single reduction in benefits. Google fact checkers on it and you will see that this is true. That exact same $716 billion in savings was included in 's budget that was passed by House Republicans. If you check out 's budget that cuts spending for all kinds of things that affect the poor and disabled, you will see that there isn't any hope at all of increasing funding for medical research under that plan. Obama may not be able to increase funding for medical research soon due to the economy but he could influence the distribution of it so that more goes to Chronic Fatigue/ME out of the total available. Quote Link to comment Share on other sites More sharing options...
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