Re: PSC newsletter from Germany

[Guest guest]

Thanks , that led to some interesting sites.

One said " Since with Gallengangsstrikturen [bile duct

strictures] a increased Cholangitisrisiko [risk of cholangitis]

exists, the ERCP under antibiotic protection (e.g. Mezlozillin,

Amoxillin or Ciprofloxazin) should take place. ...

[Cholangiocarcinoma] develops 15 % of the patients with PSC in

the long-term process. Safe methods of the early recognition do

not exist. However in the context of the ERCP an executed brush

tap or Biopsie can contribute to the distinction of benigner and

malignant Strikturen. "

http://www.dccv.de/psc/treffen/001013cholangitis.htm translated

by http://babelfish.altavista.com/raging/translate.dyn

Tim

The Newsletter as translated by babelfish follows:

P S C N E W S L E T T E R 3 / 00 I N H A L T

------------------------------------------------

* Preface

* Review federal meeting:

Edited version of the lectures is in the network!

* ation is in demand:

The PSC-FAQ in the Internet

* Ever more:

Article in the physician newspaper

* Empiric reports:

Lebertransplantation with PSC

------------------------------------------------

Preface

=======

Loves Newsletter - subscribers,

many events from the last months are situated behind us:

The vacation period, the summer, in addition, the start of the

hp C sides in the Internet in their new Outfit and our PSC

Bundestreffen.

The latter was a mad weekend with much information to the PSC,

mad discussions with other concerning and (not too forgotten)

much fun with cosy evenings and leaking rem meal. Unfortunate it

was only that our probably most removed member, Ann from

Australia, despite long vorplanung and posted flight could not

participate because of a death in the family. Ann, we thought on

the weekend frequently of you.

A report of a Teilnehmerin at the federal meeting it will give

in next Newsletter, a summary of the medical information sees

further below. Many greetings and a beautiful autumn time

, Sprecher AK-PSC

Edited version of the lectures is in the network!

=====================================

the PSC Bundestreffen of this year with physician patient

seminar took place from 13. - 15 October in Wiesbaden. With

approx. 70 users the APS was a mad success for us.

The two emphasis lectures can you in the meantime on-line

recall: Primarily sklerosierende Cholangitis: New aspects of the

internal therapy Professor Dr. R. Raedsch, Wiesbaden, federal

meeting of the AK-PSC 2000

http://www.dccv.de/psc/treffen/001013cholangitis.htm

Current aspects to the Lebertransplantation Professor Dr. G.

Otto, Mainz, federal meeting of the AK-PSC 2000

http://www.dccv.de/psc/treffen/001013transplantation.htm

The PSC-FAQ in the Internet

=======================

In order to answer the most important questions briefly and

scarcely, we created recently the PSC FAQs - to Frequently Asked

Questions about PSC under the address

http://www.dccv.de/psc/faq/index.htm.

So far are in the FAQ mainly questions approximately around the

supply of our working group available. We would like to develop

gradually this FAQ to a more global document and are dependent

with it on your assistance:

Which important questions do you have in run yours PSC

" Geschichte " to the illness, to the medical area, to social

problems of etc. had, which responses have you found, which

questions are still openly?

Send briefly formulated questions and as already as possible

available responses please to the address psc@.... We will

then build or will try these into the FAQ to answer or from the

physicians cooperating with us answered have still open

questions.

Article in the physician newspaper

===========================

a report over Begleiterkrankungen with CED with the emphasis PSC

appeared recently in the physician page. The opinion

geaeussterte in the fact is particularly interesting for us that

15% the Colitis would have ulcerosa concerning a PSC. So far

numbers were always called, which were about half so large.

Allerdinngs gave again and again it also from the advisers with

our meetings to referring to a probably very high dark digit,

and numbers of up to 20.000 PSC patients in Germany were already

called us. The article in the physician page seems to encourage

these tendencies, and also it speaks our own member statistics

for the fact that the PSC is not so rare, as assumes still some

time ago.

There is the article of the physician page on-line:

http://www.aerztezeitung.de/docs/2000/10/24/190a1101.asp

Lebertransplantation with PSC

============================

in the WWW appeared in the meantime two further empiric reports

to the Lebertransplantation with PSC. These are under on the one

hand the report of a concerning:

http://www.lebertransplantation.de/ukbericht.htm

as well as a very interesting newspaper report over the TX of

the brother:

http://news.paz-online.de/PAZ/JUPS/story25717.html

===========================================================================

This is the new type character of the AK-PSC the German disease

Crohn/Colitis ulcerosa union DCCV e.V.

Consider please: The supply of the DCCV, which also you in form

of this free PSC Newsletters uses, causes substantial costs

despite to a large extent honorary work. You can promote us:

With a membership in the DCCV registered association or by a

donation - both is fiscally relocatable.

You receive an overview of the extended performances on the page

http://www.dccv.de/beitritt/ for members.

Important URL's:

http://www.dccv.de

http://www.dccv.de/psc/

http://www.dccv.de/mediziner/

http://www.dccv.de/beitritt/

If you liked to receive no information of the AK-PSC about your

E-Mail address or your E-Mail address change, announce you

please on our Internet pages

http://www.dccv.de/psc/

under the menu option " Newsletter " off / over.

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