can anyone tell me whats happening to me

[Guest guest]

Hi all,

Let me start by giving a quick background i was diagnosed with still

at 2 months old and stayed in hospital for 2 years all my childhood was spent in

backcasts of my legs at night walking sticks in the day physio and hydropherapy

3 times a week i ached in every joint and had and still do juvinille iricitus in

my eyes thankfully flair ups got fewer and fewer i had my last one at 21 in my

20s i acheived a 2nd dan in tae kwon do, i am now 48 and ache every morning am

tired most of the time and so depressed i feel like crying at the slightest

thing i dont take any medication as some of my friends died from the effects of

steroids and i took loads of pills as a child so tend not to now i was lucky to

have a very good doctor when i was a child dr Ancill i am told i will need a

right hip replacement and a left reserficing at some point but my doctor says i

am not in a flair up which i know cause none of my joints are swollen can

someone tell me whats happening to me.

ps sorry about spelling mistakes etc

[Guest guest]

Hi ,

 

I just want to offer my sympathy for what you're going through. It sounds very

scary and confusing. I wish I had more information, but I think that is best to

get from your doctor then me. I will send healing thougths your way. Please know

that you are accepted here and have my support. Feel better.

 

My Best,

>To: Stillsdisease

>Sent: Tuesday, August 14, 2012 2:11 PM

>Subject: can anyone tell me whats happening to me

>

>

> 

>Hi all,

>Let me start by giving a quick background i was diagnosed with still at 2

months old and stayed in hospital for 2 years all my childhood was spent in

backcasts of my legs at night walking sticks in the day physio and hydropherapy

3 times a week i ached in every joint and had and still do juvinille iricitus in

my eyes thankfully flair ups got fewer and fewer i had my last one at 21 in my

20s i acheived a 2nd dan in tae kwon do, i am now 48 and ache every morning am

tired most of the time and so depressed i feel like crying at the slightest

thing i dont take any medication as some of my friends died from the effects of

steroids and i took loads of pills as a child so tend not to now i was lucky to

have a very good doctor when i was a child dr Ancill i am told i will need a

right hip replacement and a left reserficing at some point but my doctor says i

am not in a flair up which i know cause none of my joints are swollen can

someone tell me whats happening

to me.

>

>ps sorry about spelling mistakes etc

>

>

>

>

>

[Guest guest]

Hi ,

 

I just want to offer my sympathy for what you're going through. It sounds very

scary and confusing. I wish I had more information, but I think that is best to

get from your doctor then me. I will send healing thougths your way. Please know

that you are accepted here and have my support. Feel better.

 

My Best,

>To: Stillsdisease

>Sent: Tuesday, August 14, 2012 2:11 PM

>Subject: can anyone tell me whats happening to me

>

>

> 

>Hi all,

>Let me start by giving a quick background i was diagnosed with still at 2

months old and stayed in hospital for 2 years all my childhood was spent in

backcasts of my legs at night walking sticks in the day physio and hydropherapy

3 times a week i ached in every joint and had and still do juvinille iricitus in

my eyes thankfully flair ups got fewer and fewer i had my last one at 21 in my

20s i acheived a 2nd dan in tae kwon do, i am now 48 and ache every morning am

tired most of the time and so depressed i feel like crying at the slightest

thing i dont take any medication as some of my friends died from the effects of

steroids and i took loads of pills as a child so tend not to now i was lucky to

have a very good doctor when i was a child dr Ancill i am told i will need a

right hip replacement and a left reserficing at some point but my doctor says i

am not in a flair up which i know cause none of my joints are swollen can

someone tell me whats happening

to me.

>

>ps sorry about spelling mistakes etc

>

>

>

>

>

[Guest guest]

Hi ,

 

I just want to offer my sympathy for what you're going through. It sounds very

scary and confusing. I wish I had more information, but I think that is best to

get from your doctor then me. I will send healing thougths your way. Please know

that you are accepted here and have my support. Feel better.

 

My Best,

>To: Stillsdisease

>Sent: Tuesday, August 14, 2012 2:11 PM

>Subject: can anyone tell me whats happening to me

>

>

> 

>Hi all,

>Let me start by giving a quick background i was diagnosed with still at 2

months old and stayed in hospital for 2 years all my childhood was spent in

backcasts of my legs at night walking sticks in the day physio and hydropherapy

3 times a week i ached in every joint and had and still do juvinille iricitus in

my eyes thankfully flair ups got fewer and fewer i had my last one at 21 in my

20s i acheived a 2nd dan in tae kwon do, i am now 48 and ache every morning am

tired most of the time and so depressed i feel like crying at the slightest

thing i dont take any medication as some of my friends died from the effects of

steroids and i took loads of pills as a child so tend not to now i was lucky to

have a very good doctor when i was a child dr Ancill i am told i will need a

right hip replacement and a left reserficing at some point but my doctor says i

am not in a flair up which i know cause none of my joints are swollen can

someone tell me whats happening

to me.

>

>ps sorry about spelling mistakes etc

>

>

>

>

>

[Guest guest]

I think maybe you are in a flare, it would be good if you can go see a

rheumatologist to check whats goin on with you joints since ur off of all

the medications,

im sad myself, ive been a flare for months now (newly diagnosed) ive been

perscribed cymbalta, its suppose to help with the pain and depression,

best of luck, also you can find the group on facebook, and probably get

more responses there too

-ewelina

On Tue, Aug 14, 2012 at 10:57 PM, Butterfly Chaser <

butterflychaser999@...> wrote:

>

>

> Hi ,

>

> I just want to offer my sympathy for what you're going through. It sounds

> very scary and confusing. I wish I had more information, but I think that

> is best to get from your doctor then me. I will send healing thougths your

> way. Please know that you are accepted here and have my support. Feel

> better.

>

> My Best,

>

>

>

> >To: Stillsdisease

> >Sent: Tuesday, August 14, 2012 2:11 PM

> >Subject: can anyone tell me whats happening to me

>

> >

> >

> >

> >Hi all,

> >Let me start by giving a quick background i was diagnosed with still at 2

> months old and stayed in hospital for 2 years all my childhood was spent in

> backcasts of my legs at night walking sticks in the day physio and

> hydropherapy 3 times a week i ached in every joint and had and still do

> juvinille iricitus in my eyes thankfully flair ups got fewer and fewer i

> had my last one at 21 in my 20s i acheived a 2nd dan in tae kwon do, i am

> now 48 and ache every morning am tired most of the time and so depressed i

> feel like crying at the slightest thing i dont take any medication as some

> of my friends died from the effects of steroids and i took loads of pills

> as a child so tend not to now i was lucky to have a very good doctor when i

> was a child dr Ancill i am told i will need a right hip replacement and a

> left reserficing at some point but my doctor says i am not in a flair up

> which i know cause none of my joints are swollen can someone tell me whats

> happening

> to me.

> >

> >ps sorry about spelling mistakes etc

> >

> >

> >

> >

> >

>

>

[Guest guest]

I think maybe you are in a flare, it would be good if you can go see a

rheumatologist to check whats goin on with you joints since ur off of all

the medications,

im sad myself, ive been a flare for months now (newly diagnosed) ive been

perscribed cymbalta, its suppose to help with the pain and depression,

best of luck, also you can find the group on facebook, and probably get

more responses there too

-ewelina

On Tue, Aug 14, 2012 at 10:57 PM, Butterfly Chaser <

butterflychaser999@...> wrote:

>

>

> Hi ,

>

> I just want to offer my sympathy for what you're going through. It sounds

> very scary and confusing. I wish I had more information, but I think that

> is best to get from your doctor then me. I will send healing thougths your

> way. Please know that you are accepted here and have my support. Feel

> better.

>

> My Best,

>

>

>

> >To: Stillsdisease

> >Sent: Tuesday, August 14, 2012 2:11 PM

> >Subject: can anyone tell me whats happening to me

>

> >

> >

> >

> >Hi all,

> >Let me start by giving a quick background i was diagnosed with still at 2

> months old and stayed in hospital for 2 years all my childhood was spent in

> backcasts of my legs at night walking sticks in the day physio and

> hydropherapy 3 times a week i ached in every joint and had and still do

> juvinille iricitus in my eyes thankfully flair ups got fewer and fewer i

> had my last one at 21 in my 20s i acheived a 2nd dan in tae kwon do, i am

> now 48 and ache every morning am tired most of the time and so depressed i

> feel like crying at the slightest thing i dont take any medication as some

> of my friends died from the effects of steroids and i took loads of pills

> as a child so tend not to now i was lucky to have a very good doctor when i

> was a child dr Ancill i am told i will need a right hip replacement and a

> left reserficing at some point but my doctor says i am not in a flair up

> which i know cause none of my joints are swollen can someone tell me whats

> happening

> to me.

> >

> >ps sorry about spelling mistakes etc

> >

> >

> >

> >

> >

>

>