Re: Meningitis and Stills

[Guest guest]

I've only lashed out physically at two Doctors, both times were in the

ER when I was in total agony and they came right out and accused me of

being a " seeker " ...and neither of them have any desire to cross my path

again as once I have my mind set on taking someone down there is little

anyone can do to stop me. Both of those idiots were disciplined, and one

was eventually fired for his antics.

When I went to s Hopkins the same thing would have happened (after I

smashed the hell out of the asshole first) but luckily for them one of my

best friends was in the office with me and diffuse the situation. He

claimed that all of the other Dr's I had seen were idiots and that there

was nothing wrong with me! That's as close to a quote as I can recollect at

this time.....the sad part is that he didn't even review my records (which

at the time were already close to 1000 pages!) and judged me by my

appearance, which is before I blew up due to the steroids!

Just as I know there are many horrible, lying & cheats in every field in

life...there seems to be in the " elite " fields as well. Luckily for me I

now have a team (5) of FANTASTIC Dr's!

Kirk

> **

>

>

> Same here for me with UCLA. I got the moron doctor too!

>

> Sent from my iPhone

>

>

>

> > You had the Mayo Clinic, I had s Hopkins! Seems everyone gets an

> > idiot or two along the way! I know s Hopkins to be an excellent

> > institute, but the Dr I had was a moron!

> > Kirk.

> >

> >

> >

> > > I repeat everyone's recent 'wow' experience! My first hospital ER visit

> > > with Stills was thought to be encephalitis related to West Nile as we

> had

> > > been camping when it came on. My presentation was scary-level

> dehydration,

> > > high fever, inability to move any and all joints, severe pain, SED

> rate was

> > > 125 so they kept repeating it thinking they were wrong. Vomiting, loss

> of

> > > bladder and bowel control, blurred vision. And they sent me home after

> > > giving me an IV dose of prednisolone. So. I was back the next day in

> > > worse condition, and then they kept me for 2 weeks in isolation. I

> never

> > > connected the encephalitis to the whole mess until you all were talking

> > > about it.

> > > I finally found a rheumatologist who knew we were out of his league and

> > > sent me to the Mayo clinic where I was badly treated as I have

> reported in

> > > an earlier post, and finally got to University of Colorado hospital in

> > > Aurora. The doc who invented kineret practices there and his colleague

> is

> > > my main doc, Dr. Sterling West (great name, isn't it?).

> > > Stills is such a bad boy. So much can happen.

> > > Prayers go up for all of us who are working through the experience so

> docs

> > > can train on us! It's gotta be good for something, no?

> > > Blessings all around,

> > > *Holly *

> > > *hollydorst@...*

> > > *

> > > *

> > >

> > >

> > >

> > > On Sat, Aug 11, 2012 at 12:55 PM, Angie Salas

> > > wrote:

> > >

> > > > **

> > > >

> > > >

> > > > Wow! This is crazy to hear. I had gotten viral meningitis in 1996!

> When I

> > > > was 16 years of age. Although it was viral my brain had already

> started

> > > to

> > > > swell and we were told that if we had waited another 2 hours the

> damage

> > > > would have been deadly. I had no other symptoms other than bad

> headaches

> > > > until 2004 which was the onset of this disease. The fact that Stills

> may

> > > be

> > > > able to create meningoencephalitis scares me. I still get horrible

> > > > headaches but I keep an eye out for the neck pain. Thank you for

> sharing!

> > > >

> > > > Angie

> > > >

> > > > Sent from my iPad

> > > >

> > > >

> > > > ________________________________

> > > > > > Check the weather nationwide with MSN Search: Try it now!

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> > > > > >

> > > > > >