Re: Kirk Looking back through old posts

[Guest guest]

Yes it is one they use to rule out Lupus. I've heard though in Still's patients,

that the ANA will come back negative. Correct me if I am wrong or anyone

else if you have heard this.

 

Problems with diagnosing my daughter with Still's were mixed results, where at

certain times the ANA was positive and others negative leading them to believe

at first it was Lupus, but then other symptoms and patterns showed otherwise.

They were at one time considering that she had both Lupus and Still's however,

at this current day, she has Still's only.

 

Best of Luck Kirk,

 

>To: Stillsdisease

>Sent: Tuesday, August 21, 2012 7:24 AM

>Subject: Re: Kirk Looking back through old posts

>

>

> 

>That is the test for LUPUS isn't it???

>

>On 21 August 2012 02:07, Butterfly Chaser

<mailto:butterflychaser999%40yahoo.com>wrote:

>

>> **

>>

>>

>> Hi Kirk,

>>

>> One test that is possible they took on you would be an ANA (anti-neuclear

>> antibodies) I think is how it is spelled. Something to check in to.

>>

>>

>>

>> From: Kirk Bonanny <mailto:kbonanny%40gmail.com>

>> >To: mailto:Stillsdisease%40yahoogroups.com

>> >Sent: Monday, August 20, 2012 10:47 PM

>> >Subject: Re: Kirk Looking back through old posts

>> >

>> >

>> >

>> >Thanks for the info ! I only have to hope that my PC holds up as it

>> is

>> >dying. The motherboard is bad and it tends to shut off every few minutes!

>> >I'd buy a new one, but this has been a BRUTAL year for me, not being able

>> >to do 1/4 of what I am used to doing.

>> >At least I'm back into coaching football, but I know I'm going too far

>> with

>> >my " hands on " approach, but the only way to teach techniques ti the

>> >offensive and defensive lines require demonstrations. I've been carted off

>> >of the field more than once, but to me it is too important for me to do to

>> >really care if I hurt myself.

>> >PS...I'm down to under 270 now! C-dif may be dangerous but it sure is a

>> >good way to lose a bunch of weight fast. They have me on Vancomycin and

>> >although I've noted slight improvement, it is still with me. I am very

>> >lethargic and have to really push myself just to get through the

>> >day.......and as tired as I am I can NOT sleep very well, seeing the wee

>> >hours of the morning most of the time!

>> >Have a good day, Kirk.

>> >

>> >On 21 August 2012 01:14, <mailto:windsinging%40hotmail.com> wrote:

>> >

>> >> **

>> >>

>> >>

>> >> Evening Kirk,

>> >>

>> >> You can go back at the home page of the group and use the search engine

>> in

>> >> the messages to look up past posts. They have detailed boxes that you

>> can

>> >> use to pull up any and all posts from the beginning of the group back in

>> >> 2000 I think it is. If you try the Epstein-bar category maybe that will

>> >> lead to some of the others? Worth a try. I really miss Kathleen now as

>> she

>> >> was always so good to have that information.

>> >>

>> >> Wishing they find the records for you.

>> >>

>> >>

>> >> From: Kirk Bonanny

>> >> I thought I remembered there

>> >> being a discussion years ago where certain viruses could trigger an

>> >> auto-immune type reaction such as Stills. I know it was on list, but

>> that

>> >> was most likely at least 7 or 8 years ago.

>> >> Kirk.

>> >>

>> >>