Re: Conference Information

[Guest guest]

Thank you so much , the way you have posted this imformation is so clear

for me:-)  I'm so excited to finally get to go hopefully that's my plan.

**Xios**null

[Guest guest]

Yea! Is this ? Either way, we are happy and hopeful you get to also. Good

evening to you and all,

From: xios3

Subject: Re: Conference information

Thank you so much , the way you have posted this information is so clear

for me:-) I'm so excited to finally get to go hopefully that's my plan

**Xios**

[Guest guest]

, can I ask a favor? When you're at the conference can you ask Dr.

Cush what some of the known triggers of Stills are?? I figure if anyone

knows he will. I'm also typing up a letter asking the same questions to my

Rd (Dr. Kantor)(FANTASTIC RD!) as if there is any chance in hell of

me getting a military disability I'll be so much better off!

Kirk/

> **

>

>

> Hello all,

> Here is the conference information again ;0) I know it is fast approaching

> but the hotel has reassured me that they will most likely have rooms

> available at the quoted rates even after the extended cut off date IF you

> give the reservations desk the Still’s Conference ID # that is in the email

> below. Come if you can but if not able we will miss you and hope to be able

> to bring back information!

> J. Cush, MD Professor of Medicine and

> Rheumatology Baylor University Medical Center

> J. Cush, MD, received his undergraduate degree from St. s

> University and his medical degree from St. s University School of

> Medicine. After completing an internal medicine residency at Coney Island

> Hospital in New York City, Dr. Cush finished his rheumatology training and

> fellowship at University of Texas Southwestern Medical School and Parkland

> Memorial Hospital. He has been on the faculty at Southwestern Medical

> School since 1987, where he is a clinical professor of internal medicine.

> He is the director of clinical rheumatology for the Baylor Research

> Institute and a professor of medicine and rheumatology at Baylor University

> Medical Center in Dallas, Texas.

> Dr. Cush is devoted to patient care, medical education and novel drug

> research for the rheumatic diseases. He has been published in more than 100

> medical and scientific publications and has written two textbooks on

> rheumatology: Rheumatology: Diagnosis and Therapeutics (2nd edition,

> Lippincott, & Wilkins, 2005), and Rheumatoid Arthritis: Early

> Diagnosis and Treatment (2nd edition, Professional Communications, 2008).

> Dr Cush is the recipient of numerous awards and distinctions, including

> the B. Hingson Humanitarian Award (1988), Intern of the Year (1985),

> Teacher of the Year (1999), Best Doctors in America (1996, 1998, 2001-2002)

> and Best Doctors in Dallas (1998-2007). He has held numerous leadership

> positions for the National Arthritis Foundation and the American College of

> Rheumatology and has served on the Arthritis Advisory Committee for the

> Food and Drug Administration.

> ADDED EVENT DURING CONFERENCE

> We were waiting until arrangements had been made to let you know about

> this exciting event that will be taking place at the conference this year.

> Dr. Cush has worked with a medical reporter named Hammarley who has

> produced videos for his practice website and social media. Because of the

> generosity of a few people and Mr. Hammarley, he has offered to use his

> video production company to make 2 or 3 short videos (3-5 min) about

> Still’s disease, 1) what it is; 2) the difficulty in getting diagnosed & 3)

> advances in treatment. It is planned for this to be done from chosen

> patients in attendance at the conference. These would be used to promote

> the web sites and give disease information through the social media

> (Facebook, Twitter, You Tube, Medical Publications) as well as raising

> public awareness for research, etc. Dr. Cush is also working on another

> project to present at the conference. We will inform you if it works out in

> time.

> Reservation Details

> Orleans Hotel & Casino

> 4500 W. Tropicana Ave. Las Vegas, Nevada

> ROOM RATES:

>

> The hotel has extended us FIVE rooms for Saturday, September 1st check in

> at a discounted rate of $ 99.00 and must be booked through the booking

> number listed below. The rate for Sunday night, September 2nd, is offered

> at $ 39.00 and Monday, September 3rd through Wednesday night, September 5th

> will be offered at $ 29.00 per night. ALL with a minimum TWO night stay.

>

> Please be advised that all rates quoted are net, per room, per night,

> allowing for single or double occupancy. Any Deluxe rooms requiring triple

> or quad occupancy will be surcharged an additional $ 15.00 per guest, per

> room, per night. (Children age fourteen and under, in the same room with

> parents in existing bedding, are free.) All rates are subject to a

> County room tax, currently twelve-percent (12%). This tax is subject to

> increase without prior notice. Reservations for dates other than those

> specified above will be accepted on a space available basis as to

> accommodations and room rates.

>

> RESORT FEE:

>

> There is a mandatory Resort Fee, currently $ 6.00 per room, per day,

> allowing access to the Fitness Center, in-room coffee, unlimited local &

> 800 calls as well as free Wi-Fi in Java Vegas Coffee Shop & High-Speed

> Internet Access in our Business Center. The Resort Fee is subject to

> increase without prior notice.

>

> CHECK-IN/CHECK-OUT:

>

> Check-in for individual arrivals begins at 3:00 p.m. Check-out time is at

> 12:00 noon. Hotel agrees to make rooms available prior to the stated

> check-in time and to extend late check-out to guests on a preferential

> basis, if available.

>

> GENERAL HOTEL POLICIES:

>

> Guestrooms must be occupied and registered to at least one adult, who is

> twenty-one years of age or older. PHOTO IDENTIFICATION WILL BE REQUIRED

> UPON CHECK-IN. Hotel reserves the right to refuse or terminate service to

> any individual(s) when not in compliance with this policy.

>

> Upon arrival, all guests will be required to post a $ 100.00 security

> deposit via a credit card to secure their individual room accounts.

>

> The number of Non Smoking rooms at the Hotel are limited. As such,

> although Hotel will make every attempt to accommodate requests for such

> rooms, Hotel cannot guarantee availability.

>

> RESERVATION PROCEEDURES:

>

> Prior to cut-off date, individuals are encouraged to book their

> reservations on-line. To receive your special group rate members will need

> to enter the assigned Reservation ID: A2STC09 through the Hotel’s website

> at www.orleanscasino.com/groups .

>

> Prior to cut-off date, individuals may also call Hotel’s Room Reservations

> Department direct at and identify themselves as members of

> the International Still’s Conference. Without the group name you will not

> receive the special rate as noted above and may be advised that the Hotel

> is sold out. Operating on Pacific Time, hours of operations are Monday

> through Friday from 6:00 am to 11:00 pm; Saturday and Sunday 7:00 am to

> 11:00 pm.

>

> The equivalent of one (1) night’s room and tax will be required in either

> the form of a credit card with the expiration date, company/personal check,

> American Express; Diners Club; MasterCard; Discover; VISA; JCB or Cashier’s

> Check. Hotel accepts company/personal checks for payment of deposits only

> and must be received a minimum of thirty (30) days prior to arrival date.

> CREDIT CARDS WILL BE CHARGED IMMEDIATELY BY HOTEL TO SECURE THE FIRST NIGHT

> DEPOSIT.

>

> CUT-OFF DATE: HAS BEEN EXTENDED

>

> The cut-off date has been extended for room reservations and will be

> 08/17/12 . The Hotel will make every attempt to accommodate last minute or

> late reservations at the prevailing rate on a space availability basis.

>

> CANCELLATION POLICY:

>

> Hotel policy for cancellation of an individual guaranteed reservation is

> at least seventy-two (72) hours prior to scheduled arrival date and must be

> received in writing. Rooms released less than seventy-two hours prior to

> arrival date and all no-shows will be subject to a cancellation penalty

> equivalent to the first night’s room and tax.

>

> ACCOMMODATION OF DISABLED PERSONS:

>

> The Hotel shall take all reasonably necessary steps to ensure the

> accessibility of its facilities to the disabled attendees and to

> accommodate their special needs. Please advise Hotel prior to arrival, of

> the anticipated needs for such accommodations. A limited number of

> refrigerators are available upon request and it is suggested attendees

> bring coolers if convenient for medications. The Hotel does have scooter

> rentals available.

>

> EVENTS SCHEDULE

> 1.. Sunday Evening Meet & Greet – 7:00 to 8:30 pm Upstairs in Conference

> area lounge. Elevator is available.

>

> 2.. Monday is Conference Day – Check in at front table. Offered will be

> Pastries, Coffee, Tea and Juices 9:00 to 10:00 am in Salon I upstairs.

> ($20. per person donation requested at the door)

>

> 3.. Opening welcome by Treasurer/ Bob Himes 10:00 to 11:00 am

>

> 4.. Speaker Dr. J. J. Cush

>

> 11:00 pm What is Still’s disease and how is it diagnosed (the history of

> the disorder, key critical features, how to assure the diagnosis)

>

> WITH BREAK

>

> 12:00 pm Treatment of SoJIA, AOSD (treatment of systemic disease vs.

> chronic arthritis, how to find the right MD to treat AOSD)

>

> Lunch 1:00 pm – 2:00 pm

>

> Gift drawing fundraiser 2:00 pm (A gift donation is appreciated) Tickets $

> 1.00 ea.

>

> Afternoon session to close by 4:30/5:00 pm

>

> Some times during the conference may vary throughout the day as there will

> be extra activities. Please tell me that day or before by email if I can

> accommodate any special needs. Thank you.

> Optional DINNER 7:00 pm A restaurant will be chosen by the afternoon of

> the conference, if not before. Some do not take advance reservations.

>

> Individual dinner tickets. Dress: Evening wear as comfortable.

>

> Many guests stay over for additional days and take advantage of the Hotel

> amenities and or activities around town. You may request the Hotel to send

> you a brochure of what they have available when you make your reservations.

>

> Should you have any questions, please feel free to email at

> windsinging@... and I will do all I can to assist you. If you,

> your friends and/or family are able to attend, please send me an email so

> that we may plan the expected attendance for food conference morning.

>

> Thank you. We look forward to seeing you there and sharing some memorable

> experiences.

>

> The International Still’s Disease Foundation Inc.

>

>

[Guest guest]

, can I ask a favor? When you're at the conference can you ask Dr.

Cush what some of the known triggers of Stills are?? I figure if anyone

knows he will. I'm also typing up a letter asking the same questions to my

Rd (Dr. Kantor)(FANTASTIC RD!) as if there is any chance in hell of

me getting a military disability I'll be so much better off!

Kirk/

> **

>

>

> Hello all,

> Here is the conference information again ;0) I know it is fast approaching

> but the hotel has reassured me that they will most likely have rooms

> available at the quoted rates even after the extended cut off date IF you

> give the reservations desk the Still’s Conference ID # that is in the email

> below. Come if you can but if not able we will miss you and hope to be able

> to bring back information!

> J. Cush, MD Professor of Medicine and

> Rheumatology Baylor University Medical Center

> J. Cush, MD, received his undergraduate degree from St. s

> University and his medical degree from St. s University School of

> Medicine. After completing an internal medicine residency at Coney Island

> Hospital in New York City, Dr. Cush finished his rheumatology training and

> fellowship at University of Texas Southwestern Medical School and Parkland

> Memorial Hospital. He has been on the faculty at Southwestern Medical

> School since 1987, where he is a clinical professor of internal medicine.

> He is the director of clinical rheumatology for the Baylor Research

> Institute and a professor of medicine and rheumatology at Baylor University

> Medical Center in Dallas, Texas.

> Dr. Cush is devoted to patient care, medical education and novel drug

> research for the rheumatic diseases. He has been published in more than 100

> medical and scientific publications and has written two textbooks on

> rheumatology: Rheumatology: Diagnosis and Therapeutics (2nd edition,

> Lippincott, & Wilkins, 2005), and Rheumatoid Arthritis: Early

> Diagnosis and Treatment (2nd edition, Professional Communications, 2008).

> Dr Cush is the recipient of numerous awards and distinctions, including

> the B. Hingson Humanitarian Award (1988), Intern of the Year (1985),

> Teacher of the Year (1999), Best Doctors in America (1996, 1998, 2001-2002)

> and Best Doctors in Dallas (1998-2007). He has held numerous leadership

> positions for the National Arthritis Foundation and the American College of

> Rheumatology and has served on the Arthritis Advisory Committee for the

> Food and Drug Administration.

> ADDED EVENT DURING CONFERENCE

> We were waiting until arrangements had been made to let you know about

> this exciting event that will be taking place at the conference this year.

> Dr. Cush has worked with a medical reporter named Hammarley who has

> produced videos for his practice website and social media. Because of the

> generosity of a few people and Mr. Hammarley, he has offered to use his

> video production company to make 2 or 3 short videos (3-5 min) about

> Still’s disease, 1) what it is; 2) the difficulty in getting diagnosed & 3)

> advances in treatment. It is planned for this to be done from chosen

> patients in attendance at the conference. These would be used to promote

> the web sites and give disease information through the social media

> (Facebook, Twitter, You Tube, Medical Publications) as well as raising

> public awareness for research, etc. Dr. Cush is also working on another

> project to present at the conference. We will inform you if it works out in

> time.

> Reservation Details

> Orleans Hotel & Casino

> 4500 W. Tropicana Ave. Las Vegas, Nevada

> ROOM RATES:

>

> The hotel has extended us FIVE rooms for Saturday, September 1st check in

> at a discounted rate of $ 99.00 and must be booked through the booking

> number listed below. The rate for Sunday night, September 2nd, is offered

> at $ 39.00 and Monday, September 3rd through Wednesday night, September 5th

> will be offered at $ 29.00 per night. ALL with a minimum TWO night stay.

>

> Please be advised that all rates quoted are net, per room, per night,

> allowing for single or double occupancy. Any Deluxe rooms requiring triple

> or quad occupancy will be surcharged an additional $ 15.00 per guest, per

> room, per night. (Children age fourteen and under, in the same room with

> parents in existing bedding, are free.) All rates are subject to a

> County room tax, currently twelve-percent (12%). This tax is subject to

> increase without prior notice. Reservations for dates other than those

> specified above will be accepted on a space available basis as to

> accommodations and room rates.

>

> RESORT FEE:

>

> There is a mandatory Resort Fee, currently $ 6.00 per room, per day,

> allowing access to the Fitness Center, in-room coffee, unlimited local &

> 800 calls as well as free Wi-Fi in Java Vegas Coffee Shop & High-Speed

> Internet Access in our Business Center. The Resort Fee is subject to

> increase without prior notice.

>

> CHECK-IN/CHECK-OUT:

>

> Check-in for individual arrivals begins at 3:00 p.m. Check-out time is at

> 12:00 noon. Hotel agrees to make rooms available prior to the stated

> check-in time and to extend late check-out to guests on a preferential

> basis, if available.

>

> GENERAL HOTEL POLICIES:

>

> Guestrooms must be occupied and registered to at least one adult, who is

> twenty-one years of age or older. PHOTO IDENTIFICATION WILL BE REQUIRED

> UPON CHECK-IN. Hotel reserves the right to refuse or terminate service to

> any individual(s) when not in compliance with this policy.

>

> Upon arrival, all guests will be required to post a $ 100.00 security

> deposit via a credit card to secure their individual room accounts.

>

> The number of Non Smoking rooms at the Hotel are limited. As such,

> although Hotel will make every attempt to accommodate requests for such

> rooms, Hotel cannot guarantee availability.

>

> RESERVATION PROCEEDURES:

>

> Prior to cut-off date, individuals are encouraged to book their

> reservations on-line. To receive your special group rate members will need

> to enter the assigned Reservation ID: A2STC09 through the Hotel’s website

> at www.orleanscasino.com/groups .

>

> Prior to cut-off date, individuals may also call Hotel’s Room Reservations

> Department direct at and identify themselves as members of

> the International Still’s Conference. Without the group name you will not

> receive the special rate as noted above and may be advised that the Hotel

> is sold out. Operating on Pacific Time, hours of operations are Monday

> through Friday from 6:00 am to 11:00 pm; Saturday and Sunday 7:00 am to

> 11:00 pm.

>

> The equivalent of one (1) night’s room and tax will be required in either

> the form of a credit card with the expiration date, company/personal check,

> American Express; Diners Club; MasterCard; Discover; VISA; JCB or Cashier’s

> Check. Hotel accepts company/personal checks for payment of deposits only

> and must be received a minimum of thirty (30) days prior to arrival date.

> CREDIT CARDS WILL BE CHARGED IMMEDIATELY BY HOTEL TO SECURE THE FIRST NIGHT

> DEPOSIT.

>

> CUT-OFF DATE: HAS BEEN EXTENDED

>

> The cut-off date has been extended for room reservations and will be

> 08/17/12 . The Hotel will make every attempt to accommodate last minute or

> late reservations at the prevailing rate on a space availability basis.

>

> CANCELLATION POLICY:

>

> Hotel policy for cancellation of an individual guaranteed reservation is

> at least seventy-two (72) hours prior to scheduled arrival date and must be

> received in writing. Rooms released less than seventy-two hours prior to

> arrival date and all no-shows will be subject to a cancellation penalty

> equivalent to the first night’s room and tax.

>

> ACCOMMODATION OF DISABLED PERSONS:

>

> The Hotel shall take all reasonably necessary steps to ensure the

> accessibility of its facilities to the disabled attendees and to

> accommodate their special needs. Please advise Hotel prior to arrival, of

> the anticipated needs for such accommodations. A limited number of

> refrigerators are available upon request and it is suggested attendees

> bring coolers if convenient for medications. The Hotel does have scooter

> rentals available.

>

> EVENTS SCHEDULE

> 1.. Sunday Evening Meet & Greet – 7:00 to 8:30 pm Upstairs in Conference

> area lounge. Elevator is available.

>

> 2.. Monday is Conference Day – Check in at front table. Offered will be

> Pastries, Coffee, Tea and Juices 9:00 to 10:00 am in Salon I upstairs.

> ($20. per person donation requested at the door)

>

> 3.. Opening welcome by Treasurer/ Bob Himes 10:00 to 11:00 am

>

> 4.. Speaker Dr. J. J. Cush

>

> 11:00 pm What is Still’s disease and how is it diagnosed (the history of

> the disorder, key critical features, how to assure the diagnosis)

>

> WITH BREAK

>

> 12:00 pm Treatment of SoJIA, AOSD (treatment of systemic disease vs.

> chronic arthritis, how to find the right MD to treat AOSD)

>

> Lunch 1:00 pm – 2:00 pm

>

> Gift drawing fundraiser 2:00 pm (A gift donation is appreciated) Tickets $

> 1.00 ea.

>

> Afternoon session to close by 4:30/5:00 pm

>

> Some times during the conference may vary throughout the day as there will

> be extra activities. Please tell me that day or before by email if I can

> accommodate any special needs. Thank you.

> Optional DINNER 7:00 pm A restaurant will be chosen by the afternoon of

> the conference, if not before. Some do not take advance reservations.

>

> Individual dinner tickets. Dress: Evening wear as comfortable.

>

> Many guests stay over for additional days and take advantage of the Hotel

> amenities and or activities around town. You may request the Hotel to send

> you a brochure of what they have available when you make your reservations.

>

> Should you have any questions, please feel free to email at

> windsinging@... and I will do all I can to assist you. If you,

> your friends and/or family are able to attend, please send me an email so

> that we may plan the expected attendance for food conference morning.

>

> Thank you. We look forward to seeing you there and sharing some memorable

> experiences.

>

> The International Still’s Disease Foundation Inc.

>

>

[Guest guest]

, can I ask a favor? When you're at the conference can you ask Dr.

Cush what some of the known triggers of Stills are?? I figure if anyone

knows he will. I'm also typing up a letter asking the same questions to my

Rd (Dr. Kantor)(FANTASTIC RD!) as if there is any chance in hell of

me getting a military disability I'll be so much better off!

Kirk/

> **

>

>

> Hello all,

> Here is the conference information again ;0) I know it is fast approaching

> but the hotel has reassured me that they will most likely have rooms

> available at the quoted rates even after the extended cut off date IF you

> give the reservations desk the Still’s Conference ID # that is in the email

> below. Come if you can but if not able we will miss you and hope to be able

> to bring back information!

> J. Cush, MD Professor of Medicine and

> Rheumatology Baylor University Medical Center

> J. Cush, MD, received his undergraduate degree from St. s

> University and his medical degree from St. s University School of

> Medicine. After completing an internal medicine residency at Coney Island

> Hospital in New York City, Dr. Cush finished his rheumatology training and

> fellowship at University of Texas Southwestern Medical School and Parkland

> Memorial Hospital. He has been on the faculty at Southwestern Medical

> School since 1987, where he is a clinical professor of internal medicine.

> He is the director of clinical rheumatology for the Baylor Research

> Institute and a professor of medicine and rheumatology at Baylor University

> Medical Center in Dallas, Texas.

> Dr. Cush is devoted to patient care, medical education and novel drug

> research for the rheumatic diseases. He has been published in more than 100

> medical and scientific publications and has written two textbooks on

> rheumatology: Rheumatology: Diagnosis and Therapeutics (2nd edition,

> Lippincott, & Wilkins, 2005), and Rheumatoid Arthritis: Early

> Diagnosis and Treatment (2nd edition, Professional Communications, 2008).

> Dr Cush is the recipient of numerous awards and distinctions, including

> the B. Hingson Humanitarian Award (1988), Intern of the Year (1985),

> Teacher of the Year (1999), Best Doctors in America (1996, 1998, 2001-2002)

> and Best Doctors in Dallas (1998-2007). He has held numerous leadership

> positions for the National Arthritis Foundation and the American College of

> Rheumatology and has served on the Arthritis Advisory Committee for the

> Food and Drug Administration.

> ADDED EVENT DURING CONFERENCE

> We were waiting until arrangements had been made to let you know about

> this exciting event that will be taking place at the conference this year.

> Dr. Cush has worked with a medical reporter named Hammarley who has

> produced videos for his practice website and social media. Because of the

> generosity of a few people and Mr. Hammarley, he has offered to use his

> video production company to make 2 or 3 short videos (3-5 min) about

> Still’s disease, 1) what it is; 2) the difficulty in getting diagnosed & 3)

> advances in treatment. It is planned for this to be done from chosen

> patients in attendance at the conference. These would be used to promote

> the web sites and give disease information through the social media

> (Facebook, Twitter, You Tube, Medical Publications) as well as raising

> public awareness for research, etc. Dr. Cush is also working on another

> project to present at the conference. We will inform you if it works out in

> time.

> Reservation Details

> Orleans Hotel & Casino

> 4500 W. Tropicana Ave. Las Vegas, Nevada

> ROOM RATES:

>

> The hotel has extended us FIVE rooms for Saturday, September 1st check in

> at a discounted rate of $ 99.00 and must be booked through the booking

> number listed below. The rate for Sunday night, September 2nd, is offered

> at $ 39.00 and Monday, September 3rd through Wednesday night, September 5th

> will be offered at $ 29.00 per night. ALL with a minimum TWO night stay.

>

> Please be advised that all rates quoted are net, per room, per night,

> allowing for single or double occupancy. Any Deluxe rooms requiring triple

> or quad occupancy will be surcharged an additional $ 15.00 per guest, per

> room, per night. (Children age fourteen and under, in the same room with

> parents in existing bedding, are free.) All rates are subject to a

> County room tax, currently twelve-percent (12%). This tax is subject to

> increase without prior notice. Reservations for dates other than those

> specified above will be accepted on a space available basis as to

> accommodations and room rates.

>

> RESORT FEE:

>

> There is a mandatory Resort Fee, currently $ 6.00 per room, per day,

> allowing access to the Fitness Center, in-room coffee, unlimited local &

> 800 calls as well as free Wi-Fi in Java Vegas Coffee Shop & High-Speed

> Internet Access in our Business Center. The Resort Fee is subject to

> increase without prior notice.

>

> CHECK-IN/CHECK-OUT:

>

> Check-in for individual arrivals begins at 3:00 p.m. Check-out time is at

> 12:00 noon. Hotel agrees to make rooms available prior to the stated

> check-in time and to extend late check-out to guests on a preferential

> basis, if available.

>

> GENERAL HOTEL POLICIES:

>

> Guestrooms must be occupied and registered to at least one adult, who is

> twenty-one years of age or older. PHOTO IDENTIFICATION WILL BE REQUIRED

> UPON CHECK-IN. Hotel reserves the right to refuse or terminate service to

> any individual(s) when not in compliance with this policy.

>

> Upon arrival, all guests will be required to post a $ 100.00 security

> deposit via a credit card to secure their individual room accounts.

>

> The number of Non Smoking rooms at the Hotel are limited. As such,

> although Hotel will make every attempt to accommodate requests for such

> rooms, Hotel cannot guarantee availability.

>

> RESERVATION PROCEEDURES:

>

> Prior to cut-off date, individuals are encouraged to book their

> reservations on-line. To receive your special group rate members will need

> to enter the assigned Reservation ID: A2STC09 through the Hotel’s website

> at www.orleanscasino.com/groups .

>

> Prior to cut-off date, individuals may also call Hotel’s Room Reservations

> Department direct at and identify themselves as members of

> the International Still’s Conference. Without the group name you will not

> receive the special rate as noted above and may be advised that the Hotel

> is sold out. Operating on Pacific Time, hours of operations are Monday

> through Friday from 6:00 am to 11:00 pm; Saturday and Sunday 7:00 am to

> 11:00 pm.

>

> The equivalent of one (1) night’s room and tax will be required in either

> the form of a credit card with the expiration date, company/personal check,

> American Express; Diners Club; MasterCard; Discover; VISA; JCB or Cashier’s

> Check. Hotel accepts company/personal checks for payment of deposits only

> and must be received a minimum of thirty (30) days prior to arrival date.

> CREDIT CARDS WILL BE CHARGED IMMEDIATELY BY HOTEL TO SECURE THE FIRST NIGHT

> DEPOSIT.

>

> CUT-OFF DATE: HAS BEEN EXTENDED

>

> The cut-off date has been extended for room reservations and will be

> 08/17/12 . The Hotel will make every attempt to accommodate last minute or

> late reservations at the prevailing rate on a space availability basis.

>

> CANCELLATION POLICY:

>

> Hotel policy for cancellation of an individual guaranteed reservation is

> at least seventy-two (72) hours prior to scheduled arrival date and must be

> received in writing. Rooms released less than seventy-two hours prior to

> arrival date and all no-shows will be subject to a cancellation penalty

> equivalent to the first night’s room and tax.

>

> ACCOMMODATION OF DISABLED PERSONS:

>

> The Hotel shall take all reasonably necessary steps to ensure the

> accessibility of its facilities to the disabled attendees and to

> accommodate their special needs. Please advise Hotel prior to arrival, of

> the anticipated needs for such accommodations. A limited number of

> refrigerators are available upon request and it is suggested attendees

> bring coolers if convenient for medications. The Hotel does have scooter

> rentals available.

>

> EVENTS SCHEDULE

> 1.. Sunday Evening Meet & Greet – 7:00 to 8:30 pm Upstairs in Conference

> area lounge. Elevator is available.

>

> 2.. Monday is Conference Day – Check in at front table. Offered will be

> Pastries, Coffee, Tea and Juices 9:00 to 10:00 am in Salon I upstairs.

> ($20. per person donation requested at the door)

>

> 3.. Opening welcome by Treasurer/ Bob Himes 10:00 to 11:00 am

>

> 4.. Speaker Dr. J. J. Cush

>

> 11:00 pm What is Still’s disease and how is it diagnosed (the history of

> the disorder, key critical features, how to assure the diagnosis)

>

> WITH BREAK

>

> 12:00 pm Treatment of SoJIA, AOSD (treatment of systemic disease vs.

> chronic arthritis, how to find the right MD to treat AOSD)

>

> Lunch 1:00 pm – 2:00 pm

>

> Gift drawing fundraiser 2:00 pm (A gift donation is appreciated) Tickets $

> 1.00 ea.

>

> Afternoon session to close by 4:30/5:00 pm

>

> Some times during the conference may vary throughout the day as there will

> be extra activities. Please tell me that day or before by email if I can

> accommodate any special needs. Thank you.

> Optional DINNER 7:00 pm A restaurant will be chosen by the afternoon of

> the conference, if not before. Some do not take advance reservations.

>

> Individual dinner tickets. Dress: Evening wear as comfortable.

>

> Many guests stay over for additional days and take advantage of the Hotel

> amenities and or activities around town. You may request the Hotel to send

> you a brochure of what they have available when you make your reservations.

>

> Should you have any questions, please feel free to email at

> windsinging@... and I will do all I can to assist you. If you,

> your friends and/or family are able to attend, please send me an email so

> that we may plan the expected attendance for food conference morning.

>

> Thank you. We look forward to seeing you there and sharing some memorable

> experiences.

>

> The International Still’s Disease Foundation Inc.

>

>

[Guest guest]

Kirk, I will print out several of the questions for him that members ask and see

what he has time for. I know he has stated he will have a few minutes for

questions/answers after each presentation but it will be short and I’m sure

those attending will have questions too. Although time will be short, he does

seem the sort of man that would answer later if there isn’t the time that day.

I also thought of this when the discussion about the meningitis onsets came up

this past week. I will do everything I can to bring back whatever he will offer

us. He has been so kind thus far.

From: Kirk Bonanny

Subject: Re: Conference Information

, can I ask a favor? When you're at the conference can you ask Dr.

Cush what some of the known triggers of Stills are?? I figure if anyone

knows he will.y chance in hell of

me getting a military disability I'll be so much better off!

Kirk/

[Guest guest]

Thanks again...This is one fight I have no intentions of giving up on!

Although there is no way for me to be 100% sure the

immunizations/vaccinations and almost immediate hospitalization was the

initial cause of Stills for me, it seems far to coincidental to me. Add to

that the way I've been getting kicked around like a football no one wanted

for close to 10 years and they have a very determined adversary to deal

with!

Since I was 12, I've never lost a fight, and I have no intention of

starting now,especially after how the local V.A. rep treated me.....I

actually had him by the throat due to his arrogance towards me.....luckily

for him I was using a walker and couldn't do much else!

Kirk.

> **

>

>

> Kirk, I will print out several of the questions for him that members ask

> and see what he has time for. I know he has stated he will have a few

> minutes for questions/answers after each presentation but it will be short

> and I’m sure those attending will have questions too. Although time will be

> short, he does seem the sort of man that would answer later if there isn’t

> the time that day. I also thought of this when the discussion about the

> meningitis onsets came up this past week. I will do everything I can to

> bring back whatever he will offer us. He has been so kind thus far.

>

> From: Kirk Bonanny

> Subject: Re: Conference Information

> , can I ask a favor? When you're at the conference can you ask Dr.

> Cush what some of the known triggers of Stills are?? I figure if anyone

> knows he will.y chance in hell of

> me getting a military disability I'll be so much better off!

> Kirk/

>

>