Guest guest Posted December 12, 1999 Report Share Posted December 12, 1999 Debbie, I definitely experience the sharp stabbing pain. It's not often, but as you say, it takes my breath away. I would be interested to know what you experience as a cholangitis attack and how it differs. Dan " j & d lynch " wrote: original article:/group//?start=7132 > I have been experience sharp, stabbing pain in the URQ area for the past several days, 2 or 3 times a day. The pain is nothing like the pain I get with a cholangitis attack but is definitely in the liver. The stabbing pain lasts only a few seconds but is enough to take my breath away. Has anyone else had any experience with this type of pain? I have been on antibiotics for the last 30 days for a " low-grade " cholangitis episode that just won't quit. > > Debbie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 1999 Report Share Posted December 12, 1999 Debbie, I definitely experience the sharp stabbing pain. It's not often, but as you say, it takes my breath away. I would be interested to know what you experience as a cholangitis attack and how it differs. Dan " j & d lynch " wrote: original article:/group//?start=7132 > I have been experience sharp, stabbing pain in the URQ area for the past several days, 2 or 3 times a day. The pain is nothing like the pain I get with a cholangitis attack but is definitely in the liver. The stabbing pain lasts only a few seconds but is enough to take my breath away. Has anyone else had any experience with this type of pain? I have been on antibiotics for the last 30 days for a " low-grade " cholangitis episode that just won't quit. > > Debbie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 1999 Report Share Posted December 12, 1999 Hello Debbie, I have experienced very sharp stabbing pains up my right side also. The stabbing can be quite extreme. What normally happens for me and I am only talking about me is that I have about 2 minutes Max to get to a clean toilet or else. Have you got bowel problems.I have IBD. I can not say exactly what organ the pain comes from, but I can be sure about the extreme stabbing, coming from an area from my waist upto and under my ribs on my right side. I do not know if this is any help to you . Up to now i do not know if i had a cholangitis attack. On 2 x 250 mg of ciproxin to cut down chances of infection. Regards . pain I have been experience sharp, stabbing pain in the URQ area for the past several days, 2 or 3 times a day. The pain is nothing like the pain I get with a cholangitis attack but is definitely in the liver. The stabbing pain lasts only a few seconds but is enough to take my breath away. Has anyone else had any experience with this type of pain? I have been on antibiotics for the last 30 days for a "low-grade" cholangitis episode that just won't quit. Debbie Design your own gift.Here eGroups.com Home: /group/www. - Simplifying group communications Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 1999 Report Share Posted December 12, 1999 Hi Debbie, I experienced similar pains and more prolonged ones that only responded to taking codeine and lying quietly in bed for a few hours or so. My Hepatologist figured these were due to slug acutely blocking one of my bile ducts and then freeing up as the bile slug moved through the blocked area. I went to the ER a couple of times when the pains persisted and liver enzyme tests were done. Both times the pains went away while I was in the ER so no further tests were done. Perhaps an MRI might have shown the blockage or an ERCP. Luckily they weren't necessary. Aubrey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 1999 Report Share Posted December 12, 1999 Debbie, I to have had the same pain. Although I have only had it a couple of times but it does get your attention right away. Because of the UC, I have also had lower left pains in the area of the colon. I go for a Dr. appt. next Friday, it maybe be colonoscopy time again. Larry UC95/PSC96 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 1999 Report Share Posted December 12, 1999 Debbie, I to have had the same pain. Although I have only had it a couple of times but it does get your attention right away. Because of the UC, I have also had lower left pains in the area of the colon. I go for a Dr. appt. next Friday, it maybe be colonoscopy time again. Larry UC95/PSC96 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 1999 Report Share Posted December 15, 1999 My son Quantell had severe, episodic URQ pain for 2 years before the PSC diagnosis. He went through tons of diagnostics, and removal of his gallbladder, all to no avail. And even when the PSC diagnosis came, the doctors said ... you guessed it, the pain was not related. I independently found a pain clinic and told them I no longer cared what was causing the pain, I just wanted it stopped. They called the hepatologist in to consult, telling him his role was only to help them find a drug regimen that would not cause additional damage. Thanks to BID drugs, Q has been mostly pain free for nearly 3 years now. When he does have episodes of breakthrough pain, I have a PRN regimen to supplement. There are no obnoxious side effects (except for the logistics of dealing with triplicate prescriptions <g>). Pain control has made a HUGE difference in his life, in my life, in our relationship. (You parents know what it's like to say 'I know you hurt but I can't help.') I strongly urge anyone in pain to seek out a pain clinic. This is a recognized specialty -- you can search for it from several doctor/hospital locator Web sites. Anyone needing help, e-mail me privately with your geographic details. All the best, Pam (mom to Quantell, 9, dx 1996) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 1999 Report Share Posted December 15, 1999 My son Quantell had severe, episodic URQ pain for 2 years before the PSC diagnosis. He went through tons of diagnostics, and removal of his gallbladder, all to no avail. And even when the PSC diagnosis came, the doctors said ... you guessed it, the pain was not related. I independently found a pain clinic and told them I no longer cared what was causing the pain, I just wanted it stopped. They called the hepatologist in to consult, telling him his role was only to help them find a drug regimen that would not cause additional damage. Thanks to BID drugs, Q has been mostly pain free for nearly 3 years now. When he does have episodes of breakthrough pain, I have a PRN regimen to supplement. There are no obnoxious side effects (except for the logistics of dealing with triplicate prescriptions <g>). Pain control has made a HUGE difference in his life, in my life, in our relationship. (You parents know what it's like to say 'I know you hurt but I can't help.') I strongly urge anyone in pain to seek out a pain clinic. This is a recognized specialty -- you can search for it from several doctor/hospital locator Web sites. Anyone needing help, e-mail me privately with your geographic details. All the best, Pam (mom to Quantell, 9, dx 1996) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 1999 Report Share Posted December 16, 1999 Hi Debbie, I have experienced that same pain. It's terrible. I take percocet for the liver pain but I think I am starting to build up a resistance to it. I am going to ask my doctor if there is anything else I could try. > >Reply-To: egroups >To: <egroups> >Subject: pain >Date: Sun, 12 Dec 1999 08:41:26 -0500 > >I have been experience sharp, stabbing pain in the URQ area for the past >several days, 2 or 3 times a day. The pain is nothing like the pain I get >with a cholangitis attack but is definitely in the liver. The stabbing >pain lasts only a few seconds but is enough to take my breath away. Has >anyone else had any experience with this type of pain? I have been on >antibiotics for the last 30 days for a " low-grade " cholangitis episode that >just won't quit. > >Debbie > > >------------------------------------------------------------------------ >GET $100 IN COUPONS FOR TRYING GATOR! >Grab the Gator! Free software does all the typing for you! >Gator fills in forms and remembers passwords with NO TYPING at over >100,000 web sites! http://clickhere./click/2093 > >-- Easily schedule meetings and events using the group calendar! >-- /cal?listname= & m=1 > ______________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 1999 Report Share Posted December 16, 1999 Hi Debbie, I have experienced that same pain. It's terrible. I take percocet for the liver pain but I think I am starting to build up a resistance to it. I am going to ask my doctor if there is anything else I could try. > >Reply-To: egroups >To: <egroups> >Subject: pain >Date: Sun, 12 Dec 1999 08:41:26 -0500 > >I have been experience sharp, stabbing pain in the URQ area for the past >several days, 2 or 3 times a day. The pain is nothing like the pain I get >with a cholangitis attack but is definitely in the liver. The stabbing >pain lasts only a few seconds but is enough to take my breath away. Has >anyone else had any experience with this type of pain? I have been on >antibiotics for the last 30 days for a " low-grade " cholangitis episode that >just won't quit. > >Debbie > > >------------------------------------------------------------------------ >GET $100 IN COUPONS FOR TRYING GATOR! >Grab the Gator! Free software does all the typing for you! >Gator fills in forms and remembers passwords with NO TYPING at over >100,000 web sites! http://clickhere./click/2093 > >-- Easily schedule meetings and events using the group calendar! >-- /cal?listname= & m=1 > ______________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 1999 Report Share Posted December 16, 1999 Pam, Please let me know what pain regimen Quantell is on. I can't deal with the amount of pain I am in at times. I truly would appreciate your input. Thank you, dx97psc uc99 > >Reply-To: egroups >To: " psc " <egroups> >Subject: re: pain >Date: Wed, 15 Dec 1999 20:26:03 -0600 > >My son Quantell had severe, episodic URQ pain for 2 years before the PSC >diagnosis. He went through tons of diagnostics, and removal of his >gallbladder, all to no avail. And even when the PSC diagnosis came, the >doctors said ... you guessed it, the pain was not related. >I independently found a pain clinic and told them I no longer cared what >was >causing the pain, I just wanted it stopped. They called the hepatologist in >to consult, telling him his role was only to help them find a drug regimen >that would not cause additional damage. >Thanks to BID drugs, Q has been mostly pain free for nearly 3 years now. >When he does have episodes of breakthrough pain, I have a PRN regimen to >supplement. There are no obnoxious side effects (except for the logistics >of >dealing with triplicate prescriptions <g>). Pain control has made a HUGE >difference in his life, in my life, in our relationship. (You parents know >what it's like to say 'I know you hurt but I can't help.') >I strongly urge anyone in pain to seek out a pain clinic. This is a >recognized specialty -- you can search for it from several doctor/hospital >locator Web sites. Anyone needing help, e-mail me privately with your >geographic details. > >All the best, >Pam (mom to Quantell, 9, dx 1996) > > > > >------------------------------------------------------------------------ >The only fruitcake at overstock.com is our manager. >He’s giving away a $20 coupon, plus our everyday Free Shipping. >Take advantage of the savings and selection now. >http://clickhere./click/2134 > >-- Easily schedule meetings and events using the group calendar! >-- /cal?listname= & m=1 > > ______________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2012 Report Share Posted April 23, 2012 I have been in non-stop pain for the last few weeks. I take both oxycontin and celebrex. I am getting desperate. I've been taking Bayer Back and Body, Excedrin Back and Body (got a bottle before they took it off the market), I've tried pain relieving creams, roll-ons, patches. I haven't seen the rheumatologist since 2008. I've just been getting my meds through the family doctor. I go see the rheumatologist May 11. I was also thinking about going to a chiropractor or trying acupuncture. Any suggestions?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2012 Report Share Posted April 23, 2012 a, I hate to tell you this, but for me, the pain never stops. I can count on 1 hand the number of times I've been pain-free in the past 6 years...and it was euphoric. for some of us, that is Still's. Hopefully the RD will bring you relief. take care - shannon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2012 Report Share Posted April 23, 2012 Greetings a, Your rheumy appt is close so I would suggest holding of on a chiro and seeing what the rheumy says about the idea. I am a firm believer in chiropractors but also understand that once we hit a certain point in joint damage (and our backs are one huge set of joints) chiro adjustments can contribute to as many problems they help. Have you tried Absorbine Jr liniment? It is the only one I have found that does much good. I started using it years ago when I was working with horses and broke my back. Funny thing is, I don't use the 'Jr' (which is sold for humans along with things like Ben-Gay). I get mine at farm and fleet in the livestock department. LOL Blessings, Subject: Pain To: Stillsdisease Date: Monday, April 23, 2012, 4:21 PM Â I have been in non-stop pain for the last few weeks. I take both oxycontin and celebrex. I am getting desperate. I've been taking Bayer Back and Body, Excedrin Back and Body (got a bottle before they took it off the market), I've tried pain relieving creams, roll-ons, patches. I haven't seen the rheumatologist since 2008. I've just been getting my meds through the family doctor. I go see the rheumatologist May 11. I was also thinking about going to a chiropractor or trying acupuncture. Any suggestions?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2012 Report Share Posted April 23, 2012 Dear a, I have never gone to a chiropractor because my joints were very inflamed for years and later severely damaged. I was afraid to. Sometimes heat or ice help ease my pain along with my medications. I hope you have some relief soon, From: a I was also thinking about going to a chiropractor or trying acupuncture. Any suggestions?? Quote Link to comment Share on other sites More sharing options...
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