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I apologize for the duplicates - after the fact, I know what

happened.

A lot of good advice has been posted lately. I'm glad there is

so much knowledge in this group.

Do any of our Ohio members recall this event from last year?

--------------------------------------------------------------

THREE OHIO BASKETBALL COACHES SHOOT HOOPS FOR LIVER DISEASE

AWARENESS

Hal , Steve Loy and Bruce Brown have a lot in common.

They all live in Ohio, coach basketball and have (PSC) Primary

Sclerosing Cholangitis. The three coaches have turned the

coincidence of their common diagnosis into a three-man team for

liver disease and fund raising.

" The three of us have gotten more publicity than we really

deserve, but we can use it to draw attention to PSC and liver

disease in general-to raise funds for research and awareness. "

Hall of Malone College, added, " I'm on the waiting list

but the other two guys aren't. In my heart, my prayer is that

there'll be a cure before they're on the list too. "

The coaches have organized a basketball tournament for the

ALF (American Liver Foundation) Northern Ohio Chapter called

HOOPS FOR HEALING which Walsh University Coach, Steve Loy

describes as, " .......a smorgasbord of basketball action that

will delight any avid basketball fan. "

The tournament will be held December 3 through December 5,

1999 and features highly-ranked college teams (Walsh, Malone,

and Tri-State University) and hight school teams (Stowe,

Canton Central Catholic, Lake and ) from the

Ohio/Indiana area. The event will draw regional basketball fans

and both local and national media.

The coaches hope that HOOPS FOR HEALING will garner news

coverage that will increase awareness of liver disease and the

importance of organ donation. Information on liver disease will

be available at the tournament.

For information about HOOPS FOR HEALING call Kathleen

at .

__________________________________________________

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> Do any of our Ohio members recall this event from last year?

>

> THREE OHIO BASKETBALL COACHES SHOOT HOOPS FOR LIVER DISEASE

> AWARENESS

>

Tim, the following article ran a year ago last spring (I grew up in

the same area of Ohio):

By Rick sey

Chicago Tribune Staff Writer

April 25, 1999

CANTON, Ohio --

The odds say no way.

No way can three men who live within a 7-mile radius have

the same rare disease. No way

can three men, all successful basketball coaches, have their livers

betray them like this. And no way

can it be the same liver disease that Walter Payton has. The same

Walter Payton who is a member

of the Pro Football Hall of Fame, which happens to be located in the

same 7-mile radius. But there

it is, the odds be damned.

And what are the odds that a former basketball coach 30 miles

away from Canton would

have the same liver disease? A million to one? Two million to

one? What is it they say, that you

have a better chance of getting struck by lightning or being

attacked by a shark? Well, this is like

a shark getting struck by lightning.

Hal is sitting in his office at Malone College in

Canton, and he is scratching his arms.

His sleeves are rolled up, and the scabs on his forearms look like

an archipelago on a map. He

works his way up to his biceps, and as he talks it's clear he is not

aware of what his fingers are doing.

Itching is one of the symptoms of primary sclerosing cholangitis--

hence the scabs--as are jaundice,

extreme fatigue, nausea and weight loss.

The disease has progressed more in than it has in Walsh

University's Steve Loy and

Lake High School's Bruce Brown, who work in the Canton area.

is on a waiting list for a liver

transplant, as is Payton, the former Bears running back. The other

two are showing no symptoms.

They are linked together, and to Payton, by clogged bile ducts.

PSC is a disease in which the ducts

are narrowed from scarring and inflammation. If bile pools, it can

result in damage to liver cells

and, ultimately, liver failure. There is no known cause or cure for

the disease, which is more

common in men.

When Payton shocked Chicago on Feb. 2 with the news of his

diagnosis, nodded. He

saw himself in Payton's sunken cheeks, in the way Payton's

fingernails and eyes had turned the color

of a newspaper left too long in the sun. has been waiting 21

months for a transplant. " I could

really empathize with him, " he said. " I knew exactly what he was

going through, what his thought

process was: I'm in a situation where I'm going to take someone

else's body part and put it in my

body so that I can live. It's just an awesome thought.

" It's all very humbling. Bruce said it in an interview: `You

come face to face for the first time

with your own mortality.' We all know we're going to die someday.

We're all relatively young men,

and we're all physically involved. All of a sudden, it's like I'm

losing weight and getting weak and

it's, `You might die.' That kind of stops you. "

They haven't met Payton, who entered the Hall of Fame in

1993, but they feel a bond. Only

three in every 100,000 people get PSC, according to the American

Liver Foundation. The coaches

have received phone calls and letters from people with theories as

to why there is a cluster of men

in the same profession with the disease. One doctor in the West

Indies wrote to Brown telling him

that the material in whistles was the culprit and to stop using them

during practice. Others have

questioned whether Canton's air or water quality could have played a

role, but there is no known link

between the disease and environmental factors. The coaches all have

lived in Canton for extended

periods, but only Loy grew up in the area.

Loy believes all of it happens to be bizarre circumstance, as

do the others, but he has

wondered whether the stresses of coaching might be part of the

equation. " There have probably

been times in our lives that we've been run down physically, " he

said. " During the basketball season,

it just goes on and on and on. That could be the common link. Then

again, what's the difference

between that and a football coach or any kind of coach? "

" It creates an interesting question, " said Brems, a

liver specialist at Loyola University

Medical Center. " I suppose you have to wonder if it is just a strange

coincidence. But it would be

an interesting thing to study: Is there maybe some association

between stress and diseases like this?

Nobody's been able to prove it, but stress definitely affects your

immune system. " What I find

interesting is that these people are in stressful jobs. Walter

Payton's a very competitive athlete, and

I'm sure he had some stress in his job. "

Chuck knows the feeling. He is the athletic director

at Wooster High School, about

30 miles west of Canton, and like , he has PSC and is on the

waiting list for a liver transplant.

He believes there has to be some common thread that ties him with

the Canton-area coaches. " The

doctors swear up and down that there's no connection, but in my mind

there has to be something, "

said. " It's just too coincidental. But no one can put their

finger on why. " , 47, was

a college and high school coach for 13 years until the pain from

ulcerative colitis made him quit in

1985. Doctors believe there is a link between long-term ulcerative

colitis and PSC, but

wasn't diagnosed with the liver disease until 15 months ago. Stress

was part of 's life when

he coached. " It's almost the fear-of-failure type of thing that

really eats at you, " said. " That

was one of the big reasons I got out, because it was affecting my

health. "

The Canton-area coaches are men who know success. , 54,

has a 514-329 record as

a college coach. Loy, 47, took Walsh to the NAIA Final Four in 1996.

Brown, 48, has made a career

out of rebuilding high school programs in Ohio. has had the

disease for about 10 years, and

for much of that time he felt like an island. But that changed two

years ago, just before he went on

the waiting list for a liver transplant. In the spring of 1997, Brown

was diagnosed with PSC after

doctors had noticed irregularities in his liver enzyme count several

years before. For a while he

thought he was an island, too, but in July 1997, he read in the local

newspaper that was

waiting for a liver transplant.

Brown was surprised to learn that somebody else in the Canton

area had his extremely rare

liver disease, and that the someone else was a basketball coach too.

Strange, Brown thought. In

October 1997, Loy couldn't shake a flu, and his wife thought his

skin looked yellow. After tests for

hepatitis and liver cancer, Loy learned he had an obscure liver

disease called primary sclerosing

cholangitis. Loy knew that Hal , his good friend and conference

rival, had the same obscure

liver disease. Strange, Loy thought.

When first heard of Loy's illness, he thought someone

had made a mistake. " My wife

went to a church service one night, " said. " During a prayer

request, a woman had mentioned

that the basketball coach at Walsh University had a liver problem,

and that he needed prayers. My

wife's thought was, `Well, they mixed up the schools again.' This

happens all the time because the

schools are close to each other. But they hadn't. " and Loy

finally connected a few days later.

Loy was in for another shock. " Hal said, `Well, you know Bruce

Brown, right?' " Loy said. " I said,

`Yeah, I've known him for 20 years.' He said, `Well, he's got the

same disease.' " You could have

shoveled Loy's jaw from the floor. Three of us? Afterward, when they

all had talked and realized

there were few clues and fewer answers, they decided the best thing

they could do for one another

was simply offer support.

, who is much farther along a bumpy road, needs the

most support. Brown and 's

disease, he said, is like a mole on their backs. They really

wouldn't know they had it unless someone

pointed it out. has to battle his disease and his frustrations

head-on everyday. " Hal knows if

he has a problem he needs to talk over, he's got two guys who are

also basketball coaches, " Loy said.

" He can talk X's and O's. Or he can also talk about the liver

disease. We spend more time giving each

other positive feedback, rather than the what-if or the negative.

That's probably a coaching

philosophy. " Even when they squint, Loy and Brown don't yet

recognize themselves in and

Payton. They feel fine. They take medication that helps slow the

progress of the disease. " I feel a

little awkward because I've been linked with this thing, and people

expect you to be in poor health, "

Brown said. " It's PSC, and no one knows what causes it. You've got

Walter Payton and the liver

transplants. People assume it's a horrible thing. People expect me to

be hunched over. " On the other

hand, there is still no indicator as to how long I've had this and

how quickly it could turn. If there's

a scary part for me, it's that aspect of it. "

When Payton threw out the first ball in the Cubs' home opener

April 12 and then canceled

an appearance the next day because of fatigue, understood. He

has had to make concessions

to the disease as a coach. He needs a nap each afternoon, and if not

for his wife waking him, he

doesn't know how long he'd sleep. He sleeps on bus rides to games. At

times, he has locked himself

in his office and slept on the floor. " You just can't keep your head

up sometimes, " he said. " Talk

about a complete lack of strength. " The basic rule for receiving a

transplant in the United States is

fairly straightforward but sometimes agonizingly contradictory: The

sickest go to the front of the

line. But doctors have told he needs to be as healthy as

possible to survive the procedure. The

sicker he gets, the faster he gets a transplant. The sicker he gets,

the weaker his body becomes. In

the meantime, he waits, just as Payton does.

" Maybe all coaches are like this. We do so much that we

control, " said. " I make

decisions all the time. I'm the athletic director too. We have 18

sports. In basketball I make decisions

on everything. What we wear, where we go, when we leave, when we

come back, what we eat.

" Now I'm totally helpless. I'm totally, totally, totally helpless.

I'm dependent totally on God. The

Lord's got the timetable on it, and there's nothing I can do but

wait and wait patiently. . . . And that's

almost impossible. "

He wears a beeper on his belt, and so far it has gone off six

times. All were inadvertent

whistles. But someday, might have to call the most important

timeout of his life, walk out of

a gym and head for the Cleveland Clinic for a liver transplant. That

will be independence day,

said, the moment he'll finally get his life back. The chances

of his body accepting a new liver

are 88 percent, according to the American Liver Foundation. Until

then, he'll live the life he has

been given. He'll coach. He'll sleep more than he wants. He'll

commiserate with his friends.

One day last year, , the Wooster athletic director, was

attending the boys state

basketball tournament in St. 's Arena at Ohio State. There were

13,000 people in the stands.

" Here comes a guy walking up the steps, and he's jaundiced, "

said. " He's got the look of a

college basketball coach who's there to watch the game. At halftime I

went up and introduced myself,

and sure enough, it was Hal . I had never met him before. We

spent the next 30 minutes

talking about our livers as we watched the game. "

Brown and Loy hope there's enough progress in PSC research

that they won't need a

transplant. The research has not been especially deep yet, though

that likely will change, perhaps

with the help of the coaches. " Nobody's really looked (for a link), "

said Vierling, a doctor who

is chairman of the board of the American Liver Foundation. " Is it

there? Is it not? I don't know. It's

really unusual when you see in a small area four men in the prime of

their life with the disease. It's

intriguing. "

wants a new liver soon, and he figures Payton is having

the same thoughts. Payton has

been inundated by. I would just love to talk with him. "

In the meantime, the Canton-area coaches are trying to help

educate the public. In the fall,

they and a high school get-well missives, so he probably didn't

notice a fax from . It said, in

effect, If you need to talk with someone who understands, call me.

" I realize that someone will die

in order for me to live, " said. " I just can't help but imagine

that Walter Payton is going

through that same thought process coach from , Ind.--who had

PSC and received a new

liver--will put on a charity tournament to help raise money and

awareness for organ donor programs.

Now they're almost beyond asking why. They're beyond asking why three

basketball coaches from

the same area, and a former coach nearby, have the same disease. " I

honestly believe there's a

reason that all this happened, " Brown said. " Hal, Steve and I are

supposed to be doing this,

spreading the word--along with coaching and trying to win as many

games as possible. "

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> Do any of our Ohio members recall this event from last year?

>

> THREE OHIO BASKETBALL COACHES SHOOT HOOPS FOR LIVER DISEASE

> AWARENESS

>

Tim, the following article ran a year ago last spring (I grew up in

the same area of Ohio):

By Rick sey

Chicago Tribune Staff Writer

April 25, 1999

CANTON, Ohio --

The odds say no way.

No way can three men who live within a 7-mile radius have

the same rare disease. No way

can three men, all successful basketball coaches, have their livers

betray them like this. And no way

can it be the same liver disease that Walter Payton has. The same

Walter Payton who is a member

of the Pro Football Hall of Fame, which happens to be located in the

same 7-mile radius. But there

it is, the odds be damned.

And what are the odds that a former basketball coach 30 miles

away from Canton would

have the same liver disease? A million to one? Two million to

one? What is it they say, that you

have a better chance of getting struck by lightning or being

attacked by a shark? Well, this is like

a shark getting struck by lightning.

Hal is sitting in his office at Malone College in

Canton, and he is scratching his arms.

His sleeves are rolled up, and the scabs on his forearms look like

an archipelago on a map. He

works his way up to his biceps, and as he talks it's clear he is not

aware of what his fingers are doing.

Itching is one of the symptoms of primary sclerosing cholangitis--

hence the scabs--as are jaundice,

extreme fatigue, nausea and weight loss.

The disease has progressed more in than it has in Walsh

University's Steve Loy and

Lake High School's Bruce Brown, who work in the Canton area.

is on a waiting list for a liver

transplant, as is Payton, the former Bears running back. The other

two are showing no symptoms.

They are linked together, and to Payton, by clogged bile ducts.

PSC is a disease in which the ducts

are narrowed from scarring and inflammation. If bile pools, it can

result in damage to liver cells

and, ultimately, liver failure. There is no known cause or cure for

the disease, which is more

common in men.

When Payton shocked Chicago on Feb. 2 with the news of his

diagnosis, nodded. He

saw himself in Payton's sunken cheeks, in the way Payton's

fingernails and eyes had turned the color

of a newspaper left too long in the sun. has been waiting 21

months for a transplant. " I could

really empathize with him, " he said. " I knew exactly what he was

going through, what his thought

process was: I'm in a situation where I'm going to take someone

else's body part and put it in my

body so that I can live. It's just an awesome thought.

" It's all very humbling. Bruce said it in an interview: `You

come face to face for the first time

with your own mortality.' We all know we're going to die someday.

We're all relatively young men,

and we're all physically involved. All of a sudden, it's like I'm

losing weight and getting weak and

it's, `You might die.' That kind of stops you. "

They haven't met Payton, who entered the Hall of Fame in

1993, but they feel a bond. Only

three in every 100,000 people get PSC, according to the American

Liver Foundation. The coaches

have received phone calls and letters from people with theories as

to why there is a cluster of men

in the same profession with the disease. One doctor in the West

Indies wrote to Brown telling him

that the material in whistles was the culprit and to stop using them

during practice. Others have

questioned whether Canton's air or water quality could have played a

role, but there is no known link

between the disease and environmental factors. The coaches all have

lived in Canton for extended

periods, but only Loy grew up in the area.

Loy believes all of it happens to be bizarre circumstance, as

do the others, but he has

wondered whether the stresses of coaching might be part of the

equation. " There have probably

been times in our lives that we've been run down physically, " he

said. " During the basketball season,

it just goes on and on and on. That could be the common link. Then

again, what's the difference

between that and a football coach or any kind of coach? "

" It creates an interesting question, " said Brems, a

liver specialist at Loyola University

Medical Center. " I suppose you have to wonder if it is just a strange

coincidence. But it would be

an interesting thing to study: Is there maybe some association

between stress and diseases like this?

Nobody's been able to prove it, but stress definitely affects your

immune system. " What I find

interesting is that these people are in stressful jobs. Walter

Payton's a very competitive athlete, and

I'm sure he had some stress in his job. "

Chuck knows the feeling. He is the athletic director

at Wooster High School, about

30 miles west of Canton, and like , he has PSC and is on the

waiting list for a liver transplant.

He believes there has to be some common thread that ties him with

the Canton-area coaches. " The

doctors swear up and down that there's no connection, but in my mind

there has to be something, "

said. " It's just too coincidental. But no one can put their

finger on why. " , 47, was

a college and high school coach for 13 years until the pain from

ulcerative colitis made him quit in

1985. Doctors believe there is a link between long-term ulcerative

colitis and PSC, but

wasn't diagnosed with the liver disease until 15 months ago. Stress

was part of 's life when

he coached. " It's almost the fear-of-failure type of thing that

really eats at you, " said. " That

was one of the big reasons I got out, because it was affecting my

health. "

The Canton-area coaches are men who know success. , 54,

has a 514-329 record as

a college coach. Loy, 47, took Walsh to the NAIA Final Four in 1996.

Brown, 48, has made a career

out of rebuilding high school programs in Ohio. has had the

disease for about 10 years, and

for much of that time he felt like an island. But that changed two

years ago, just before he went on

the waiting list for a liver transplant. In the spring of 1997, Brown

was diagnosed with PSC after

doctors had noticed irregularities in his liver enzyme count several

years before. For a while he

thought he was an island, too, but in July 1997, he read in the local

newspaper that was

waiting for a liver transplant.

Brown was surprised to learn that somebody else in the Canton

area had his extremely rare

liver disease, and that the someone else was a basketball coach too.

Strange, Brown thought. In

October 1997, Loy couldn't shake a flu, and his wife thought his

skin looked yellow. After tests for

hepatitis and liver cancer, Loy learned he had an obscure liver

disease called primary sclerosing

cholangitis. Loy knew that Hal , his good friend and conference

rival, had the same obscure

liver disease. Strange, Loy thought.

When first heard of Loy's illness, he thought someone

had made a mistake. " My wife

went to a church service one night, " said. " During a prayer

request, a woman had mentioned

that the basketball coach at Walsh University had a liver problem,

and that he needed prayers. My

wife's thought was, `Well, they mixed up the schools again.' This

happens all the time because the

schools are close to each other. But they hadn't. " and Loy

finally connected a few days later.

Loy was in for another shock. " Hal said, `Well, you know Bruce

Brown, right?' " Loy said. " I said,

`Yeah, I've known him for 20 years.' He said, `Well, he's got the

same disease.' " You could have

shoveled Loy's jaw from the floor. Three of us? Afterward, when they

all had talked and realized

there were few clues and fewer answers, they decided the best thing

they could do for one another

was simply offer support.

, who is much farther along a bumpy road, needs the

most support. Brown and 's

disease, he said, is like a mole on their backs. They really

wouldn't know they had it unless someone

pointed it out. has to battle his disease and his frustrations

head-on everyday. " Hal knows if

he has a problem he needs to talk over, he's got two guys who are

also basketball coaches, " Loy said.

" He can talk X's and O's. Or he can also talk about the liver

disease. We spend more time giving each

other positive feedback, rather than the what-if or the negative.

That's probably a coaching

philosophy. " Even when they squint, Loy and Brown don't yet

recognize themselves in and

Payton. They feel fine. They take medication that helps slow the

progress of the disease. " I feel a

little awkward because I've been linked with this thing, and people

expect you to be in poor health, "

Brown said. " It's PSC, and no one knows what causes it. You've got

Walter Payton and the liver

transplants. People assume it's a horrible thing. People expect me to

be hunched over. " On the other

hand, there is still no indicator as to how long I've had this and

how quickly it could turn. If there's

a scary part for me, it's that aspect of it. "

When Payton threw out the first ball in the Cubs' home opener

April 12 and then canceled

an appearance the next day because of fatigue, understood. He

has had to make concessions

to the disease as a coach. He needs a nap each afternoon, and if not

for his wife waking him, he

doesn't know how long he'd sleep. He sleeps on bus rides to games. At

times, he has locked himself

in his office and slept on the floor. " You just can't keep your head

up sometimes, " he said. " Talk

about a complete lack of strength. " The basic rule for receiving a

transplant in the United States is

fairly straightforward but sometimes agonizingly contradictory: The

sickest go to the front of the

line. But doctors have told he needs to be as healthy as

possible to survive the procedure. The

sicker he gets, the faster he gets a transplant. The sicker he gets,

the weaker his body becomes. In

the meantime, he waits, just as Payton does.

" Maybe all coaches are like this. We do so much that we

control, " said. " I make

decisions all the time. I'm the athletic director too. We have 18

sports. In basketball I make decisions

on everything. What we wear, where we go, when we leave, when we

come back, what we eat.

" Now I'm totally helpless. I'm totally, totally, totally helpless.

I'm dependent totally on God. The

Lord's got the timetable on it, and there's nothing I can do but

wait and wait patiently. . . . And that's

almost impossible. "

He wears a beeper on his belt, and so far it has gone off six

times. All were inadvertent

whistles. But someday, might have to call the most important

timeout of his life, walk out of

a gym and head for the Cleveland Clinic for a liver transplant. That

will be independence day,

said, the moment he'll finally get his life back. The chances

of his body accepting a new liver

are 88 percent, according to the American Liver Foundation. Until

then, he'll live the life he has

been given. He'll coach. He'll sleep more than he wants. He'll

commiserate with his friends.

One day last year, , the Wooster athletic director, was

attending the boys state

basketball tournament in St. 's Arena at Ohio State. There were

13,000 people in the stands.

" Here comes a guy walking up the steps, and he's jaundiced, "

said. " He's got the look of a

college basketball coach who's there to watch the game. At halftime I

went up and introduced myself,

and sure enough, it was Hal . I had never met him before. We

spent the next 30 minutes

talking about our livers as we watched the game. "

Brown and Loy hope there's enough progress in PSC research

that they won't need a

transplant. The research has not been especially deep yet, though

that likely will change, perhaps

with the help of the coaches. " Nobody's really looked (for a link), "

said Vierling, a doctor who

is chairman of the board of the American Liver Foundation. " Is it

there? Is it not? I don't know. It's

really unusual when you see in a small area four men in the prime of

their life with the disease. It's

intriguing. "

wants a new liver soon, and he figures Payton is having

the same thoughts. Payton has

been inundated by. I would just love to talk with him. "

In the meantime, the Canton-area coaches are trying to help

educate the public. In the fall,

they and a high school get-well missives, so he probably didn't

notice a fax from . It said, in

effect, If you need to talk with someone who understands, call me.

" I realize that someone will die

in order for me to live, " said. " I just can't help but imagine

that Walter Payton is going

through that same thought process coach from , Ind.--who had

PSC and received a new

liver--will put on a charity tournament to help raise money and

awareness for organ donor programs.

Now they're almost beyond asking why. They're beyond asking why three

basketball coaches from

the same area, and a former coach nearby, have the same disease. " I

honestly believe there's a

reason that all this happened, " Brown said. " Hal, Steve and I are

supposed to be doing this,

spreading the word--along with coaching and trying to win as many

games as possible. "

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