introduction

[Guest guest]

Good Morning,

I am the mother of a son 31 years old that was diagnosed with Stills

in 1985 he was just 5 years old. I belive he was born with it. We

have been through a host of doctors and done lots of the treatments

now considered useless.

Loren(My son) and I just got back from Washington DC from the 2012

arthritis summit. We were there to ask congress to pass H.R. 4209 the

patients access to care bill. I hope we did some good. There were 350

people from all over the USA. I found out that 12 states in the USA

do not have a pediatric rheumatoligst Children travel for miles to

get the care they need this is unacceptable H.R 4209 would address

this issue also.

My son is now on a biologic drug called actimera and doing well. I

have been enjoying this list, thanks for the support.

Sally