Re: What is Misophonia classified as?

[Guest guest]

Dear wizkitty, I'm not sur if you received my email because it did nt list that

any responses had been made. 17 years ago I decided to take control of my

enviroment. All of my staff and regular customers are aware of my condition and

triggers. I had never heard of Misophonia until 3 weeks ago. I simply started to

explain to those who were constantly arounf me that certain sounds did not

meraly annoy me but caused me actual chest pain due to anxiety. I explained that

even I undersood how strange and quirky it sounds. I explain that I understand

that it is my problem. My staff and customers back me up. Often they would ask

the person to stop the sound before I had too. Almost everyone understands and

even apologises. It is better to calmly explain how it effects you than to

people believe that it is them that you dislike and avoid. This has really

changed my life. I can't do anything in say a grocertstore or any other public

place, but for the most part I can controll my work place (not always easy, I

manage a bar) and my friends and family. There is nothing to be embaressed

about. It is just like having a migraine and asking people to quit yelling or

doing other things to affect your triggers. Most people can be very

understanding. As for the rest. Kindly excuse yourself. Donielle

Sent from my Samsung Interceptâ„¢

[Guest guest]

Thank you for getting it and for posting this. I think there is a self-imposed

shame that most of us have in that we expect people to respond negatively if we

say that something they do bothers us.... we are afraid of offending them and

that they will think we think we are special and overly-sensitive and deserve

special treatment. You have the best attitude. This is how we are wired. We

should be able to tell people we care about and who care about us who we are and

how we respond to sounds instead of stuffing it and making it our singular

problem.

>

> Dear wizkitty, I'm not sur if you received my email because it did nt list

that any responses had been made. 17 years ago I decided to take control of my

enviroment. All of my staff and regular customers are aware of my condition and

triggers. I had never heard of Misophonia until 3 weeks ago. I simply started to

explain to those who were constantly arounf me that certain sounds did not

meraly annoy me but caused me actual chest pain due to anxiety. I explained that

even I undersood how strange and quirky it sounds. I explain that I understand

that it is my problem. My staff and customers back me up. Often they would ask

the person to stop the sound before I had too. Almost everyone understands and

even apologises. It is better to calmly explain how it effects you than to

people believe that it is them that you dislike and avoid. This has really

changed my life. I can't do anything in say a grocertstore or any other public

place, but for the most part I can controll my work place (not always easy, I

manage a bar) and my friends and family. There is nothing to be embaressed

about. It is just like having a migraine and asking people to quit yelling or

doing other things to affect your triggers. Most people can be very

understanding. As for the rest. Kindly excuse yourself. Donielle

>

> Sent from my Samsung Interceptâ„¢

>

[Guest guest]

Thank you for getting it and for posting this. I think there is a self-imposed

shame that most of us have in that we expect people to respond negatively if we

say that something they do bothers us.... we are afraid of offending them and

that they will think we think we are special and overly-sensitive and deserve

special treatment. You have the best attitude. This is how we are wired. We

should be able to tell people we care about and who care about us who we are and

how we respond to sounds instead of stuffing it and making it our singular

problem.

>

> Dear wizkitty, I'm not sur if you received my email because it did nt list

that any responses had been made. 17 years ago I decided to take control of my

enviroment. All of my staff and regular customers are aware of my condition and

triggers. I had never heard of Misophonia until 3 weeks ago. I simply started to

explain to those who were constantly arounf me that certain sounds did not

meraly annoy me but caused me actual chest pain due to anxiety. I explained that

even I undersood how strange and quirky it sounds. I explain that I understand

that it is my problem. My staff and customers back me up. Often they would ask

the person to stop the sound before I had too. Almost everyone understands and

even apologises. It is better to calmly explain how it effects you than to

people believe that it is them that you dislike and avoid. This has really

changed my life. I can't do anything in say a grocertstore or any other public

place, but for the most part I can controll my work place (not always easy, I

manage a bar) and my friends and family. There is nothing to be embaressed

about. It is just like having a migraine and asking people to quit yelling or

doing other things to affect your triggers. Most people can be very

understanding. As for the rest. Kindly excuse yourself. Donielle

>

> Sent from my Samsung Interceptâ„¢

>

[Guest guest]

Thank you for getting it and for posting this. I think there is a self-imposed

shame that most of us have in that we expect people to respond negatively if we

say that something they do bothers us.... we are afraid of offending them and

that they will think we think we are special and overly-sensitive and deserve

special treatment. You have the best attitude. This is how we are wired. We

should be able to tell people we care about and who care about us who we are and

how we respond to sounds instead of stuffing it and making it our singular

problem.

>

> Dear wizkitty, I'm not sur if you received my email because it did nt list

that any responses had been made. 17 years ago I decided to take control of my

enviroment. All of my staff and regular customers are aware of my condition and

triggers. I had never heard of Misophonia until 3 weeks ago. I simply started to

explain to those who were constantly arounf me that certain sounds did not

meraly annoy me but caused me actual chest pain due to anxiety. I explained that

even I undersood how strange and quirky it sounds. I explain that I understand

that it is my problem. My staff and customers back me up. Often they would ask

the person to stop the sound before I had too. Almost everyone understands and

even apologises. It is better to calmly explain how it effects you than to

people believe that it is them that you dislike and avoid. This has really

changed my life. I can't do anything in say a grocertstore or any other public

place, but for the most part I can controll my work place (not always easy, I

manage a bar) and my friends and family. There is nothing to be embaressed

about. It is just like having a migraine and asking people to quit yelling or

doing other things to affect your triggers. Most people can be very

understanding. As for the rest. Kindly excuse yourself. Donielle

>

> Sent from my Samsung Interceptâ„¢

>

[Guest guest]

I have referred it to it to my friends who know me like this: " You know the

THING I have about chewing and smacking? - can I ask you to not crack your gum? "

I also ask them if they have " things " that bug them that I should know about and

I will honor. If they say they have none, I say....everyone has something....

Like chewing on wood. Like nail polish smell. Like a snotty attitude. Most

people can think of something they cannot tolerate and are glad to let someone

know.

>

> I'm always at a loss as to what to call Misophonia on the rare occasion that I

have the guts to explain to someone what I'm going through. Is it a syndrome?

Condition? I'm not sure what it's classified as, any ideas?

>

> Also, how do people describe it to other people? Like if you describe it to

one of your friends, how do you go about saying it? I always get jumbled up

with my words because I'm not sure exactly how to describe it.

>

> Thanks!

>

[Guest guest]

I'm so happy to hear that you've taken control of your surroundings, it must be

a big relief to be able to work without having to constantly worried about being

triggered into anxiety. My family is very supportive and generally understands

and they do their best to accommodate, but I have the hardest time at school.

Like someone said, sometimes we feel ashamed, and I definitely experience that

sometimes. People at school have noticed that whenever someone clicks a pen or

taps on their desk that I react and sometimes shoot a dirty look (more a look of

distress) and have started tapping or clicking on purpose just to get a reaction

out of me. It's meant to be a joke in their mind, but they don't realize how

deeply it affects me and to be honest I'm too embarrassed to tell them how I'm

feeling.

It's just such a relief to know that there are other people out there who are

suffering like me and that treatments are beginning to be researched. I've

never met anyone personally with the same " condition " or " thing " , but I hope I

can one day.

Thanks for the advice though! I think that one of the only ways to relieve

ourselves from the stress surrounding Misophonia is to take the initiative to

tell the people around us about it and hope that they will respect it. I think

it'll just take some time.

>

> Dear wizkitty, I'm not sur if you received my email because it did nt list

that any responses had been made. 17 years ago I decided to take control of my

enviroment. All of my staff and regular customers are aware of my condition and

triggers. I had never heard of Misophonia until 3 weeks ago. I simply started to

explain to those who were constantly arounf me that certain sounds did not

meraly annoy me but caused me actual chest pain due to anxiety. I explained that

even I undersood how strange and quirky it sounds. I explain that I understand

that it is my problem. My staff and customers back me up. Often they would ask

the person to stop the sound before I had too. Almost everyone understands and

even apologises. It is better to calmly explain how it effects you than to

people believe that it is them that you dislike and avoid. This has really

changed my life. I can't do anything in say a grocertstore or any other public

place, but for the most part I can controll my work place (not always easy, I

manage a bar) and my friends and family. There is nothing to be embaressed

about. It is just like having a migraine and asking people to quit yelling or

doing other things to affect your triggers. Most people can be very

understanding. As for the rest. Kindly excuse yourself. Donielle

>

> Sent from my Samsung Interceptâ„¢

>

[Guest guest]

I'm so happy to hear that you've taken control of your surroundings, it must be

a big relief to be able to work without having to constantly worried about being

triggered into anxiety. My family is very supportive and generally understands

and they do their best to accommodate, but I have the hardest time at school.

Like someone said, sometimes we feel ashamed, and I definitely experience that

sometimes. People at school have noticed that whenever someone clicks a pen or

taps on their desk that I react and sometimes shoot a dirty look (more a look of

distress) and have started tapping or clicking on purpose just to get a reaction

out of me. It's meant to be a joke in their mind, but they don't realize how

deeply it affects me and to be honest I'm too embarrassed to tell them how I'm

feeling.

It's just such a relief to know that there are other people out there who are

suffering like me and that treatments are beginning to be researched. I've

never met anyone personally with the same " condition " or " thing " , but I hope I

can one day.

Thanks for the advice though! I think that one of the only ways to relieve

ourselves from the stress surrounding Misophonia is to take the initiative to

tell the people around us about it and hope that they will respect it. I think

it'll just take some time.

>

> Dear wizkitty, I'm not sur if you received my email because it did nt list

that any responses had been made. 17 years ago I decided to take control of my

enviroment. All of my staff and regular customers are aware of my condition and

triggers. I had never heard of Misophonia until 3 weeks ago. I simply started to

explain to those who were constantly arounf me that certain sounds did not

meraly annoy me but caused me actual chest pain due to anxiety. I explained that

even I undersood how strange and quirky it sounds. I explain that I understand

that it is my problem. My staff and customers back me up. Often they would ask

the person to stop the sound before I had too. Almost everyone understands and

even apologises. It is better to calmly explain how it effects you than to

people believe that it is them that you dislike and avoid. This has really

changed my life. I can't do anything in say a grocertstore or any other public

place, but for the most part I can controll my work place (not always easy, I

manage a bar) and my friends and family. There is nothing to be embaressed

about. It is just like having a migraine and asking people to quit yelling or

doing other things to affect your triggers. Most people can be very

understanding. As for the rest. Kindly excuse yourself. Donielle

>

> Sent from my Samsung Interceptâ„¢

>

[Guest guest]

I'm so happy to hear that you've taken control of your surroundings, it must be

a big relief to be able to work without having to constantly worried about being

triggered into anxiety. My family is very supportive and generally understands

and they do their best to accommodate, but I have the hardest time at school.

Like someone said, sometimes we feel ashamed, and I definitely experience that

sometimes. People at school have noticed that whenever someone clicks a pen or

taps on their desk that I react and sometimes shoot a dirty look (more a look of

distress) and have started tapping or clicking on purpose just to get a reaction

out of me. It's meant to be a joke in their mind, but they don't realize how

deeply it affects me and to be honest I'm too embarrassed to tell them how I'm

feeling.

It's just such a relief to know that there are other people out there who are

suffering like me and that treatments are beginning to be researched. I've

never met anyone personally with the same " condition " or " thing " , but I hope I

can one day.

Thanks for the advice though! I think that one of the only ways to relieve

ourselves from the stress surrounding Misophonia is to take the initiative to

tell the people around us about it and hope that they will respect it. I think

it'll just take some time.

>

> Dear wizkitty, I'm not sur if you received my email because it did nt list

that any responses had been made. 17 years ago I decided to take control of my

enviroment. All of my staff and regular customers are aware of my condition and

triggers. I had never heard of Misophonia until 3 weeks ago. I simply started to

explain to those who were constantly arounf me that certain sounds did not

meraly annoy me but caused me actual chest pain due to anxiety. I explained that

even I undersood how strange and quirky it sounds. I explain that I understand

that it is my problem. My staff and customers back me up. Often they would ask

the person to stop the sound before I had too. Almost everyone understands and

even apologises. It is better to calmly explain how it effects you than to

people believe that it is them that you dislike and avoid. This has really

changed my life. I can't do anything in say a grocertstore or any other public

place, but for the most part I can controll my work place (not always easy, I

manage a bar) and my friends and family. There is nothing to be embaressed

about. It is just like having a migraine and asking people to quit yelling or

doing other things to affect your triggers. Most people can be very

understanding. As for the rest. Kindly excuse yourself. Donielle

>

> Sent from my Samsung Interceptâ„¢

>

[Guest guest]

I have a hereditary neurological disorder called Misophonia that makes my brain

go wonky when I am exposed to certain sensory input. For instance, when you

hear background noise and then dismiss it as not important, my brain hears that

same thing and registers it as distressing and it responds with fight or flight

panic and rage. Background noise means small sounds, like eating and breathing

or footsteps and some other stuff too. There is hopefully some research in the

works . . . They did a segment on the Today Show after an article in the NY

Times came out. I used to think I was the only one . . . But I DO need to take

care of myself and I will remove myself from distressing situations. Would you

like me to write it down so you can google it?

> >

> > I'm always at a loss as to what to call Misophonia on the rare occasion that

I have the guts to explain to someone what I'm going through. Is it a syndrome?

Condition? I'm not sure what it's classified as, any ideas?

> >

> > Also, how do people describe it to other people? Like if you describe it to

one of your friends, how do you go about saying it? I always get jumbled up

with my words because I'm not sure exactly how to describe it.

> >

> > Thanks!

> >

>

[Guest guest]

I love this response! To: Soundsensitivity Sent: Friday, January 13, 2012 12:15 PM Subject: Re: What is Misophonia classified as?

I have a hereditary neurological disorder called Misophonia that makes my brain go wonky when I am exposed to certain sensory input. For instance, when you hear background noise and then dismiss it as not important, my brain hears that same thing and registers it as distressing and it responds with fight or flight panic and rage. Background noise means small sounds, like eating and breathing or footsteps and some other stuff too. There is hopefully some research in the works . . . They did a segment on the Today Show after an article in the NY Times came out. I used to think I was the only one . . . But I DO need to take care of myself and I will remove myself from distressing situations. Would you like me to write it down so you can google it?

> >

> > I'm always at a loss as to what to call Misophonia on the rare occasion that I have the guts to explain to someone what I'm going through. Is it a syndrome? Condition? I'm not sure what it's classified as, any ideas?

> >

> > Also, how do people describe it to other people? Like if you describe it to one of your friends, how do you go about saying it? I always get jumbled up with my words because I'm not sure exactly how to describe it.

> >

> > Thanks!

> >

>

[Guest guest]

I love this response! To: Soundsensitivity Sent: Friday, January 13, 2012 12:15 PM Subject: Re: What is Misophonia classified as?

I have a hereditary neurological disorder called Misophonia that makes my brain go wonky when I am exposed to certain sensory input. For instance, when you hear background noise and then dismiss it as not important, my brain hears that same thing and registers it as distressing and it responds with fight or flight panic and rage. Background noise means small sounds, like eating and breathing or footsteps and some other stuff too. There is hopefully some research in the works . . . They did a segment on the Today Show after an article in the NY Times came out. I used to think I was the only one . . . But I DO need to take care of myself and I will remove myself from distressing situations. Would you like me to write it down so you can google it?

> >

> > I'm always at a loss as to what to call Misophonia on the rare occasion that I have the guts to explain to someone what I'm going through. Is it a syndrome? Condition? I'm not sure what it's classified as, any ideas?

> >

> > Also, how do people describe it to other people? Like if you describe it to one of your friends, how do you go about saying it? I always get jumbled up with my words because I'm not sure exactly how to describe it.

> >

> > Thanks!

> >

>