Re: Re: spousal sounds

[Guest guest]

It'll even work on PCs. You just each need a camera internal or external in your computer and internet connection I'm so very sorry to hear this. My thoughts are with you. You are so brave. Be well. Sent from my iPhone

You might consider getting several Apple Computers and use SKYPE to talk with your spouse. These little miracles make communication very easy and my son actually kept his on while his girlfriend was living down in Cal, and they 'slept' together with these screens on....

Bypass the physical obstacles and use technology.

Dr. J

>

> I wa so thankful when I foudn out about misophonia. I kept the show and

> rewatched it with my husband.

> The light bulb came on and he was able to understand what I am dealing with.

> He has tried to adjust the way he does things so I won't get irriated

> or go in to a rage.

> He broke his hip in December. When he went through rehab and came

> home I was so happy to have him back in our 32 year marital bed. That

> only lasted a couple of nights. Something had changed in his air way

> and his sleep apnea had changed dramiticaly. I tried to sleep with him

> but couldn't. I had finally been able to adjust, after so many years of

> rough nights sleeping. I told him that something had changed in the 2

> weeks he was away. He understood why I had to move to our guest room.

> WIthout sleep life doesn't go well.

> I have no regrets as I begin to write this part. No details will be

> given except that he fell, had a head injury and was flown from our

> mountain dome to a trauma center. Tomorrow it wiil be 2 weeks and he

> will not be coming home. During some lucid moments this week, my sister

> said he told her " I want to get home, climb in to bed with my wife and

> hold her and fall asleep together. I have missed sleeping with her, I

> have missed seeing her so I am going to get better so we can sleep

> together agian". I was so touched when my sister told me this.

> Why is my sister with him and I am not? I have a life threatening

> allergy to natural rubber latex proteins. I was a nurse for oh so long

> and being exposed to the high protein powedered latex gloves daily gave

> me this odd allergy. I live in a latex free dome. Our town has stepped

> up to the plate and gotten rid of latex gloves across the board so I

> can shop safely, eat the food they handle,go in the bank etc. They got

> rid of balloons so I can have freedom in our little mountain dome.

> I had to deal with the "you must be crazy" phase of latex allergy. A

> visit to a shrink is part of the differential diagnosiing that went on

> in the 90's. NOW, it is acceptable that it is real. I cannot go in to

> the hospital to see my husband because the hospital is not latex safe.

> So my sister is my surrogate wife while I sit outside and watch parades

> of pink and blue latex balloons go inside to the nursery. My allergist

> said I cannot go in since the hospital doesn't know enough to keep me

> safe and treat me when I anaphylax.

> That is why knowing about misophonia has saved my life. I really

> thought I was going crazy and now I know it is reality based and that

> is so re-assuring.

> I have read so many emails about spousal sounds. My guy did his best

> to adjust his was of being a trigger 'casue he loves me so much.We had

> to stop shairng meal times since it was such a trigger. He has issues

> with swallowing and it takes him 5 swallows to get one bite of food

> down.

> Well, he is about to begin his journey to heaven. It is his time and

> he is 7 years past his epxiration date.

> These past two weeks have been so challenging as he is hospitialized

> and won't be coming home.

> I WOULD GIVE ANYTHING to hear him smacking his lips,taking 30 minutes

> to open a bag of chips or unwrap a candy bar now. Once he leared about

> my hearing sounds issues he really tried to help me as much as possible

> but the sleep thing was out of his control.

> When my sis said he wanted to sleep with me one more time I was so

> touched. I will try, on Monday, to ask the hospital to find an outside

> area that is protected so he doesn't get cold. My hope is to climb in

> to his hospital bed and have a final embrace.I have been dealing with

> my latex allergy since 1998 and have made great changes for which I am

> so thankful for. Now, when my husband needs me the most, I can't be

> with him bacause it can kill me to go inside athis NOT latex safe

> hospital (kind of ironic).

> Thank you for teaching me about this new to me diagnosis.

> The next time your spouse creates a trigger may I offer a "pause

> button"? Instead of focusing on the trigger noise look at your spouse

> with loving eyes, mind and heart and know they are not really doing it

> on purpose ( I know some do)

> When I return home many of my triggers will be gone. I will be living

> on my own for the first time in 32 years. It will be interesting to see

> how it goes with out his triggers. My family is just now being told

> about this since their main focus is keeping me alive and safe from

> natural rubber latex. I have been teased a couple of times already, I

> can take it since I know they really are trying to learn about it.

> I wanted to share this as I had to learn, in december, to not be

> irriated by his sounds since he really couldn't do much about it.I will

> try to rejoin the conversations some time in the spring. For now, I am

> going to be lurking, not posting since my life is about to change in a

> huge way.

> Thank you for allowing me to join and thank you for educating me and

> letting me know I am not crazy.

> In all things important--be well

> prn

>

[Guest guest]

Thank you Dr. J.

My gal pal and her scouts are creating a hook up with I pads etc. For

2012 and this is level one trauma center it is a shame that they can't provide

any tools to help. Today he told our niece that he wants to go outside. So that

is my goal for Monday. Then we can be skin to skin.

I am avoiding as many triggers as I can as I am on edge after 2 weeks of

continuous stress..not good for misophonia, latex allergy or me.

to have seen your interview, join this group and know I am not crazy.

I wonder how the immune system works with a misophonia diagnosis?

mine collapsed in 2006 and that is when my issues with sounds began.

thanks for your input....gonna see what the scouts come up with!

prnOn Sun, 05 Feb 2012 02:52:38 -0000, M

wrote:

You might consider getting several Apple Computers and use SKYPE to talk with

your spouse. These little miracles make communication very easy and my son

actually kept his on while his girlfriend was living down in Cal, and they

'slept' together with these screens on....Bypass the physical obstacles

and use technology.Dr. J>> I wa so thankful when I foudn out about

misophonia. I kept the show and > rewatched it with my husband. >

The light bulb came on and he was able to understand what I am dealing with. > He has tried to adjust the way he does things so I won't get irriated

> or go in to a rage. > He broke his hip in December. When he went

through rehab and came > home I was so happy to have him back in our 32

year marital bed. That > only lasted a couple of nights. Something had

changed in his air way > and his sleep apnea had changed dramiticaly. I

tried to sleep with him > but couldn't. I had finally been able to

adjust, after so many years of > rough nights sleeping. I told him that

something had changed in the 2 > weeks he was away. He understood why I

had to move to our guest room. > WIthout sleep life doesn't go well. > I have no regrets as I begin to write this part. No details will be

> given except that he fell, had a head injury and was flown from our

> mountain dome to a trauma center. Tomorrow it wiil be 2 weeks and he

> will not be coming home. During some lucid moments this week, my sister

> said he told her " I want to get home, climb in to bed with my wife and

> hold her and fall asleep together. I have missed sleeping with her, I

> have missed seeing her so I am going to get better so we can sleep

> together agian". I was so touched when my sister told me this. >

Why is my sister with him and I am not? I have a life threatening >

allergy to natural rubber latex proteins. I was a nurse for oh so long >

and being exposed to the high protein powedered latex gloves daily gave >

me this odd allergy. I live in a latex free dome. Our town has stepped >

up to the plate and gotten rid of latex gloves across the board so I >

can shop safely, eat the food they handle,go in the bank etc. They got >

rid of balloons so I can have freedom in our little mountain dome. > I

had to deal with the "you must be crazy" phase of latex allergy. A >

visit to a shrink is part of the differential diagnosiing that went on >

in the 90's. NOW, it is acceptable that it is real. I cannot go in to >

the hospital to see my husband because the hospital is not latex safe. >

So my sister is my surrogate wife while I sit outside and watch parades >

of pink and blue latex balloons go inside to the nursery. My allergist >

said I cannot go in since the hospital doesn't know enough to keep me >

safe and treat me when I anaphylax. > That is why knowing about

misophonia has saved my life. I really > thought I was going crazy and

now I know it is reality based and that > is so re-assuring. > I

have read so many emails about spousal sounds. My guy did his best > to

adjust his was of being a trigger 'casue he loves me so much.We had > to

stop shairng meal times since it was such a trigger. He has issues > with

swallowing and it takes him 5 swallows to get one bite of food > down. > Well, he is about to begin his journey to heaven. It is his time and

> he is 7 years past his epxiration date. > These past two weeks

have been so challenging as he is hospitialized > and won't be coming

home. > I WOULD GIVE ANYTHING to hear him smacking his lips,taking 30

minutes > to open a bag of chips or unwrap a candy bar now. Once he

leared about > my hearing sounds issues he really tried to help me as

much as possible > but the sleep thing was out of his control. >

When my sis said he wanted to sleep with me one more time I was so >

touched. I will try, on Monday, to ask the hospital to find an outside >

area that is protected so he doesn't get cold. My hope is to climb in >

to his hospital bed and have a final embrace.I have been dealing with >

my latex allergy since 1998 and have made great changes for which I am >

so thankful for. Now, when my husband needs me the most, I can't be >

with him bacause it can kill me to go inside athis NOT latex safe >

hospital (kind of ironic). > Thank you for teaching me about this new to

me diagnosis. > The next time your spouse creates a trigger may I offer a

"pause > button"? Instead of focusing on the trigger noise look at your

spouse > with loving eyes, mind and heart and know they are not really

doing it > on purpose ( I know some do)> When I return home many

of my triggers will be gone. I will be living > on my own for the first

time in 32 years. It will be interesting to see > how it goes with out

his triggers. My family is just now being told > about this since their

main focus is keeping me alive and safe from > natural rubber latex. I

have been teased a couple of times already, I > can take it since I know

they really are trying to learn about it. > I wanted to share this as I

had to learn, in december, to not be > irriated by his sounds since he

really couldn't do much about it.I will > try to rejoin the conversations

some time in the spring. For now, I am > going to be lurking, not posting

since my life is about to change in a > huge way. > Thank you for

allowing me to join and thank you for educating me and > letting me know

I am not crazy. > In all things important--be well>

prn>

[Guest guest]

Thank you Dr. J.

My gal pal and her scouts are creating a hook up with I pads etc. For

2012 and this is level one trauma center it is a shame that they can't provide

any tools to help. Today he told our niece that he wants to go outside. So that

is my goal for Monday. Then we can be skin to skin.

I am avoiding as many triggers as I can as I am on edge after 2 weeks of

continuous stress..not good for misophonia, latex allergy or me.

to have seen your interview, join this group and know I am not crazy.

I wonder how the immune system works with a misophonia diagnosis?

mine collapsed in 2006 and that is when my issues with sounds began.

thanks for your input....gonna see what the scouts come up with!

prnOn Sun, 05 Feb 2012 02:52:38 -0000, M

wrote:

You might consider getting several Apple Computers and use SKYPE to talk with

your spouse. These little miracles make communication very easy and my son

actually kept his on while his girlfriend was living down in Cal, and they

'slept' together with these screens on....Bypass the physical obstacles

and use technology.Dr. J>> I wa so thankful when I foudn out about

misophonia. I kept the show and > rewatched it with my husband. >

The light bulb came on and he was able to understand what I am dealing with. > He has tried to adjust the way he does things so I won't get irriated

> or go in to a rage. > He broke his hip in December. When he went

through rehab and came > home I was so happy to have him back in our 32

year marital bed. That > only lasted a couple of nights. Something had

changed in his air way > and his sleep apnea had changed dramiticaly. I

tried to sleep with him > but couldn't. I had finally been able to

adjust, after so many years of > rough nights sleeping. I told him that

something had changed in the 2 > weeks he was away. He understood why I

had to move to our guest room. > WIthout sleep life doesn't go well. > I have no regrets as I begin to write this part. No details will be

> given except that he fell, had a head injury and was flown from our

> mountain dome to a trauma center. Tomorrow it wiil be 2 weeks and he

> will not be coming home. During some lucid moments this week, my sister

> said he told her " I want to get home, climb in to bed with my wife and

> hold her and fall asleep together. I have missed sleeping with her, I

> have missed seeing her so I am going to get better so we can sleep

> together agian". I was so touched when my sister told me this. >

Why is my sister with him and I am not? I have a life threatening >

allergy to natural rubber latex proteins. I was a nurse for oh so long >

and being exposed to the high protein powedered latex gloves daily gave >

me this odd allergy. I live in a latex free dome. Our town has stepped >

up to the plate and gotten rid of latex gloves across the board so I >

can shop safely, eat the food they handle,go in the bank etc. They got >

rid of balloons so I can have freedom in our little mountain dome. > I

had to deal with the "you must be crazy" phase of latex allergy. A >

visit to a shrink is part of the differential diagnosiing that went on >

in the 90's. NOW, it is acceptable that it is real. I cannot go in to >

the hospital to see my husband because the hospital is not latex safe. >

So my sister is my surrogate wife while I sit outside and watch parades >

of pink and blue latex balloons go inside to the nursery. My allergist >

said I cannot go in since the hospital doesn't know enough to keep me >

safe and treat me when I anaphylax. > That is why knowing about

misophonia has saved my life. I really > thought I was going crazy and

now I know it is reality based and that > is so re-assuring. > I

have read so many emails about spousal sounds. My guy did his best > to

adjust his was of being a trigger 'casue he loves me so much.We had > to

stop shairng meal times since it was such a trigger. He has issues > with

swallowing and it takes him 5 swallows to get one bite of food > down. > Well, he is about to begin his journey to heaven. It is his time and

> he is 7 years past his epxiration date. > These past two weeks

have been so challenging as he is hospitialized > and won't be coming

home. > I WOULD GIVE ANYTHING to hear him smacking his lips,taking 30

minutes > to open a bag of chips or unwrap a candy bar now. Once he

leared about > my hearing sounds issues he really tried to help me as

much as possible > but the sleep thing was out of his control. >

When my sis said he wanted to sleep with me one more time I was so >

touched. I will try, on Monday, to ask the hospital to find an outside >

area that is protected so he doesn't get cold. My hope is to climb in >

to his hospital bed and have a final embrace.I have been dealing with >

my latex allergy since 1998 and have made great changes for which I am >

so thankful for. Now, when my husband needs me the most, I can't be >

with him bacause it can kill me to go inside athis NOT latex safe >

hospital (kind of ironic). > Thank you for teaching me about this new to

me diagnosis. > The next time your spouse creates a trigger may I offer a

"pause > button"? Instead of focusing on the trigger noise look at your

spouse > with loving eyes, mind and heart and know they are not really

doing it > on purpose ( I know some do)> When I return home many

of my triggers will be gone. I will be living > on my own for the first

time in 32 years. It will be interesting to see > how it goes with out

his triggers. My family is just now being told > about this since their

main focus is keeping me alive and safe from > natural rubber latex. I

have been teased a couple of times already, I > can take it since I know

they really are trying to learn about it. > I wanted to share this as I

had to learn, in december, to not be > irriated by his sounds since he

really couldn't do much about it.I will > try to rejoin the conversations

some time in the spring. For now, I am > going to be lurking, not posting

since my life is about to change in a > huge way. > Thank you for

allowing me to join and thank you for educating me and > letting me know

I am not crazy. > In all things important--be well>

prn>

[Guest guest]

First let me tell you how deeply your story effected me. I was brought to tears

(not naturfal for me). My sistuation is so different fr8m yours, but it has

chnged my thinking. I just recenty learnd of misophonia. I was my fathers

trigger. When I explained to people why I can't tolerate sounds I said that I

believed that I felt anticipation about sounds that would set my father off and

thus causing me to have a panic attack. Long story but an incident made him lose

his hearing signifigantly, so he didn't gin new triggers. This was a very small

part of our dislike, hatred for each other. Ever as a very small child I wished

for his death, as well did my sisters. He eventually lost all hearing, yet we

still fought. Him verbal, me in writing. My father just got a courclear implant

regained his hearing. I decided never to see him again. He is in his 70's now,

and tonight I started panicking about his death. I can't imagine an " Art " free

life. I hate my father but I admire him and despretly crave his approval. For

the first time in my life I don't want to outlive my parents, despite his

cruelty, didapointment and dislike for me, I suddenly realizeded that I can't

imagine an Art free life. We are far from close, years without communication. I

can recal only two times in my life when he was kind to me. After reading your

story I reallized that my mother was right, his behavior was disspoint because

he thinks I wasted my potential. My father gave me not only Misophonia, but

bipolar disorder and boarderline personality disorder. You touched me because I

realize that my hatred for my father is combined with love. All of his insane

belifes, I will forgive and think about. Just like you and the triggers, I will

miss the arguments and the possibility that he will ever be proud of me. He has

dominated my life, yet when he dies he will take everything away from me. I know

this is nothing like the feelings that you have for your husband, but because of

my disorders I chose never to marry or have children. We will never conect, but

do to your story I have come to the realization that his death may be the death

of me. I wish you the very best, and thank you for allowing me to realize the

effect of my fathers death. I'm sure this makes no sense to you, but hatred and

all, I will severly grieve my fathers death. I never thought this possible.

Wishing you succuss in your skin to skin contact. Thank you for opening my eyes,

even if in a unbelievable bizzar way.

Sent from my Samsung Interceptâ„¢

[Guest guest]

First let me tell you how deeply your story effected me. I was brought to tears

(not naturfal for me). My sistuation is so different fr8m yours, but it has

chnged my thinking. I just recenty learnd of misophonia. I was my fathers

trigger. When I explained to people why I can't tolerate sounds I said that I

believed that I felt anticipation about sounds that would set my father off and

thus causing me to have a panic attack. Long story but an incident made him lose

his hearing signifigantly, so he didn't gin new triggers. This was a very small

part of our dislike, hatred for each other. Ever as a very small child I wished

for his death, as well did my sisters. He eventually lost all hearing, yet we

still fought. Him verbal, me in writing. My father just got a courclear implant

regained his hearing. I decided never to see him again. He is in his 70's now,

and tonight I started panicking about his death. I can't imagine an " Art " free

life. I hate my father but I admire him and despretly crave his approval. For

the first time in my life I don't want to outlive my parents, despite his

cruelty, didapointment and dislike for me, I suddenly realizeded that I can't

imagine an Art free life. We are far from close, years without communication. I

can recal only two times in my life when he was kind to me. After reading your

story I reallized that my mother was right, his behavior was disspoint because

he thinks I wasted my potential. My father gave me not only Misophonia, but

bipolar disorder and boarderline personality disorder. You touched me because I

realize that my hatred for my father is combined with love. All of his insane

belifes, I will forgive and think about. Just like you and the triggers, I will

miss the arguments and the possibility that he will ever be proud of me. He has

dominated my life, yet when he dies he will take everything away from me. I know

this is nothing like the feelings that you have for your husband, but because of

my disorders I chose never to marry or have children. We will never conect, but

do to your story I have come to the realization that his death may be the death

of me. I wish you the very best, and thank you for allowing me to realize the

effect of my fathers death. I'm sure this makes no sense to you, but hatred and

all, I will severly grieve my fathers death. I never thought this possible.

Wishing you succuss in your skin to skin contact. Thank you for opening my eyes,

even if in a unbelievable bizzar way.

Sent from my Samsung Interceptâ„¢

[Guest guest]

Hi Jellemv...all of our journey's are

different with common threads.

If I helped just one person, you, than it hasn't been a total loss for

nothing.Thank you for shairing and learning along the way.

I am not on line much as i seek solace in the quiet and looking for peace.All

the steroids and inhaled medications I am on keep me up at odd hours.

do the best you can with your unfortunate set of circumstances. There is no

room for regrets but if our journey helps you it helps me feel like I have done

something positive.

To the group, all though I am still a newbie, thank you for sharing as you

did.Now that I have been here longer I will use my nick name, A Mt Gal. I,

no WE, live in the Sierra Nevada mountain range. Between Lake Tahoe and

Yosemite. I miss the quiet and serenity after being in the city for two full

weeks now. I don't have any of my sound machines with me so I am using

meditation,exercise and prayer to help cope with my ears. The tinnitus is at it

highest peak where it was when it began. The city sounds are so over

whelming.

But I can deal with it if my husband is fighting to live or die it helps me

be less cranky around all these new triggers.

Best of luck to you as you begin your journey with new insight.

A Mt GalOn Sun, 05 Feb 2012 06:38:21 -0700, iellemv@...

wrote:

First let me tell you how deeply your story effected me. I was brought to

tears (not naturfal for me). My sistuation is so different fr8m yours, but it

has chnged my thinking. I just recenty learnd of misophonia. I was my fathers

trigger. When I explained to people why I can't tolerate sounds I said that I

believed that I felt anticipation about sounds that would set my father off and

thus causing me to have a panic attack. Long story but an incident made him lose

his hearing signifigantly, so he didn't gin new triggers. This was a very small

part of our dislike, hatred for each other. Ever as a very small child I wished

for his death, as well did my sisters. He eventually lost all hearing, yet we

still fought. Him verbal, me in writing. My father just got a courclear implant

regained his hearing. I decided never to see him again. He is in his 70's now,

and tonight I started panicking about his death. I can't imagine an "Art" free

life. I hate my father but I admire him and despretly crave his approval. For

the first time in my life I don't want to outlive my parents, despite his

cruelty, didapointment and dislike for me, I suddenly realizeded that I can't

imagine an Art free life. We are far from close, years without communication. I

can recal only two times in my life when he was kind to me. After reading your

story I reallized that my mother was right, his behavior was disspoint because

he thinks I wasted my potential. My father gave me not only Misophonia, but

bipolar disorder and boarderline personality disorder. You touched me because I

realize that my hatred for my father is combined with love. All of his insane

belifes, I will forgive and think about. Just like you and the triggers, I will

miss the arguments and the possibility that he will ever be proud of me. He has

dominated my life, yet when he dies he will take everything away from me. I know

this is nothing like the feelings that you have for your husband, but because of

my disorders I chose never to marry or have children. We will never conect, but

do to your story I have come to the realization that his death may be the death

of me. I wish you the very best, and thank you for allowing me to realize the

effect of my fathers death. I'm sure this makes no sense to you, but hatred and

all, I will severly grieve my fathers death. I never thought this possible. Wishing you succuss in your skin to skin contact. Thank you for opening my eyes,

even if in a unbelievable bizzar way.Sent from my Samsung

Interceptâ„¢