changing name from 4s/sound sensitivity to misophonia

[Guest guest]

it would be beneficial to have one name for this condition. misophonia is the

term we should go with. other names just confuse the medical profession when

seeking help/understanding from professionals.

[Guest guest]

>

> it would be beneficial to have one name for this condition. misophonia is the

term we should go with. other names just confuse the medical profession when

seeking help/understanding from professionals.

>

here's my question: if we already had a name for it (selective sound sensitivity

syndrom) why is it now called misophonia?

[Guest guest]

>

> it would be beneficial to have one name for this condition. misophonia is the

term we should go with. other names just confuse the medical profession when

seeking help/understanding from professionals.

>

here's my question: if we already had a name for it (selective sound sensitivity

syndrom) why is it now called misophonia?

[Guest guest]

>

> it would be beneficial to have one name for this condition. misophonia is the

term we should go with. other names just confuse the medical profession when

seeking help/understanding from professionals.

>

here's my question: if we already had a name for it (selective sound sensitivity

syndrom) why is it now called misophonia?

[Guest guest]

That is a good question. It has a fairly simple answer.

Back in 1997, I encountered cases with these symptoms, and over time I came up

with the name Selective Sound Sensitivity Syndrome since people often had more

than one symptom (auditory and visual, or even thought-induced issues). I

shortened it to 4S over time.

Around 2001 or so, Dr. Pawel Jastreboff, creater of TRT a treatment designed to

help those with tinnitus, asked someone to come up a name for the same thing,

and he selected misophonia.

I rejected misophonia because it means hatred of sound, and my patients actually

LIKED sound, loud sounds, more sounds, just not some very specific softer sounds

which I named TRIGGER SOUNDS.

There were many arguments on this topic. Mostly on the Hyperacusis Network.

So many that it is actually forbidden to use 4S as a term, as a matter of fact,

originally, Dan Malcore suggested Selective as the term instead of some other

word I was using at the start up.

People sabotaged the wikipedia 4S site, it was taken down for a while, people

had all out wars about this situation and it was frustrating and irritating and

wrapped up in the fact that the 'original' prescribed treatment for misophonia

was useless (3 week cycles of listening to louder and louder music) which

ironically DOES work for people who reject and hate ALL sounds, but does nothing

for those with 4S.

So we still have two terms, more people use misophonia and I gave in for the

sake of humanity, and include it here and other places.

But I still think misophonia is not a great term for this syndrome for these

reasons:

1) it makes it seem like a volitional, chosen behavior due to hatred of extreme

dislike of sound (can we classify diabetes as extreme dislike of sugar?)

2) it does not have in itself enough information to allow medical practitioners

to understand what it is, and people often get assigned a very murky perception

that tends to slide instantly into the 'you are crazy camp'

There it stands.

It is THIS group's responsibility to insist on proper recognition, proper care,

proper diagnosis, and proper treatment, and research.

Dr. Marsha , audiologist

> >

> > it would be beneficial to have one name for this condition. misophonia is

the term we should go with. other names just confuse the medical profession when

seeking help/understanding from professionals.

> >

>

> here's my question: if we already had a name for it (selective sound

sensitivity syndrom) why is it now called misophonia?

>

[Guest guest]

That is a good question. It has a fairly simple answer.

Back in 1997, I encountered cases with these symptoms, and over time I came up

with the name Selective Sound Sensitivity Syndrome since people often had more

than one symptom (auditory and visual, or even thought-induced issues). I

shortened it to 4S over time.

Around 2001 or so, Dr. Pawel Jastreboff, creater of TRT a treatment designed to

help those with tinnitus, asked someone to come up a name for the same thing,

and he selected misophonia.

I rejected misophonia because it means hatred of sound, and my patients actually

LIKED sound, loud sounds, more sounds, just not some very specific softer sounds

which I named TRIGGER SOUNDS.

There were many arguments on this topic. Mostly on the Hyperacusis Network.

So many that it is actually forbidden to use 4S as a term, as a matter of fact,

originally, Dan Malcore suggested Selective as the term instead of some other

word I was using at the start up.

People sabotaged the wikipedia 4S site, it was taken down for a while, people

had all out wars about this situation and it was frustrating and irritating and

wrapped up in the fact that the 'original' prescribed treatment for misophonia

was useless (3 week cycles of listening to louder and louder music) which

ironically DOES work for people who reject and hate ALL sounds, but does nothing

for those with 4S.

So we still have two terms, more people use misophonia and I gave in for the

sake of humanity, and include it here and other places.

But I still think misophonia is not a great term for this syndrome for these

reasons:

1) it makes it seem like a volitional, chosen behavior due to hatred of extreme

dislike of sound (can we classify diabetes as extreme dislike of sugar?)

2) it does not have in itself enough information to allow medical practitioners

to understand what it is, and people often get assigned a very murky perception

that tends to slide instantly into the 'you are crazy camp'

There it stands.

It is THIS group's responsibility to insist on proper recognition, proper care,

proper diagnosis, and proper treatment, and research.

Dr. Marsha , audiologist

> >

> > it would be beneficial to have one name for this condition. misophonia is

the term we should go with. other names just confuse the medical profession when

seeking help/understanding from professionals.

> >

>

> here's my question: if we already had a name for it (selective sound

sensitivity syndrom) why is it now called misophonia?

>

[Guest guest]

That is a good question. It has a fairly simple answer.

Back in 1997, I encountered cases with these symptoms, and over time I came up

with the name Selective Sound Sensitivity Syndrome since people often had more

than one symptom (auditory and visual, or even thought-induced issues). I

shortened it to 4S over time.

Around 2001 or so, Dr. Pawel Jastreboff, creater of TRT a treatment designed to

help those with tinnitus, asked someone to come up a name for the same thing,

and he selected misophonia.

I rejected misophonia because it means hatred of sound, and my patients actually

LIKED sound, loud sounds, more sounds, just not some very specific softer sounds

which I named TRIGGER SOUNDS.

There were many arguments on this topic. Mostly on the Hyperacusis Network.

So many that it is actually forbidden to use 4S as a term, as a matter of fact,

originally, Dan Malcore suggested Selective as the term instead of some other

word I was using at the start up.

People sabotaged the wikipedia 4S site, it was taken down for a while, people

had all out wars about this situation and it was frustrating and irritating and

wrapped up in the fact that the 'original' prescribed treatment for misophonia

was useless (3 week cycles of listening to louder and louder music) which

ironically DOES work for people who reject and hate ALL sounds, but does nothing

for those with 4S.

So we still have two terms, more people use misophonia and I gave in for the

sake of humanity, and include it here and other places.

But I still think misophonia is not a great term for this syndrome for these

reasons:

1) it makes it seem like a volitional, chosen behavior due to hatred of extreme

dislike of sound (can we classify diabetes as extreme dislike of sugar?)

2) it does not have in itself enough information to allow medical practitioners

to understand what it is, and people often get assigned a very murky perception

that tends to slide instantly into the 'you are crazy camp'

There it stands.

It is THIS group's responsibility to insist on proper recognition, proper care,

proper diagnosis, and proper treatment, and research.

Dr. Marsha , audiologist

> >

> > it would be beneficial to have one name for this condition. misophonia is

the term we should go with. other names just confuse the medical profession when

seeking help/understanding from professionals.

> >

>

> here's my question: if we already had a name for it (selective sound

sensitivity syndrom) why is it now called misophonia?

>