Re: Re: Oral Sugery/Kineret/Mouth Painweight loss

August 18, 2012

Kirk,

Thanks for sharing your story. I too used to work out in the gym most of my

life. Even during pregnancy I went up to 7 months into it, but had to modify

aerobics and a few other things. After I married my second husband, we spent a

lot of time in the gym. He had goals and achieved some of them, but his body

just wasn't a responder and he was a runner so he never got his body " built "

like you did. He is gone now and it's just me. I'm determined and inspired to

work on what this cortisone has done to me along with my own falling into

craving foods to kill my depression. I'm on my way down, but not being able to

add much in the form of exercise is a hinderence.Â I love how you plan to add

more movement by disguising it in coaching. It will take your mind off of how

you plan to be up on your feet, out there active with the kids, and what I

consider the highest and greatest reward is what you are giving back to the

community. My Dad coached little league,

and he was the type of coach that you describedÂ yourself as in the way that

he almost got booted off the field a few times. But people respected him for so

many other things that he did do so well, that they overlooked his over zealeous

way of sometimes getting a bit too passionate about the game. I believe with the

perserverance you pocess that helped you to become what you did when you were

body building, will still be what helps you take off the weight you are faced

with now. You certainly are eating correctly and on track there, which is a

milestone. I finally am myself, but yesterday was my birthday, and my family is

taking me out to eat, and I plan on not holding anything back just for today.

Okay... does anyone else one the group want to get on the weight loss, healthy

eating train with Kirk and I? It is great to have a group to answer to, and

someone to share accomplishments with. We can do it!! Maybe after summer and

next winter comes, you

can find yourself a winter sport or indoor activity to become involved in. You

have time and you will be feeling so much better about yourself that you'll be

able to look outside the box and find something that will carry you through the

winters. Maybe even be back in the gym if that's what you wanted to do. Well

take care and keep fighting!

Â

Will be checking in from time to time and keep posting.

>To: Stillsdisease

>Sent: Friday, August 17, 2012 10:27 PM

>Subject: Re: Re: Oral Sugery/Kineret/Mouth Pain

>

>Â

>Well, this is one of the most active times of the year for me as I coach

>youth football and have been for close to or over a dozen years..I can't

>really recall. I truly enjoy coaching the kids, and giving back/helping

>others is quite rewarding to me. Shit, I can't do what I want to do for

>myself (I.E. LIFT, RUN,FIGHT, WRESTLE) so I may as well do other things I

>am good at. I was a Head Coach in Duryea, Pa for 6 years accumulating a

>48-6 record, and I have a lot of kids who truly respect me and ask me

>advice on the side. THANK GOD I had my two sons! Talk about a life changing

>incident, much more so than Stills. I used to be a work-a-holic and a work

>out fanatic, and about the only time I was home was to eat, sleep and

>shower.

>Duryea has not had an A team for the past couple of years (Dumb kids are

>sitting on the bench for Freshman Football, and most are 11 or 12 and in

>7th or 8th grade! Last year I took the 3 kids that had signed up to play in

>Duryea and took them to Exeter, which is where I grew up. I had one great

>coach working with me, but the head coach and asst where both

>totally incompetent and would lie, cheat and steal to win a game. I refused

>to coach during the games, but was there for the kids and ran all of the

>practices my way.

>Now I was recruited by the Wilkes-Barre Bears to coach their linemen,

>which is all I ever coached even as a Head Coach. I played both sides of

>the line and have gone to a decent number of coaching camps to know I am up

>there as far as line coaches are concerned. I don't like the way this

>particular coach runs practices, but I am just biding my time until I can

>get another team @ Duryea.

>I generally lose 15+ pounds coaching as I am very hands on, so to speak.

>I know all too well one of these days I am going to demonstrate something

>and wind up getting carted off of the field (It has happened before) but I

>can't teach without demonstrating, as there is a lot more to having a

>successful line(s) than basic blocking schemes.

>I've been eating 5 to 6 small meals a day with a lot of fruit and salad

>as I am disgusted each time I step out of the shower and see myself. I will

>have to dig up a before and after pic to give everyone a real good idea of

>what Stills did to me. Three months prior to Stills I reached

>my lifelong goal of benching over 400 lbs (405), simulated squat (leg sled)

>of 1300_ lbs for 15 reps, etc.... My neck was 22.5 " , chest was 54 " , waist

>was 35 " but I had to buy 38's as my legs wouldn't fit in the right size

>jeans! I was a rock solid 232lbs, which is incredible for someone who is

>5'7 " ! I have a goal of seeing at least 240, and if this infection keeps up

>I'll reach it in short order!

>Shortly after first getting real sick I dropped to 214 lbs....and two

>months later after being on 60mg of Prednisone daily I was over 260! This

>year I almost had a heart attack when I saw I was 304!!!!!. I'm right now

>down to 271, which is still 50 pounds to much for me. I can only hope that

>I keep feeling well enough to coach

>as it not only helps me lose weight, it keeps my mind occupied and off of

>my problems. That is why I despise winter time, as I usually don't do well

>and wind up bedridden for weeks at a time.

>I'll keep going down as long as I can! You can too!

>Kirk.

>

>On 18 August 2012 00:55, Butterfly Chaser

<mailto:butterflychaser999%40yahoo.com>wrote:

>

>> **

>>

>> Kirk,

>> I'm right there along with you wishing for that normal appearing body.

>> Illness and the taking of steroids has upped my weight by 80 lbs. I was a

>> little bit sick and dropped a few, but I sure would like this to continue.

>> If we keep on track, eat well, try to get some exercise of some calibur,

>> ha, then perhaps we can push through and at least gain our pre-illness

>> bodies back. I'll try if you do?

>>

>> Best of Luck,

>>

>> From: Kirk Bonanny <mailto:kbonanny%40gmail.com>

>> >To: mailto:Stillsdisease%40yahoogroups.com

>> >Sent: Friday, August 17, 2012 7:17 PM

>> >Subject: Re: Re: Oral Sugery/Kineret/Mouth Pain

>> >

>> >I've never had to, but I am not a Dr. I always consult my RD and do what

>> >he asks.Currently, and for the first time since I started Kineret 5+ years

>> >ago I am off of it until I finish all of the antibiotics due to 1) The

>> >staff infection that was the cause of my morphine pump removal 2) C-Dif

>> (an

>> >intestinal disorder caused by strong antibiotics that has dropped me 34lbs

>> >in a shade over 20 days! If I can lose another 40 I'll actually be where I

>> >was prior to getting whacked! I must add it has been a long time since

>> >than, and I would kill to have a normal appearing body again, even if I

>> >can't work out and run.

>> >Kirk.

>> >

>> >On 17 August 2012 21:35, paula scatton <mailto:p_scatton%40yahoo.com>

>> wrote:

>> >

>> >> **

>> >>

>> >> Hi I am happy that this subject came up. I am on Kineret for three weeks

>> >> and prednisone for 6 years. I was also wondering if i need to come off

>> the

>> >> kineret for a teeth cleaning or a filling. Can anyone offer any

>> suggestions.

>> >> a

>> >>

>> >> ________________________________

>> >> From: Don <mailto:carsontva%40yahoo.com>

>> >> To: mailto:Stillsdisease%40yahoogroups.com

>> >> Sent: Friday, August 17, 2012 3:13 AM

>> >> Subject: Re: Oral Sugery/Kineret/Mouth Pain

>> >>

>> >> well i have had stills for 8 yrs now and i have teeth that like urs have

>> >> just exploded and broken into small parts and have alaways had good

>> teeth

>> >> only 2 fillings in my life and im 45 so tink its the stills doing it

>> have

>> >> tlk to others and they have had the same

>> >>

>> >> >

>> >> > > **

>> >> > >

>> >> > > Has anyone had oral surgery while on Kineret? was there any thing

>> >> > > particular that they had to do or not do?

>> >> > >

>> >> > > Apparently my dad [very recently diagnosed with Stills] has an

>> >> infection

>> >> > > in the back of his mouth and they are possibly doing a bone scrap to

>> >> lower

>> >> > > the bone so that the tissue can grow over it more.

>> >> > > They said the gum beghind the last tooth might have been " worn

>> away " by

>> >> > > the stuff he has been eating and that he had not noticed before

>> >> because of

>> >> > > all his pain medicines... which he has only recently stopped do to

>> >> other

>> >> > > issues.

>> >> > >

>> >> > > Has anyone else had anything like this?

>> >> > >

>> >> >

>> >> > --

>> >> > Everything in life sucks except things that should!

>> >> >

August 18, 2012

Well, my major problem with winter time is that my body does not fair

well with changing weather patterns. From May through late September

(October if I really get lucky!) with the warm to hot and humid weather I

have very minimal joint pain, with the exception of my back..which is

beyond description. I not only have numerous bad discs (2 in my neck from a

snow tubing accident, 3 in my mid spine and 4 in my lower back, not too

mention arthritis throughout!) which is why I had a morphine pump implant

that had to come out last month due to a staff infection. Fortunately my

inflammation levels have been dropping and my back is half decent at this

point in time, but I'm paranoid about what the future may hold. I've

decided I'm going to attempt to go without the morphine pump, but only time

(and my body) will tell! I guess I'm really weird in that the hotter and

more humid it becomes, the better I feel! Out of my 40 or 41 resort stays,

only 4 have occurred from May through September.

My other major yet totally unresolved problem are the indescribable

headaches that I get that make eating a bullet seem appealing! I know if I

didn't have kids I would have done something stupid, but luckily I quit

feeling sorry for myself and decided to be a Father. The pain is so intense

that I've blown apart many of my teeth and the only med that will touch

them is high doses of Dilaudid! My eyes will swell almost totally shut, my

face will be flushed as if I was painted red and I'll get sever diplopia.

Now they do occasionally get bad in the summer, but nowhere near as bad as

they are in the winter. I almost always have at least a slight headache,

but once they light off I am FUBAR!

If it were up to me I'd move down south at least as far as Tn or Ga,

potentially even Al or Tx....but so long as my in-laws are alive my wife

will never agree to it. I have a cousin in San , my best friend

lives roughly 25 miles East of Nashville (great city!) and I thoroughly

enjoyed the attitude and friendliness of the people I met in Georgia back

in my military days!'

Now last winter was rather warm here which was both good and bad. It

was good as my symptoms were roughly 89% of what they normally are and I

only wound up in the resort once for 4 days. The bad was that it only

snowed enough to plow once, which killed my wallet! Figuring in the cost

of maintenance on my truck, the insurance, etc I need at least

3 plow-able snows to break even. I like it even more when I get 10 or 12,

as that money goes a long, long way! My kids love it to as I'll bring a

small snow blower, shovels and salt and I pay them rather well.

In so far as body building, my Dr's have said NO emphatically. They told

me I could do light lifting and such, but I was never happy working with

light weights. Heck, my warm up consisted of 20 minutes in a sauna, 20

minutes of stretching and than 225 lbs for 30 reps, 245 for 20, 265 for

8-10, so on and so forth. I got picked on a lot as a young kid but by the

age of 12 discovered I had amazing natural strength...pressing 195 my 1st

time ever lifting! By the time I was14 was well over 250 on the bench.

Than one day at the bust stop 3 older kids reminded me of when they rolled

me down the hill in a garbage can (filled with garbage and the lid locked

on) and I snapped! I beat the hell out of all three of them in one or two

minutes. I learned how to be passively aggressive and learned to control my

fear as time went on. The town I grew up in had fist fights every day, with

everyone trying to prove they were top dog. One after the other would start

on me as my reputation grew and there was never a shortage of them starting

on me. I'm convinced that I have an " IDIOT MAGNET " entombed in my body as

they seem to be attracted to me. One night, shortly before and I

married we were out at a nice restaurant when 2 guys started on me for

reasons which I'll never figure out. They both paid dearly in the parking

lot.

Well, I went quite a bit off track here but it kind of gives a glimpse

into my mentality back than. I've matured a bunch since than, but I doubt I

could ever walk away from a fight as the memories I have as a young boy

kick in that " feel " and " mind-set " . There is more to the story as a young

kid, but it is a horrific memory and one I don't care to discuss openly.

Just think of one of the worst things that can happen to a young boy, and

you'll probably guess right.

Kirk.

On 18 August 2012 12:47, Butterfly Chaser wrote:

> **

>

> Kirk,

> Thanks for sharing your story. I too used to work out in the gym most of

> my life. Even during pregnancy I went up to 7 months into it, but had to

> modify aerobics and a few other things. After I married my second husband,

> we spent a lot of time in the gym. He had goals and achieved some of them,

> but his body just wasn't a responder and he was a runner so he never got

> his body " built " like you did. He is gone now and it's just me. I'm

> determined and inspired to work on what this cortisone has done to me along

> with my own falling into craving foods to kill my depression. I'm on my way

> down, but not being able to add much in the form of exercise is a

> hinderence. I love how you plan to add more movement by disguising it in

> coaching. It will take your mind off of how you plan to be up on your feet,

> out there active with the kids, and what I consider the highest and

> greatest reward is what you are giving back to the community. My Dad

> coached little league,

> and he was the type of coach that you described yourself as in the way

> that he almost got booted off the field a few times. But people respected

> him for so many other things that he did do so well, that they overlooked

> his over zealeous way of sometimes getting a bit too passionate about the

> game. I believe with the perserverance you pocess that helped you to become

> what you did when you were body building, will still be what helps you take

> off the weight you are faced with now. You certainly are eating correctly

> and on track there, which is a milestone. I finally am myself, but

> yesterday was my birthday, and my family is taking me out to eat, and I

> plan on not holding anything back just for today. Okay... does anyone else

> one the group want to get on the weight loss, healthy eating train with

> Kirk and I? It is great to have a group to answer to, and someone to share

> accomplishments with. We can do it!! Maybe after summer and next winter

> comes, you

> can find yourself a winter sport or indoor activity to become involved in.

> You have time and you will be feeling so much better about yourself that

> you'll be able to look outside the box and find something that will carry

> you through the winters. Maybe even be back in the gym if that's what you

> wanted to do. Well take care and keep fighting!

>

> Will be checking in from time to time and keep posting.

>

> >To: Stillsdisease

> >Sent: Friday, August 17, 2012 10:27 PM

> >Subject: Re: Re: Oral Sugery/Kineret/Mouth Pain

> >

> >Well, this is one of the most active times of the year for me as I coach

> >youth football and have been for close to or over a dozen years..I can't

> >really recall. I truly enjoy coaching the kids, and giving back/helping

> >others is quite rewarding to me. Shit, I can't do what I want to do for

> >myself (I.E. LIFT, RUN,FIGHT, WRESTLE) so I may as well do other things I

> >am good at. I was a Head Coach in Duryea, Pa for 6 years accumulating a

> >48-6 record, and I have a lot of kids who truly respect me and ask me

> >advice on the side. THANK GOD I had my two sons! Talk about a life

> changing

> >incident, much more so than Stills. I used to be a work-a-holic and a work

> >out fanatic, and about the only time I was home was to eat, sleep and

> >shower.

> >Duryea has not had an A team for the past couple of years (Dumb kids are

> >sitting on the bench for Freshman Football, and most are 11 or 12 and in

> >7th or 8th grade! Last year I took the 3 kids that had signed up to play

> in

> >Duryea and took them to Exeter, which is where I grew up. I had one great

> >coach working with me, but the head coach and asst where both

> >totally incompetent and would lie, cheat and steal to win a game. I

> refused

> >to coach during the games, but was there for the kids and ran all of the

> >practices my way.

> >Now I was recruited by the Wilkes-Barre Bears to coach their linemen,

> >which is all I ever coached even as a Head Coach. I played both sides of

> >the line and have gone to a decent number of coaching camps to know I am

> up

> >there as far as line coaches are concerned. I don't like the way this

> >particular coach runs practices, but I am just biding my time until I can

> >get another team @ Duryea.

> >I generally lose 15+ pounds coaching as I am very hands on, so to speak.

> >I know all too well one of these days I am going to demonstrate something

> >and wind up getting carted off of the field (It has happened before) but I

> >can't teach without demonstrating, as there is a lot more to having a

> >successful line(s) than basic blocking schemes.

> >I've been eating 5 to 6 small meals a day with a lot of fruit and salad

> >as I am disgusted each time I step out of the shower and see myself. I

> will

> >have to dig up a before and after pic to give everyone a real good idea of

> >what Stills did to me. Three months prior to Stills I reached

> >my lifelong goal of benching over 400 lbs (405), simulated squat (leg

> sled)

> >of 1300_ lbs for 15 reps, etc.... My neck was 22.5 " , chest was 54 " , waist

> >was 35 " but I had to buy 38's as my legs wouldn't fit in the right size

> >jeans! I was a rock solid 232lbs, which is incredible for someone who is

> >5'7 " ! I have a goal of seeing at least 240, and if this infection keeps up

> >I'll reach it in short order!

> >Shortly after first getting real sick I dropped to 214 lbs....and two

> >months later after being on 60mg of Prednisone daily I was over 260! This

> >year I almost had a heart attack when I saw I was 304!!!!!. I'm right now

> >down to 271, which is still 50 pounds to much for me. I can only hope that

> >I keep feeling well enough to coach

> >as it not only helps me lose weight, it keeps my mind occupied and off of

> >my problems. That is why I despise winter time, as I usually don't do well

> >and wind up bedridden for weeks at a time.

> >I'll keep going down as long as I can! You can too!

> >Kirk.

> >

> >On 18 August 2012 00:55, Butterfly Chaser <mailto:

> butterflychaser999%40yahoo.com>wrote:

> >

> >> **

> >>

> >> Kirk,

> >> I'm right there along with you wishing for that normal appearing body.

> >> Illness and the taking of steroids has upped my weight by 80 lbs. I was

> a

> >> little bit sick and dropped a few, but I sure would like this to

> continue.

> >> If we keep on track, eat well, try to get some exercise of some calibur,

> >> ha, then perhaps we can push through and at least gain our pre-illness

> >> bodies back. I'll try if you do?

> >>

> >> Best of Luck,

> >>

> >> From: Kirk Bonanny <mailto:kbonanny%40gmail.com>

> >> >To: mailto:Stillsdisease%40yahoogroups.com

> >> >Sent: Friday, August 17, 2012 7:17 PM

> >> >Subject: Re: Re: Oral Sugery/Kineret/Mouth Pain

> >> >

> >> >I've never had to, but I am not a Dr. I always consult my RD and do

> what

> >> >he asks.Currently, and for the first time since I started Kineret 5+

> years

> >> >ago I am off of it until I finish all of the antibiotics due to 1) The

> >> >staff infection that was the cause of my morphine pump removal 2) C-Dif

> >> (an

> >> >intestinal disorder caused by strong antibiotics that has dropped me

> 34lbs

> >> >in a shade over 20 days! If I can lose another 40 I'll actually be

> where I

> >> >was prior to getting whacked! I must add it has been a long time since

> >> >than, and I would kill to have a normal appearing body again, even if I

> >> >can't work out and run.

> >> >Kirk.

> >> >

> >> >On 17 August 2012 21:35, paula scatton <mailto:p_scatton%40yahoo.com>

> >> wrote:

> >> >

> >> >> **

> >> >>

> >> >> Hi I am happy that this subject came up. I am on Kineret for three

> weeks

> >> >> and prednisone for 6 years. I was also wondering if i need to come

> off

> >> the

> >> >> kineret for a teeth cleaning or a filling. Can anyone offer any

> >> suggestions.

> >> >> a

> >> >>

> >> >> ________________________________

> >> >> From: Don <mailto:carsontva%40yahoo.com>

> >> >> To: mailto:Stillsdisease%40yahoogroups.com

> >> >> Sent: Friday, August 17, 2012 3:13 AM

> >> >> Subject: Re: Oral Sugery/Kineret/Mouth Pain

> >> >>

> >> >> well i have had stills for 8 yrs now and i have teeth that like urs

> have

> >> >> just exploded and broken into small parts and have alaways had good

> >> teeth

> >> >> only 2 fillings in my life and im 45 so tink its the stills doing it

> >> have

> >> >> tlk to others and they have had the same

> >> >>

> >> >> >

> >> >> > > **

> >> >> > >

> >> >> > > Has anyone had oral surgery while on Kineret? was there any thing

> >> >> > > particular that they had to do or not do?

> >> >> > >

> >> >> > > Apparently my dad [very recently diagnosed with Stills] has an

> >> >> infection

> >> >> > > in the back of his mouth and they are possibly doing a bone

> scrap to

> >> >> lower

> >> >> > > the bone so that the tissue can grow over it more.

> >> >> > > They said the gum beghind the last tooth might have been " worn

> >> away " by

> >> >> > > the stuff he has been eating and that he had not noticed before

> >> >> because of

> >> >> > > all his pain medicines... which he has only recently stopped do

> to

> >> >> other

> >> >> > > issues.

> >> >> > >

> >> >> > > Has anyone else had anything like this?

> >> >> > >

> >> >> >

> >> >> > --

> >> >> > Everything in life sucks except things that should!

> >> >> >

August 18, 2012

" Bust Stop " should have read BUS STOP and 89% should have read

80%... sorry, I usually proof read my emails a little bit better than that!

> Well, my major problem with winter time is that my body does not fair

> well with changing weather patterns. From May through late September

> (October if I really get lucky!) with the warm to hot and humid weather I

> have very minimal joint pain, with the exception of my back..which is

> beyond description. I not only have numerous bad discs (2 in my neck from a

> snow tubing accident, 3 in my mid spine and 4 in my lower back, not too

> mention arthritis throughout!) which is why I had a morphine pump implant

> that had to come out last month due to a staff infection. Fortunately my

> inflammation levels have been dropping and my back is half decent at this

> point in time, but I'm paranoid about what the future may hold. I've

> decided I'm going to attempt to go without the morphine pump, but only time

> (and my body) will tell! I guess I'm really weird in that the hotter and

> more humid it becomes, the better I feel! Out of my 40 or 41 resort stays,

> only 4 have occurred from May through September.

> My other major yet totally unresolved problem are the indescribable

> headaches that I get that make eating a bullet seem appealing! I know if I

> didn't have kids I would have done something stupid, but luckily I quit

> feeling sorry for myself and decided to be a Father. The pain is so intense

> that I've blown apart many of my teeth and the only med that will touch

> them is high doses of Dilaudid! My eyes will swell almost totally shut, my

> face will be flushed as if I was painted red and I'll get sever diplopia.

> Now they do occasionally get bad in the summer, but nowhere near as bad as

> they are in the winter. I almost always have at least a slight headache,

> but once they light off I am FUBAR!

> If it were up to me I'd move down south at least as far as Tn or Ga,

> potentially even Al or Tx....but so long as my in-laws are alive my wife

> will never agree to it. I have a cousin in San , my best friend

> lives roughly 25 miles East of Nashville (great city!) and I thoroughly

> enjoyed the attitude and friendliness of the people I met in Georgia back

> in my military days!'

> Now last winter was rather warm here which was both good and bad. It

> was good as my symptoms were roughly 89% of what they normally are and I

> only wound up in the resort once for 4 days. The bad was that it only

> snowed enough to plow once, which killed my wallet! Figuring in the cost

> of maintenance on my truck, the insurance, etc I need at least

> 3 plow-able snows to break even. I like it even more when I get 10 or 12,

> as that money goes a long, long way! My kids love it to as I'll bring a

> small snow blower, shovels and salt and I pay them rather well.

> In so far as body building, my Dr's have said NO emphatically. They

> told me I could do light lifting and such, but I was never happy working

> with light weights. Heck, my warm up consisted of 20 minutes in a sauna, 20

> minutes of stretching and than 225 lbs for 30 reps, 245 for 20, 265 for

> 8-10, so on and so forth. I got picked on a lot as a young kid but by the

> age of 12 discovered I had amazing natural strength...pressing 195 my 1st

> time ever lifting! By the time I was14 was well over 250 on the bench.

> Than one day at the bust stop 3 older kids reminded me of when they rolled

> me down the hill in a garbage can (filled with garbage and the lid locked

> on) and I snapped! I beat the hell out of all three of them in one or two

> minutes. I learned how to be passively aggressive and learned to control my

> fear as time went on. The town I grew up in had fist fights every day, with

> everyone trying to prove they were top dog. One after the other would start

> on me as my reputation grew and there was never a shortage of them starting

> on me. I'm convinced that I have an " IDIOT MAGNET " entombed in my body as

> they seem to be attracted to me. One night, shortly before and I

> married we were out at a nice restaurant when 2 guys started on me for

> reasons which I'll never figure out. They both paid dearly in the parking

> lot.

> Well, I went quite a bit off track here but it kind of gives a glimpse

> into my mentality back than. I've matured a bunch since than, but I doubt I

> could ever walk away from a fight as the memories I have as a young boy

> kick in that " feel " and " mind-set " . There is more to the story as a young

> kid, but it is a horrific memory and one I don't care to discuss openly.

> Just think of one of the worst things that can happen to a young boy, and

> you'll probably guess right.

> Kirk.

>

> On 18 August 2012 12:47, Butterfly Chaser wrote:

>

>> **

>>

>> Kirk,

>> Thanks for sharing your story. I too used to work out in the gym most of

>> my life. Even during pregnancy I went up to 7 months into it, but had to

>> modify aerobics and a few other things. After I married my second husband,

>> we spent a lot of time in the gym. He had goals and achieved some of them,

>> but his body just wasn't a responder and he was a runner so he never got

>> his body " built " like you did. He is gone now and it's just me. I'm

>> determined and inspired to work on what this cortisone has done to me along

>> with my own falling into craving foods to kill my depression. I'm on my way

>> down, but not being able to add much in the form of exercise is a

>> hinderence. I love how you plan to add more movement by disguising it in

>> coaching. It will take your mind off of how you plan to be up on your feet,

>> out there active with the kids, and what I consider the highest and

>> greatest reward is what you are giving back to the community. My Dad

>> coached little league,

>> and he was the type of coach that you described yourself as in the way

>> that he almost got booted off the field a few times. But people respected

>> him for so many other things that he did do so well, that they overlooked

>> his over zealeous way of sometimes getting a bit too passionate about the

>> game. I believe with the perserverance you pocess that helped you to become

>> what you did when you were body building, will still be what helps you take

>> off the weight you are faced with now. You certainly are eating correctly

>> and on track there, which is a milestone. I finally am myself, but

>> yesterday was my birthday, and my family is taking me out to eat, and I

>> plan on not holding anything back just for today. Okay... does anyone else

>> one the group want to get on the weight loss, healthy eating train with

>> Kirk and I? It is great to have a group to answer to, and someone to share

>> accomplishments with. We can do it!! Maybe after summer and next winter

>> comes, you

>> can find yourself a winter sport or indoor activity to become involved

>> in. You have time and you will be feeling so much better about yourself

>> that you'll be able to look outside the box and find something that will

>> carry you through the winters. Maybe even be back in the gym if that's what

>> you wanted to do. Well take care and keep fighting!

>>

>> Will be checking in from time to time and keep posting.

>>

>> >To: Stillsdisease

>> >Sent: Friday, August 17, 2012 10:27 PM

>> >Subject: Re: Re: Oral Sugery/Kineret/Mouth Pain

>> >

>> >Well, this is one of the most active times of the year for me as I coach

>> >youth football and have been for close to or over a dozen years..I can't

>> >really recall. I truly enjoy coaching the kids, and giving back/helping

>> >others is quite rewarding to me. Shit, I can't do what I want to do for

>> >myself (I.E. LIFT, RUN,FIGHT, WRESTLE) so I may as well do other things I

>> >am good at. I was a Head Coach in Duryea, Pa for 6 years accumulating a

>> >48-6 record, and I have a lot of kids who truly respect me and ask me

>> >advice on the side. THANK GOD I had my two sons! Talk about a life

>> changing

>> >incident, much more so than Stills. I used to be a work-a-holic and a

>> work

>> >out fanatic, and about the only time I was home was to eat, sleep and

>> >shower.

>> >Duryea has not had an A team for the past couple of years (Dumb kids are

>> >sitting on the bench for Freshman Football, and most are 11 or 12 and in

>> >7th or 8th grade! Last year I took the 3 kids that had signed up to play

>> in

>> >Duryea and took them to Exeter, which is where I grew up. I had one great

>> >coach working with me, but the head coach and asst where both

>> >totally incompetent and would lie, cheat and steal to win a game. I

>> refused

>> >to coach during the games, but was there for the kids and ran all of the

>> >practices my way.

>> >Now I was recruited by the Wilkes-Barre Bears to coach their linemen,

>> >which is all I ever coached even as a Head Coach. I played both sides of

>> >the line and have gone to a decent number of coaching camps to know I am

>> up

>> >there as far as line coaches are concerned. I don't like the way this

>> >particular coach runs practices, but I am just biding my time until I can

>> >get another team @ Duryea.

>> >I generally lose 15+ pounds coaching as I am very hands on, so to speak.

>> >I know all too well one of these days I am going to demonstrate something

>> >and wind up getting carted off of the field (It has happened before) but

>> I

>> >can't teach without demonstrating, as there is a lot more to having a

>> >successful line(s) than basic blocking schemes.

>> >I've been eating 5 to 6 small meals a day with a lot of fruit and salad

>> >as I am disgusted each time I step out of the shower and see myself. I

>> will

>> >have to dig up a before and after pic to give everyone a real good idea

>> of

>> >what Stills did to me. Three months prior to Stills I reached

>> >my lifelong goal of benching over 400 lbs (405), simulated squat (leg

>> sled)

>> >of 1300_ lbs for 15 reps, etc.... My neck was 22.5 " , chest was 54 " , waist

>> >was 35 " but I had to buy 38's as my legs wouldn't fit in the right size

>> >jeans! I was a rock solid 232lbs, which is incredible for someone who is

>> >5'7 " ! I have a goal of seeing at least 240, and if this infection keeps

>> up

>> >I'll reach it in short order!

>> >Shortly after first getting real sick I dropped to 214 lbs....and two

>> >months later after being on 60mg of Prednisone daily I was over 260! This

>> >year I almost had a heart attack when I saw I was 304!!!!!. I'm right now

>> >down to 271, which is still 50 pounds to much for me. I can only hope

>> that

>> >I keep feeling well enough to coach

>> >as it not only helps me lose weight, it keeps my mind occupied and off of

>> >my problems. That is why I despise winter time, as I usually don't do

>> well

>> >and wind up bedridden for weeks at a time.

>> >I'll keep going down as long as I can! You can too!

>> >Kirk.

>> >

>> >On 18 August 2012 00:55, Butterfly Chaser <mailto:

>> butterflychaser999%40yahoo.com>wrote:

>> >

>> >> **

>> >>

>> >> Kirk,

>> >> I'm right there along with you wishing for that normal appearing body.

>> >> Illness and the taking of steroids has upped my weight by 80 lbs. I

>> was a

>> >> little bit sick and dropped a few, but I sure would like this to

>> continue.

>> >> If we keep on track, eat well, try to get some exercise of some

>> calibur,

>> >> ha, then perhaps we can push through and at least gain our pre-illness

>> >> bodies back. I'll try if you do?

>> >>

>> >> Best of Luck,

>> >>

>> >> From: Kirk Bonanny <mailto:kbonanny%40gmail.com>

>> >> >To: mailto:Stillsdisease%40yahoogroups.com

>> >> >Sent: Friday, August 17, 2012 7:17 PM

>> >> >Subject: Re: Re: Oral Sugery/Kineret/Mouth Pain

>> >> >

>> >> >I've never had to, but I am not a Dr. I always consult my RD and do

>> what

>> >> >he asks.Currently, and for the first time since I started Kineret 5+

>> years

>> >> >ago I am off of it until I finish all of the antibiotics due to 1) The

>> >> >staff infection that was the cause of my morphine pump removal 2)

>> C-Dif

>> >> (an

>> >> >intestinal disorder caused by strong antibiotics that has dropped me

>> 34lbs

>> >> >in a shade over 20 days! If I can lose another 40 I'll actually be

>> where I

>> >> >was prior to getting whacked! I must add it has been a long time since

>> >> >than, and I would kill to have a normal appearing body again, even if

>> I

>> >> >can't work out and run.

>> >> >Kirk.

>> >> >

>> >> >On 17 August 2012 21:35, paula scatton <mailto:p_scatton%40yahoo.com>

>> >> wrote:

>> >> >

>> >> >> **

>> >> >>

>> >> >> Hi I am happy that this subject came up. I am on Kineret for three

>> weeks

>> >> >> and prednisone for 6 years. I was also wondering if i need to come

>> off

>> >> the

>> >> >> kineret for a teeth cleaning or a filling. Can anyone offer any

>> >> suggestions.

>> >> >> a

>> >> >>

>> >> >> ________________________________

>> >> >> From: Don <mailto:carsontva%40yahoo.com>

>> >> >> To: mailto:Stillsdisease%40yahoogroups.com

>> >> >> Sent: Friday, August 17, 2012 3:13 AM

>> >> >> Subject: Re: Oral Sugery/Kineret/Mouth Pain

>> >> >>

>> >> >> well i have had stills for 8 yrs now and i have teeth that like urs

>> have

>> >> >> just exploded and broken into small parts and have alaways had good

>> >> teeth

>> >> >> only 2 fillings in my life and im 45 so tink its the stills doing it

>> >> have

>> >> >> tlk to others and they have had the same

>> >> >>

>> >> >> >

>> >> >> > > **

>> >> >> > >

>> >> >> > > Has anyone had oral surgery while on Kineret? was there any

>> thing

>> >> >> > > particular that they had to do or not do?

>> >> >> > >

>> >> >> > > Apparently my dad [very recently diagnosed with Stills] has an

>> >> >> infection

>> >> >> > > in the back of his mouth and they are possibly doing a bone

>> scrap to

>> >> >> lower

>> >> >> > > the bone so that the tissue can grow over it more.

>> >> >> > > They said the gum beghind the last tooth might have been " worn

>> >> away " by

>> >> >> > > the stuff he has been eating and that he had not noticed before

>> >> >> because of

>> >> >> > > all his pain medicines... which he has only recently stopped do

>> to

>> >> >> other

>> >> >> > > issues.

>> >> >> > >

>> >> >> > > Has anyone else had anything like this?

>> >> >> > >

>> >> >> >

>> >> >> > --

>> >> >> > Everything in life sucks except things that should!

>> >> >> >

August 18, 2012