Guest guest Posted August 16, 2012 Report Share Posted August 16, 2012 Hi mj, I'm from Detroit, Michigan, but I'm seeing a doctor in lansing,close to Ohio idk if that helps or it would be to far -ewelina > ** > > > I was wondering if there was anyone in this group from indiana. I know > that stills is rare and drs dont know much of anything... but lately we > have felt that our current doctors have been dropping the ball. So we are > wondering if there is another doctor near that has already worked with a > Stills patient nearby. > > Thanks much > MJ > > Also thanks for your information about the Oral surgery, Because of your > answers we where not surprised that the Rheum [when he FINALLY called us] > does not want to do the surgery until Dad is more stable and able to be off > Kineret for 7 days...so thanks for your input. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2012 Report Share Posted August 16, 2012 Hi mj, I'm from Detroit, Michigan, but I'm seeing a doctor in lansing,close to Ohio idk if that helps or it would be to far -ewelina > ** > > > I was wondering if there was anyone in this group from indiana. I know > that stills is rare and drs dont know much of anything... but lately we > have felt that our current doctors have been dropping the ball. So we are > wondering if there is another doctor near that has already worked with a > Stills patient nearby. > > Thanks much > MJ > > Also thanks for your information about the Oral surgery, Because of your > answers we where not surprised that the Rheum [when he FINALLY called us] > does not want to do the surgery until Dad is more stable and able to be off > Kineret for 7 days...so thanks for your input. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2012 Report Share Posted August 16, 2012 Hi mj, I'm from Detroit, Michigan, but I'm seeing a doctor in lansing,close to Ohio idk if that helps or it would be to far -ewelina > ** > > > I was wondering if there was anyone in this group from indiana. I know > that stills is rare and drs dont know much of anything... but lately we > have felt that our current doctors have been dropping the ball. So we are > wondering if there is another doctor near that has already worked with a > Stills patient nearby. > > Thanks much > MJ > > Also thanks for your information about the Oral surgery, Because of your > answers we where not surprised that the Rheum [when he FINALLY called us] > does not want to do the surgery until Dad is more stable and able to be off > Kineret for 7 days...so thanks for your input. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2012 Report Share Posted August 16, 2012 Hi MJ...Welcome to the group, and might I add, you'll love it here~! I am from Indiana and let me say I am SO super excited that you are too...as I read your e-mail I said to my husband " OMG, there's someone else in Indiana that has Stills too! " I was diagnosed with Adult Stills in 2007, around 20 years after what I believe to be my first flare. After talking to some of the others, I also believe that my Stills is probably mild compared to some as I am currently not medicated (no insurance) and do fairly well. I had been doing very well for almost a year, just the normal joint aches and low energy, but nothing I couldn't deal with, until a few weeks ago but my body is pulling itself out slowly...I haven't been hospitalized in around 5 years or so. That stay is when I got the diagnosis. You will find so much support here in this group along with so much information...it's wonderful to have others that completely understand Stills and the things that go with it. What part of Indiana are you from? HUGS~! Angie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2012 Report Share Posted August 16, 2012 Hi MJ...Welcome to the group, and might I add, you'll love it here~! I am from Indiana and let me say I am SO super excited that you are too...as I read your e-mail I said to my husband " OMG, there's someone else in Indiana that has Stills too! " I was diagnosed with Adult Stills in 2007, around 20 years after what I believe to be my first flare. After talking to some of the others, I also believe that my Stills is probably mild compared to some as I am currently not medicated (no insurance) and do fairly well. I had been doing very well for almost a year, just the normal joint aches and low energy, but nothing I couldn't deal with, until a few weeks ago but my body is pulling itself out slowly...I haven't been hospitalized in around 5 years or so. That stay is when I got the diagnosis. You will find so much support here in this group along with so much information...it's wonderful to have others that completely understand Stills and the things that go with it. What part of Indiana are you from? HUGS~! Angie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2012 Report Share Posted August 16, 2012 We are in indianapolis and unfortunately between the office staff and the dr we are not having a great experience. do you have a regular dr that you have seen? or one that you would recommend? Happy that I have found this group.. and someone like you!! We are in the early phase so I am sure you will see many posts from me asking all sorts of questions Starting with, how are you keeping your flares down? have you changed your diet? [i have been doing a lot of research about the anti- inflammatory diet and have started changing to this but have not gotten to far since its very hard to give up all the food that we like. MJ > > Hi MJ...Welcome to the group, and might I add, you'll love it here~! I am from Indiana and let me say I am SO super excited that you are too...as I read your e-mail I said to my husband " OMG, there's someone else in Indiana that has Stills too! " I was diagnosed with Adult Stills in 2007, around 20 years after what I believe to be my first flare. After talking to some of the others, I also believe that my Stills is probably mild compared to some as I am currently not medicated (no insurance) and do fairly well. I had been doing very well for almost a year, just the normal joint aches and low energy, but nothing I couldn't deal with, until a few weeks ago but my body is pulling itself out slowly...I haven't been hospitalized in around 5 years or so. That stay is when I got the diagnosis. You will find so much support here in this group along with so much information...it's wonderful to have others that completely understand Stills and the > things that go with it. What part of Indiana are you from? > > HUGS~! Angie > > Quote Link to comment Share on other sites More sharing options...
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