Guest guest Posted August 16, 2012 Report Share Posted August 16, 2012 Hey sorry so I did things a little backwards.. heh My name is Marissa Mack aka MJ or mjays My father was recently diagnosed with Stills [official date August 1st 2012] His rash started in may and they treated it with a prednisone pack because they thought it was poison ivy or other ivy. When it came back again they gave him another zip pack of prednisone.On the morning of July 3rd my dad's left foot hurt, bruised like.. but not enough to stop him from going to work. Mid-morning his foot pained him more and he stopped work and iced it. After 20 minutes of resting the pain didn't let up so he went into the clinic at his work. The dr there did not see anything but decided to take X-rays. The X-rays showed nothing and they sent him home to rest. The next morning when he woke he felt like he was buried in sand and could not move. After several minutes of figuring out if he was dreaming/hallucinating he woke my mother to help him get out of bed. That day he spent in pain while we continued with the Fourth of July festivities. At 7am July 5th, he felt that the amount of pain and the inability to walk was merit to go to the ER. He was admitted and they immediately started him on Hydrocodon and very high doses of prednazone. They did several blood tests and sent him home on Tuesday July 10th with pain medication and prednisone. On Thursday July 12th, He saw a rheumatologist for the first time and it was at that time that they took 17 vials of blood to run 30 different tests to rule out everything. He spent the weekend at home suffering with a lot of pain and finally decided to go back in to the hospital Sunday July 15th at 10pm. This time they took a CT scan and spinal tap, they also took a skin sample on a bug bite and some fluid from his knee but nothing came back positive. During this whole time he argued that Prednisone was making his symptoms worse though the drs disagreed. At some point they all agreed overall his problem fit Adult Onset Stills and started daily Kineret. So thats pretty much where we are now... working on figuring out if his liver problem is a result from all the medication or from Stills. Currently he is only on a daily shot of Kineret and over the counter Ibuprofen for his on going headaches. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2012 Report Share Posted August 17, 2012 Welcome, MJ. This story sounds familiar...to many here, I am sure. Sent from my Verizon Wireless Droid Introduction Hey sorry so I did things a little backwards.. heh My name is Marissa Mack aka MJ or mjays My father was recently diagnosed with Stills [official date August 1st 2012] His rash started in may and they treated it with a prednisone pack because they thought it was poison ivy or other ivy. When it came back again they gave him another zip pack of prednisone.On the morning of July 3rd my dad's left foot hurt, bruised like.. but not enough to stop him from going to work. Mid-morning his foot pained him more and he stopped work and iced it. After 20 minutes of resting the pain didn't let up so he went into the clinic at his work. The dr there did not see anything but decided to take X-rays. The X-rays showed nothing and they sent him home to rest. The next morning when he woke he felt like he was buried in sand and could not move. After several minutes of figuring out if he was dreaming/hallucinating he woke my mother to help him get out of bed. That day he spent in pain while we continued with the Fourth of July festivities. At 7am July 5th, he felt that the amount of pain and the inability to walk was merit to go to the ER. He was admitted and they immediately started him on Hydrocodon and very high doses of prednazone. They did several blood tests and sent him home on Tuesday July 10th with pain medication and prednisone. On Thursday July 12th, He saw a rheumatologist for the first time and it was at that time that they took 17 vials of blood to run 30 different tests to rule out everything. He spent the weekend at home suffering with a lot of pain and finally decided to go back in to the hospital Sunday July 15th at 10pm. This time they took a CT scan and spinal tap, they also took a skin sample on a bug bite and some fluid from his knee but nothing came back positive. During this whole time he argued that Prednisone was making his symptoms worse though the drs disagreed. At some point they all agreed overall his problem fit Adult Onset Stills and started daily Kineret. So thats pretty much where we are now... working on figuring out if his liver problem is a result from all the medication or from Stills. Currently he is only on a daily shot of Kineret and over the counter Ibuprofen for his on going headaches. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2012 Report Share Posted August 17, 2012 Welcome, MJ. This story sounds familiar...to many here, I am sure. Sent from my Verizon Wireless Droid Introduction Hey sorry so I did things a little backwards.. heh My name is Marissa Mack aka MJ or mjays My father was recently diagnosed with Stills [official date August 1st 2012] His rash started in may and they treated it with a prednisone pack because they thought it was poison ivy or other ivy. When it came back again they gave him another zip pack of prednisone.On the morning of July 3rd my dad's left foot hurt, bruised like.. but not enough to stop him from going to work. Mid-morning his foot pained him more and he stopped work and iced it. After 20 minutes of resting the pain didn't let up so he went into the clinic at his work. The dr there did not see anything but decided to take X-rays. The X-rays showed nothing and they sent him home to rest. The next morning when he woke he felt like he was buried in sand and could not move. After several minutes of figuring out if he was dreaming/hallucinating he woke my mother to help him get out of bed. That day he spent in pain while we continued with the Fourth of July festivities. At 7am July 5th, he felt that the amount of pain and the inability to walk was merit to go to the ER. He was admitted and they immediately started him on Hydrocodon and very high doses of prednazone. They did several blood tests and sent him home on Tuesday July 10th with pain medication and prednisone. On Thursday July 12th, He saw a rheumatologist for the first time and it was at that time that they took 17 vials of blood to run 30 different tests to rule out everything. He spent the weekend at home suffering with a lot of pain and finally decided to go back in to the hospital Sunday July 15th at 10pm. This time they took a CT scan and spinal tap, they also took a skin sample on a bug bite and some fluid from his knee but nothing came back positive. During this whole time he argued that Prednisone was making his symptoms worse though the drs disagreed. At some point they all agreed overall his problem fit Adult Onset Stills and started daily Kineret. So thats pretty much where we are now... working on figuring out if his liver problem is a result from all the medication or from Stills. Currently he is only on a daily shot of Kineret and over the counter Ibuprofen for his on going headaches. Quote Link to comment Share on other sites More sharing options...
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