Re: Oral Sugery/Kineret/Mouth Pain

[Guest guest]

Hi Mack,

It's in San Diego? How are you and family?  So Dad has to have oral

surgery. The best thing to do is ask the doctor about whether he needs to stop

his Kinert for a time before during or after the oral surgery. Since this drug

supresses the immune system, whenever my daughter (30 years old with Still's),

gets a virus, cold, infection, surgery, her doctor takes her off Kineret so that

her body can heal itself.  Also whenever she takes an antibiotic. It may not

apply for your Dad that he needs to go off of it or it may depending on what the

doctor thinks in this situation. There are more factors to weigh also that only

a doctor can come up with.

 

Otherwise, welcome to the group. It's nice to see you posint emails. I missed

chat the other night as I was hospitalized myself last week for a virus and my

adrenal insufficiency was activated and I had an adrenal crisis to go along with

it. I'm doing much better and my energy is coming back. I hated the hospital.

I'm so glad to be home.

 

Good Luck to you and hope others answer back to your post also so that you have

as many opinions as you can get. Everyone here is so nice and compassionate. You

will love the support and know that you can come anytime with any problem to us.

 

Do I call you Mack?

 

Sending healing thoughts your way, and I am praying for your Dad,

>To: Stillsdisease

>Sent: Thursday, August 16, 2012 8:42 AM

>Subject: Oral Sugery/Kineret/Mouth Pain

>

>

> 

>Has anyone had oral surgery while on Kineret? was there any thing particular

that they had to do or not do?

>

>Apparently my dad [very recently diagnosed with Stills] has an infection in the

back of his mouth and they are possibly doing a bone scrap to lower the bone so

that the tissue can grow over it more.

>They said the gum beghind the last tooth might have been " worn away " by the

stuff he has been eating and that he had not noticed before because of all his

pain medicines... which he has only recently stopped do to other issues.

>

>Has anyone else had anything like this?

>

>

>

>

>

[Guest guest]

Hi Mack,

It's in San Diego? How are you and family?  So Dad has to have oral

surgery. The best thing to do is ask the doctor about whether he needs to stop

his Kinert for a time before during or after the oral surgery. Since this drug

supresses the immune system, whenever my daughter (30 years old with Still's),

gets a virus, cold, infection, surgery, her doctor takes her off Kineret so that

her body can heal itself.  Also whenever she takes an antibiotic. It may not

apply for your Dad that he needs to go off of it or it may depending on what the

doctor thinks in this situation. There are more factors to weigh also that only

a doctor can come up with.

 

Otherwise, welcome to the group. It's nice to see you posint emails. I missed

chat the other night as I was hospitalized myself last week for a virus and my

adrenal insufficiency was activated and I had an adrenal crisis to go along with

it. I'm doing much better and my energy is coming back. I hated the hospital.

I'm so glad to be home.

 

Good Luck to you and hope others answer back to your post also so that you have

as many opinions as you can get. Everyone here is so nice and compassionate. You

will love the support and know that you can come anytime with any problem to us.

 

Do I call you Mack?

 

Sending healing thoughts your way, and I am praying for your Dad,

>To: Stillsdisease

>Sent: Thursday, August 16, 2012 8:42 AM

>Subject: Oral Sugery/Kineret/Mouth Pain

>

>

> 

>Has anyone had oral surgery while on Kineret? was there any thing particular

that they had to do or not do?

>

>Apparently my dad [very recently diagnosed with Stills] has an infection in the

back of his mouth and they are possibly doing a bone scrap to lower the bone so

that the tissue can grow over it more.

>They said the gum beghind the last tooth might have been " worn away " by the

stuff he has been eating and that he had not noticed before because of all his

pain medicines... which he has only recently stopped do to other issues.

>

>Has anyone else had anything like this?

>

>

>

>

>

[Guest guest]

Hi Mack,

It's in San Diego? How are you and family?  So Dad has to have oral

surgery. The best thing to do is ask the doctor about whether he needs to stop

his Kinert for a time before during or after the oral surgery. Since this drug

supresses the immune system, whenever my daughter (30 years old with Still's),

gets a virus, cold, infection, surgery, her doctor takes her off Kineret so that

her body can heal itself.  Also whenever she takes an antibiotic. It may not

apply for your Dad that he needs to go off of it or it may depending on what the

doctor thinks in this situation. There are more factors to weigh also that only

a doctor can come up with.

 

Otherwise, welcome to the group. It's nice to see you posint emails. I missed

chat the other night as I was hospitalized myself last week for a virus and my

adrenal insufficiency was activated and I had an adrenal crisis to go along with

it. I'm doing much better and my energy is coming back. I hated the hospital.

I'm so glad to be home.

 

Good Luck to you and hope others answer back to your post also so that you have

as many opinions as you can get. Everyone here is so nice and compassionate. You

will love the support and know that you can come anytime with any problem to us.

 

Do I call you Mack?

 

Sending healing thoughts your way, and I am praying for your Dad,

>To: Stillsdisease

>Sent: Thursday, August 16, 2012 8:42 AM

>Subject: Oral Sugery/Kineret/Mouth Pain

>

>

> 

>Has anyone had oral surgery while on Kineret? was there any thing particular

that they had to do or not do?

>

>Apparently my dad [very recently diagnosed with Stills] has an infection in the

back of his mouth and they are possibly doing a bone scrap to lower the bone so

that the tissue can grow over it more.

>They said the gum beghind the last tooth might have been " worn away " by the

stuff he has been eating and that he had not noticed before because of all his

pain medicines... which he has only recently stopped do to other issues.

>

>Has anyone else had anything like this?

>

>

>

>

>

[Guest guest]

Hello,

I didn’t get your name but think this may be MJ? Either way, I did have oral

surgery when on medications years ago. I always had to be pre-medicated because

of steroids and then after joint replacements. I cannot say what your Father’s

dentist or rheumatologist would recommend about his Mtx. I did have three teeth

removed in the early years of onset and over the years after the gums receded.

After I have had dentures a few years I started having extreme pain when biting

down in that area. My dentist said that the nerves where so close to the surface

and what was causing the pain. He sanded down my false plate and that helped

some. I cannot eat much on that side of my mouth though. Replacing gum tissue

was never discussed with me. I don’t even know if there would be enough.

So, that is my experience that may be similar, I’m not sure. I wish your dad the

best.

Good day,

From: mack_bond_007

Subject: Oral Sugery/Kineret/Mouth Pain

Has anyone had oral surgery while on Kineret? was there any thing particular

that they had to do or not do?

Apparently my dad [very recently diagnosed with Stills] has an infection in the

back of his mouth and they are possibly doing a bone scrap to lower the bone so

that the tissue can grow over it more.

They said the gum beghind the last tooth might have been " worn away " by the

stuff he has been eating and that he had not noticed before because of all his

pain medicines... which he has only recently stopped do to other issues.

Has anyone else had anything like this?

[Guest guest]

Hello,

I didn’t get your name but think this may be MJ? Either way, I did have oral

surgery when on medications years ago. I always had to be pre-medicated because

of steroids and then after joint replacements. I cannot say what your Father’s

dentist or rheumatologist would recommend about his Mtx. I did have three teeth

removed in the early years of onset and over the years after the gums receded.

After I have had dentures a few years I started having extreme pain when biting

down in that area. My dentist said that the nerves where so close to the surface

and what was causing the pain. He sanded down my false plate and that helped

some. I cannot eat much on that side of my mouth though. Replacing gum tissue

was never discussed with me. I don’t even know if there would be enough.

So, that is my experience that may be similar, I’m not sure. I wish your dad the

best.

Good day,

From: mack_bond_007

Subject: Oral Sugery/Kineret/Mouth Pain

Has anyone had oral surgery while on Kineret? was there any thing particular

that they had to do or not do?

Apparently my dad [very recently diagnosed with Stills] has an infection in the

back of his mouth and they are possibly doing a bone scrap to lower the bone so

that the tissue can grow over it more.

They said the gum beghind the last tooth might have been " worn away " by the

stuff he has been eating and that he had not noticed before because of all his

pain medicines... which he has only recently stopped do to other issues.

Has anyone else had anything like this?

[Guest guest]

Hello,

I didn’t get your name but think this may be MJ? Either way, I did have oral

surgery when on medications years ago. I always had to be pre-medicated because

of steroids and then after joint replacements. I cannot say what your Father’s

dentist or rheumatologist would recommend about his Mtx. I did have three teeth

removed in the early years of onset and over the years after the gums receded.

After I have had dentures a few years I started having extreme pain when biting

down in that area. My dentist said that the nerves where so close to the surface

and what was causing the pain. He sanded down my false plate and that helped

some. I cannot eat much on that side of my mouth though. Replacing gum tissue

was never discussed with me. I don’t even know if there would be enough.

So, that is my experience that may be similar, I’m not sure. I wish your dad the

best.

Good day,

From: mack_bond_007

Subject: Oral Sugery/Kineret/Mouth Pain

Has anyone had oral surgery while on Kineret? was there any thing particular

that they had to do or not do?

Apparently my dad [very recently diagnosed with Stills] has an infection in the

back of his mouth and they are possibly doing a bone scrap to lower the bone so

that the tissue can grow over it more.

They said the gum beghind the last tooth might have been " worn away " by the

stuff he has been eating and that he had not noticed before because of all his

pain medicines... which he has only recently stopped do to other issues.

Has anyone else had anything like this?

[Guest guest]

I've broken many of the teeth in my mouth (a few were literally exploded)

due to my bad habit of clinching my jaw when in tremendous pain due to the

damn headaches I get that no one has an answer for. I've had a few teeth

that were way beyond saving and had them extracted while on Kineret with no

adverse effects. One tooth was so destroyed they had to surgically remove

the pieces. The part that makes me sick is that I always had a very nice

set of teeth, and like most everything else in my life...those days are

gone!

Kirk.

> **

>

>

> Has anyone had oral surgery while on Kineret? was there any thing

> particular that they had to do or not do?

>

> Apparently my dad [very recently diagnosed with Stills] has an infection

> in the back of his mouth and they are possibly doing a bone scrap to lower

> the bone so that the tissue can grow over it more.

> They said the gum beghind the last tooth might have been " worn away " by

> the stuff he has been eating and that he had not noticed before because of

> all his pain medicines... which he has only recently stopped do to other

> issues.

>

> Has anyone else had anything like this?

>

>

>

--

Everything in life sucks except things that should!

[Guest guest]

well i have had stills for 8 yrs now and i have teeth that like urs have just

exploded and broken into small parts and have alaways had good teeth only 2

fillings in my life and im 45 so tink its the stills doing it have tlk to others

and they have had the same

>

> > **

> >

> >

> > Has anyone had oral surgery while on Kineret? was there any thing

> > particular that they had to do or not do?

> >

> > Apparently my dad [very recently diagnosed with Stills] has an infection

> > in the back of his mouth and they are possibly doing a bone scrap to lower

> > the bone so that the tissue can grow over it more.

> > They said the gum beghind the last tooth might have been " worn away " by

> > the stuff he has been eating and that he had not noticed before because of

> > all his pain medicines... which he has only recently stopped do to other

> > issues.

> >

> > Has anyone else had anything like this?

> >

> >

> >

>

>

>

> --

> Everything in life sucks except things that should!

>

>

>

[Guest guest]

well i have had stills for 8 yrs now and i have teeth that like urs have just

exploded and broken into small parts and have alaways had good teeth only 2

fillings in my life and im 45 so tink its the stills doing it have tlk to others

and they have had the same

>

> > **

> >

> >

> > Has anyone had oral surgery while on Kineret? was there any thing

> > particular that they had to do or not do?

> >

> > Apparently my dad [very recently diagnosed with Stills] has an infection

> > in the back of his mouth and they are possibly doing a bone scrap to lower

> > the bone so that the tissue can grow over it more.

> > They said the gum beghind the last tooth might have been " worn away " by

> > the stuff he has been eating and that he had not noticed before because of

> > all his pain medicines... which he has only recently stopped do to other

> > issues.

> >

> > Has anyone else had anything like this?

> >

> >

> >

>

>

>

> --

> Everything in life sucks except things that should!

>

>

>

[Guest guest]

well i have had stills for 8 yrs now and i have teeth that like urs have just

exploded and broken into small parts and have alaways had good teeth only 2

fillings in my life and im 45 so tink its the stills doing it have tlk to others

and they have had the same

>

> > **

> >

> >

> > Has anyone had oral surgery while on Kineret? was there any thing

> > particular that they had to do or not do?

> >

> > Apparently my dad [very recently diagnosed with Stills] has an infection

> > in the back of his mouth and they are possibly doing a bone scrap to lower

> > the bone so that the tissue can grow over it more.

> > They said the gum beghind the last tooth might have been " worn away " by

> > the stuff he has been eating and that he had not noticed before because of

> > all his pain medicines... which he has only recently stopped do to other

> > issues.

> >

> > Has anyone else had anything like this?

> >

> >

> >

>

>

>

> --

> Everything in life sucks except things that should!

>

>

>