Re: [Fwd: [TRNSPLNT] new member]

[Guest guest]

My Dr. also told me that it would not return. It is very scary to think you

would go through all of the transplant stuff and then have it reoccur(sp?).

About the prednisone, I have a friend that had a kidney transplant as a

child, and she is still on prednisone. She's now in her late 30s or early

40s.

Dayna

[Fwd: [TRNSPLNT] new member]

>This is the first I have heard of PSC returning . Does anyone on this

>list know more about it. in Winnipeg

>

>

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[Guest guest]

Like Roy, I have heard of isolated cases of PSC recurring after

transplant, but also comments that its " lucky " to have liver

failure caused by PSC because it has a very low recurrance rate

compared to other liver diseases. (We'd be luckier not to need a

transplant at all!)

Tim

--- Roy Toutant wrote:

> While I don't have exact statistics, I have heard from and

> read about a few PSC patients who have had their disease come

> back some years after transplant. However this finding is

> somewhat controversial since it is hard to tell whether they

> have PSC or rejection or some other problem.

>

> I think the majority of PSC transplant patients do not recur

> after transplant, however.

>

> This falls under the category of things you can't do anything

> about so why worry about it.

>

> Many Hepatitis patients have recurring disease after

> transplant.

>

> Roy T.

>

>

> ----- Original Message -----

>

> > My Dr. also told me that it would not return. It is very

> scary to think you

> > would go through all of the transplant stuff and then have

it

> reoccur(sp?).

> > -----Original Message-----

> >

> > Date: Friday, November 12, 1999 11:47 AM

> > >This is the first I have heard of PSC returning . Does

> anyone on this list know more about it. in Winnipeg

=====

__________________________________________________

[Guest guest]

Like Roy, I have heard of isolated cases of PSC recurring after

transplant, but also comments that its " lucky " to have liver

failure caused by PSC because it has a very low recurrance rate

compared to other liver diseases. (We'd be luckier not to need a

transplant at all!)

Tim

--- Roy Toutant wrote:

> While I don't have exact statistics, I have heard from and

> read about a few PSC patients who have had their disease come

> back some years after transplant. However this finding is

> somewhat controversial since it is hard to tell whether they

> have PSC or rejection or some other problem.

>

> I think the majority of PSC transplant patients do not recur

> after transplant, however.

>

> This falls under the category of things you can't do anything

> about so why worry about it.

>

> Many Hepatitis patients have recurring disease after

> transplant.

>

> Roy T.

>

>

> ----- Original Message -----

>

> > My Dr. also told me that it would not return. It is very

> scary to think you

> > would go through all of the transplant stuff and then have

it

> reoccur(sp?).

> > -----Original Message-----

> >

> > Date: Friday, November 12, 1999 11:47 AM

> > >This is the first I have heard of PSC returning . Does

> anyone on this list know more about it. in Winnipeg

=====

__________________________________________________

[Guest guest]

Tim Do you have any suggestions where I could look to find out

Statistics or facts on PSC returning.Thanks

[Guest guest]

please remove my nameand email address from your egroups thanks

[Guest guest]

Wouldn't it be logical that when auto nuclear antibodies are present and

attacking the immune system that those ana's would still be there hard at

work after a transplant?

[Fwd: [TRNSPLNT] new member]

> >

> >

> > >This is the first I have heard of PSC returning . Does anyone on this

> > >list know more about it. in Winnipeg

[Guest guest]

Wouldn't it be logical that when auto nuclear antibodies are present and

attacking the immune system that those ana's would still be there hard at

work after a transplant?

[Fwd: [TRNSPLNT] new member]

> >

> >

> > >This is the first I have heard of PSC returning . Does anyone on this

> > >list know more about it. in Winnipeg