Hailey Grummons

[Guest guest]

Hello, my name is Hailey Grummons.

I'm 17 years old and recently I was diagnosed with stills disease.

Here's my story:

About a month ago I was completely fine, I was folding laundry and sitting on my

bed and I look down and I notice a weird strange rash on my inner thighs. I

told/showed my mom and she assumed it was just chap from the summer heat or ring

worm I had picked up from the new kittens we had just rescued. But by the end of

the day the rash had covered my legs completely. She took me to the ER that

night (Sunday) unsure what it was. They told me I was having an allergic

reaction to a medication that I took (assuming I was some kind of druggy

teenager and took something illegal) but I hadn't taken anything at all, not

even aspirin. The put me on steroids and sent me home. I was attending Summer

School to get some courses out of the way, so I went to school the next day and

felt fine, I just wore long pants to cover up the rash. Tuesday morning I still

felt fine, after school I to visit my boyfriend at his house and stayed there

until later on that night when my

lower back out of random started hurting unbearably. Wednesday I woke up and my

entire body felt broken. So I stayed home from school and rested to see if it

would help. Thursday I had to go back to school because if I missed anymore I

would be expelled and wouldn't get my credit. It was torture. I made my

boyfriend pick me up from school that day and I went to his house so I could

have someone take care of me since my mom was at work until 9. At nine my mom

called to say she was on her way to pick me up and I told her, " Okay but you're

going to have to help me walk. " And she just said, " That's it, I'm taking you

back to the ER. "

    This time I had a virus and was told to go home drink plenty of fluids and

stay in bed. So that's what I did, and so starts the fever spikes. My fever got

up to about 105 and my mom had enough, she demanded for another opinion. So she

took me to my Pediatrician and she diagnosed me with Cowasocki's, her cure again

was bed rest. Three weeks of constant fever slightly controlled by Tylenol and

Motrin, my mother was done. She took me back to the ER and ran some test and

there final solution was that I had a bladder infection and that's what was

causing all of this....?

    I went home and two nights later she took me to children's medical in

Dallas. They admitted and for an entire week I had a team of about 15 doctors

trying to figure out what was wrong with me. For once I had hope. (:

The Rheumatologist diagnosed me with stills disease. I was prescribed to take

..67 milliliters of a shot of Kineret once a day, everyday.

I've been home and taking the shots as directed for 3 weeks now. But right now

I'm in the middle of a relapse, and my hope jar feels almost empty and right now

I'm looking for the comfort and understanding that my family and friends can't

give me because they aren't or haven't gone through this been for.

[Guest guest]

Thanks so much (,: I wish you the same as well (:

>

> > **

> >

> >

> > Hello, my name is Hailey Grummons.

> > I'm 17 years old and recently I was diagnosed with stills disease.

> >

> > Here's my story:

> > About a month ago I was completely fine, I was folding laundry and sitting

> > on my bed and I look down and I notice a weird strange rash on my inner

> > thighs. I told/showed my mom and she assumed it was just chap from the

> > summer heat or ring worm I had picked up from the new kittens we had just

> > rescued. But by the end of the day the rash had covered my legs completely.

> > She took me to the ER that night (Sunday) unsure what it was. They told me

> > I was having an allergic reaction to a medication that I took (assuming I

> > was some kind of druggy teenager and took something illegal) but I hadn't

> > taken anything at all, not even aspirin. The put me on steroids and sent me

> > home. I was attending Summer School to get some courses out of the way, so

> > I went to school the next day and felt fine, I just wore long pants to

> > cover up the rash. Tuesday morning I still felt fine, after school I to

> > visit my boyfriend at his house and stayed there until later on that night

> > when my

> > lower back out of random started hurting unbearably. Wednesday I woke up

> > and my entire body felt broken. So I stayed home from school and rested to

> > see if it would help. Thursday I had to go back to school because if I

> > missed anymore I would be expelled and wouldn't get my credit. It was

> > torture. I made my boyfriend pick me up from school that day and I went to

> > his house so I could have someone take care of me since my mom was at work

> > until 9. At nine my mom called to say she was on her way to pick me up and

> > I told her, " Okay but you're going to have to help me walk. " And she just

> > said, " That's it, I'm taking you back to the ER. "

> >

> > This time I had a virus and was told to go home drink plenty of fluids

> > and stay in bed. So that's what I did, and so starts the fever spikes. My

> > fever got up to about 105 and my mom had enough, she demanded for another

> > opinion. So she took me to my Pediatrician and she diagnosed me with

> > Cowasocki's, her cure again was bed rest. Three weeks of constant fever

> > slightly controlled by Tylenol and Motrin, my mother was done. She took me

> > back to the ER and ran some test and there final solution was that I had a

> > bladder infection and that's what was causing all of this....?

> > I went home and two nights later she took me to children's medical in

> > Dallas. They admitted and for an entire week I had a team of about 15

> > doctors trying to figure out what was wrong with me. For once I had hope.

> > (:

> >

> > The Rheumatologist diagnosed me with stills disease. I was prescribed to

> > take .67 milliliters of a shot of Kineret once a day, everyday.

> > I've been home and taking the shots as directed for 3 weeks now. But right

> > now I'm in the middle of a relapse, and my hope jar feels almost empty and

> > right now I'm looking for the comfort and understanding that my family and

> > friends can't give me because they aren't or haven't gone through this been

> > for.

> >

> >

[Guest guest]

Hailey...Sorry, but I disagree with what your mom is telling you. If you push

yourself too much, you will stress your body. You need a great rheumatologist,

lots of rest-low stress, fuel food and the right meds for you. Whether the med

for your inflammation might be Prednisone or something else is something only

your doc can decide. Steroids sometimes are a very necessary evil.

Hadleigh, my daughter, was diagnosed with a very severe case of Systemic

Juvenile Idiopathic Arthritis at 14 and is now almost 24. (Basically, Stills

diagnosed before the age of 16) She has been through Hell, but is better. Yes,

she and I live together....Thankfully, we are friends. I try to take extra

stress from her each day. This is a serious illness.

You need to do a lot of research on the disease and the med choices. I hope

that you live near a great medical facility and like your doc.

Take good care...

Re: Hailey Grummons

Yeah, some days are wayy worse then others.. and still living with my mom she's

always pushing me,

" Hailey let's go to the mall, your doctor said you need to move and walk

around. "

" Hailey you need to start getting back into the hang of things, start cleaning

up again. "

blah blah blahhh.

When in reality before I got sick all I ever did was clean up after her my

brothers and my grandparents.. but I just can't do it anymore... and she just

doesn't understand...