Re: Stents - Difference of Opinions

[Guest guest]

Irene,

My name is Tom, ( 's Husband - dx ' 94 ). I had very little

confidence in the stent progrom up until August this year. My doc was

setting up another ERCP for me when he brought up the stent-thing again. Up

until then the research that was done showed very little possitive direction

with the stent. Mainly because they became permanent and most bodies

rejected them. I reminded my doc of our past conversations regarding the

stent, when he brought it up again during this appointment. Thats when I

discovered that technology came into play, and they've, (the stents), have

become removable. Their, (my doctors), intent was not to put one in, but a

complication appeared when they poked a hole in my duct and couldn't risk the

balloon. They had no choice. I scheduled the removal 3 weeks later, but I

didn't last that long. My body started rejecting the stent with-in the first

2 weeks,(not an easy feeling).

Anyway, the stent worked and I feel pretty good that what they did was

in the best direction for me and its made me very aware that the technology

out there is in a strong direction towards finding a fix, or at least easing

some of the simptoms. I hope I've helped in some little way to answer your

concern from my experience. Please let me know if you have any questions.

Keep smiling!

Tom

[Guest guest]

I must have missed the previous notes. I am

curious about the stent, what kind of stent are

you speaking of?

I just had another G.I Bleed, I was in the

hospital again with Gastrophy and esophageal

varices (grade 2 and 3). They did several

ultrasounds looking for a blood clot for the

cause, but found none. One of the G.I doctors

talked about a stent to help the blood flow back

to my heart with out causing so much pressure and

making the varices bleed. My G.I./Hep decided to

put me on Inderal (a beta blocker) I think this is

suppose to thin my blood and make the return trip

to my heart easier. I used to pride myself on how

smart I was about my disease, now I realize I

don't know anything and my confusion doesn't help.

Is anybody else on Inderal for this reason? I now

take 8 drugs and I am pre transplant. I am

considering a chart for medicines. The Inderal or

something is making me nauseated. Normally I don't

get nauseated. So this is new too. I have my

transplant mandatory meeting in three days. They

tell you everything to expect and you get to meet

patients post transplant too. Up till know

I have been ignoring the fact I made it on the

list. I still haven't given anyone my phone

numbers etc. (slight denial). I expect to catch

hell on Wednesday about that. I am overwhelmed and

nauseated today so forgive my spouting off.

Regards,

Beth Ann Dalrymple

DUXTER@... wrote:

>

> Irene,

> My name is Tom, ( 's Husband - dx ' 94 ). I had very little

> confidence in the stent progrom up until August this year. My doc was

> setting up another ERCP for me when he brought up the stent-thing again. Up

> until then the research that was done showed very little possitive direction

> with the stent. Mainly because they became permanent and most bodies

> rejected them. I reminded my doc of our past conversations regarding the

> stent, when he brought it up again during this appointment. Thats when I

> discovered that technology came into play, and they've, (the stents), have

> become removable. Their, (my doctors), intent was not to put one in, but a

> complication appeared when they poked a hole in my duct and couldn't risk the

> balloon. They had no choice. I scheduled the removal 3 weeks later, but I

> didn't last that long. My body started rejecting the stent with-in the first

> 2 weeks,(not an easy feeling).

> Anyway, the stent worked and I feel pretty good that what they did was

> in the best direction for me and its made me very aware that the technology

> out there is in a strong direction towards finding a fix, or at least easing

> some of the simptoms. I hope I've helped in some little way to answer your

> concern from my experience. Please let me know if you have any questions.

> Keep smiling!

> Tom

>

>

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>

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[Guest guest]

I must have missed the previous notes. I am

curious about the stent, what kind of stent are

you speaking of?

I just had another G.I Bleed, I was in the

hospital again with Gastrophy and esophageal

varices (grade 2 and 3). They did several

ultrasounds looking for a blood clot for the

cause, but found none. One of the G.I doctors

talked about a stent to help the blood flow back

to my heart with out causing so much pressure and

making the varices bleed. My G.I./Hep decided to

put me on Inderal (a beta blocker) I think this is

suppose to thin my blood and make the return trip

to my heart easier. I used to pride myself on how

smart I was about my disease, now I realize I

don't know anything and my confusion doesn't help.

Is anybody else on Inderal for this reason? I now

take 8 drugs and I am pre transplant. I am

considering a chart for medicines. The Inderal or

something is making me nauseated. Normally I don't

get nauseated. So this is new too. I have my

transplant mandatory meeting in three days. They

tell you everything to expect and you get to meet

patients post transplant too. Up till know

I have been ignoring the fact I made it on the

list. I still haven't given anyone my phone

numbers etc. (slight denial). I expect to catch

hell on Wednesday about that. I am overwhelmed and

nauseated today so forgive my spouting off.

Regards,

Beth Ann Dalrymple

DUXTER@... wrote:

>

> Irene,

> My name is Tom, ( 's Husband - dx ' 94 ). I had very little

> confidence in the stent progrom up until August this year. My doc was

> setting up another ERCP for me when he brought up the stent-thing again. Up

> until then the research that was done showed very little possitive direction

> with the stent. Mainly because they became permanent and most bodies

> rejected them. I reminded my doc of our past conversations regarding the

> stent, when he brought it up again during this appointment. Thats when I

> discovered that technology came into play, and they've, (the stents), have

> become removable. Their, (my doctors), intent was not to put one in, but a

> complication appeared when they poked a hole in my duct and couldn't risk the

> balloon. They had no choice. I scheduled the removal 3 weeks later, but I

> didn't last that long. My body started rejecting the stent with-in the first

> 2 weeks,(not an easy feeling).

> Anyway, the stent worked and I feel pretty good that what they did was

> in the best direction for me and its made me very aware that the technology

> out there is in a strong direction towards finding a fix, or at least easing

> some of the simptoms. I hope I've helped in some little way to answer your

> concern from my experience. Please let me know if you have any questions.

> Keep smiling!

> Tom

>

>

> ------------------------------------------------------------------------

> Accurate impartial advice on everything from laptops to tablesaws.

> http://clickhere./click/1701

>

> -- Create a poll/survey for your group!

> -- /vote?listname= & m=1

[Guest guest]

Beth Ann,

Thanks for sharing. Never apologize for sharing. Make sure that you

don't go through this alone. Keep up posted, and if you need special

mercy to get through this new stage let us know what we can do or how

we can pray.

Dan

beth ann dalrymple wrote:

original article:/group//?start=7133

> I must have missed the previous notes. I am

> curious about the stent, what kind of stent are

> you speaking of?

>

> I just had another G.I Bleed, I was in the

> hospital again with Gastrophy and esophageal

> varices (grade 2 and 3). They did several

> ultrasounds looking for a blood clot for the

> cause, but found none. One of the G.I doctors

> talked about a stent to help the blood flow back

> to my heart with out causing so much pressure and

> making the varices bleed. My G.I./Hep decided to

> put me on Inderal (a beta blocker) I think this is

> suppose to thin my blood and make the return trip

> to my heart easier. I used to pride myself on how

> smart I was about my disease, now I realize I

> don't know anything and my confusion doesn't help.

> Is anybody else on Inderal for this reason? I now

> take 8 drugs and I am pre transplant. I am

> considering a chart for medicines. The Inderal or

> something is making me nauseated. Normally I don't

> get nauseated. So this is new too. I have my

> transplant mandatory meeting in three days. They

> tell you everything to expect and you get to meet

> patients post transplant too. Up till know

> I have been ignoring the fact I made it on the

> list. I still haven't given anyone my phone

> numbers etc. (slight denial). I expect to catch

> hell on Wednesday about that. I am overwhelmed and

> nauseated today so forgive my spouting off.

>

> Regards,

>

> Beth Ann Dalrymple

>

> DUXTER@... wrote:

> >

> > Irene,

> > My name is Tom, ( 's Husband - dx ' 94 ). I had very

little

> > confidence in the stent progrom up until August this year. My doc

was

> > setting up another ERCP for me when he brought up the stent-thing

again. Up

> > until then the research that was done showed very little possitive

direction

> > with the stent. Mainly because they became permanent and most

bodies

> > rejected them. I reminded my doc of our past conversations

regarding the

> > stent, when he brought it up again during this appointment. Thats

when I

> > discovered that technology came into play, and they've, (the

stents), have

> > become removable. Their, (my doctors), intent was not to put one

in, but a

> > complication appeared when they poked a hole in my duct and

couldn't risk the

> > balloon. They had no choice. I scheduled the removal 3 weeks

later, but I

> > didn't last that long. My body started rejecting the stent with-in

the first

> > 2 weeks,(not an easy feeling).

> > Anyway, the stent worked and I feel pretty good that what they

did was

> > in the best direction for me and its made me very aware that the

technology

> > out there is in a strong direction towards finding a fix, or at

least easing

> > some of the simptoms. I hope I've helped in some little way to

answer your

> > concern from my experience. Please let me know if you have any

questions.

> > Keep smiling!

> > Tom

> >

> >

[Guest guest]

Hello Beth,

The Inderal is to lower the portal hypertension you develope as your

liver becomes more fibrotic and difficult for the blood from your gut to

return to your heart via your liver.

My Hepatologist talked to me about starting Inderal to prevent

increasing portal hypertension and therefore worsening varices. But my

BP was so low that she was worried that I wouldn't be able to sit up,

let alone stand, without passing out. It can cause nausea but I wouldn't

be surprised to find that your liver is in such bad condition that it is

the cause of your nausea.

As for the problem of waking up during a test or procedure, because of

our liver disease a lot of docs are hesitant to give us a full dose of

either sedatives or narcotics or other drugs. They worry that a usual

dosage will be overload for our livers. It is very difficult to know

what is the correct dosage in these conditions. Everyone's liver

responds differently. If they give too much they end up having to put us

on a respirator/ventilator even before they do the procedure. If they

give too little we either wake up during the procedure or are in pain

during it. Sometimes we end up being groggy for hours or days

afterwards.

I hope your next assessment goes well and that they move you up on the

list.

Aubrey

[Guest guest]

Aubrey,

Thanks for your answer about the anestetic I found it very interesting as

Phil was one of the ones that got extreme pain and I couldn't understand why

they hadn't put him all the way out. It is so good having you in the group

as you help us to understand the technical stuff (not to say there are

others that are just as helpful). You having been on the doctors side and

patient can give us a good plan. Often we don't realize that doctors are

human and very often have to same problems we do.

Peg

Aubrey Goldstein wrote:

> Hello Beth,

>

> The Inderal is to lower the portal hypertension you develope as your

> liver becomes more fibrotic and difficult for the blood from your gut to

> return to your heart via your liver.

>

> My Hepatologist talked to me about starting Inderal to prevent

> increasing portal hypertension and therefore worsening varices. But my

> BP was so low that she was worried that I wouldn't be able to sit up,

> let alone stand, without passing out. It can cause nausea but I wouldn't

> be surprised to find that your liver is in such bad condition that it is

> the cause of your nausea.

>

> As for the problem of waking up during a test or procedure, because of

> our liver disease a lot of docs are hesitant to give us a full dose of

> either sedatives or narcotics or other drugs. They worry that a usual

> dosage will be overload for our livers. It is very difficult to know

> what is the correct dosage in these conditions. Everyone's liver

> responds differently. If they give too much they end up having to put us

> on a respirator/ventilator even before they do the procedure. If they

> give too little we either wake up during the procedure or are in pain

> during it. Sometimes we end up being groggy for hours or days

> afterwards.

>

> I hope your next assessment goes well and that they move you up on the

> list.

>

> Aubrey

>

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