Guest guest Posted July 19, 2012 Report Share Posted July 19, 2012 Greetings a, I had actually saved that post so I could watch the House one this weekend. Here's the info: Mystery Diagnosis Season 3 Episode 7 originally aired 08/27/2007 House Season 3 Episode 10 Merry Little Christmas aired 12/12/2006 Blessings, Subject: Still's episode on TV To: " Stillsdisease " <Stillsdisease > Date: Thursday, July 19, 2012, 1:38 PM  Hi I know I saw an e-mail about A House episode of Still's Disease and another TV show. Does anyone recall the dates and programs of these shows? You can actually view them on line. Any help would be greatly appreciated. I can't tell you how grateful I am for this site!!!! a ________________________________ To: Stillsdisease Sent: Tuesday, July 17, 2012 8:08 PM Subject: introduction + prednisone question  > Welcome Mike, >My 31 year old son has stills-I beleive he was born with it. He went >on Prednisone when he was 7 years old and has not been able to wean >off it yet (24 years). He is now on 4 mil a day which is not >much--but-- the side effects varied with him as to how much he was >on at higher levels he had mood swings and his appitite was greatly >increased, his weigh went up. The weight has come of now that he is >on lower doses. He has thinning bones because of the Prednisone. To >me it is a one way street once you start it your body needs it to >function. Is your Dr a rhumatoligst? If not I would say get to a >rhumatoligst right away. This is a great group of people. Good luck keep in touch Sally (Lorens Mom)in southern Oregon >Hi Everyone, > >I thought I'd introduce myself and ask a question while i'm at it. > >First the background... >After a month of battling fevers, body aches, and fatigue, and >getting all kinds of tests and body scans, I was finally diagnosed >with Stills disease just last week. > >I've been on anti-inflammatory drugs (Naproxen) since then. >Thankfully, my fevers have pretty much disappeared. On occassion i >get some low grade fevers (99-100), but they don't bother me at >all...maybe because i've already experienced the serious stuff at >104+ in the past! >I do have muscle/joint pains that I'd characterize as 4 on a scale >of 1-10 (10 being worst). >And I have a rash that itches at times. I'd say a 5 on a scale of >1-10 (10 being worst). >And of course I still do experience fatigue. > >My doctor has recommended that I go on prednisone, 40mg per day. Her >expectation would be to reduce to 30 mg after 1 month, and to 15-20 >mg after 6 weeks, and then slowly reduce further over more time. She >explained that reduction tends to slow down as you get to lower and >lower levels otherwise the symptoms return. > >Just wanted to get a sense of others' experiences with prednisone, >as I've read about the side effects, and that is a little bit scary. > >Thanks, and glad to know that there is a support group out there like this. >-Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2012 Report Share Posted July 19, 2012 Thank you , I am going to try to get in on the ipad to watch. I am just curious how they portray the disease and symptoms. You are so kind to respond so quickly! Have a great day! ________________________________ To: Stillsdisease Sent: Thursday, July 19, 2012 2:49 PM Subject: Re: Still's episode on TV  Greetings a, I had actually saved that post so I could watch the House one this weekend. Here's the info: Mystery Diagnosis Season 3 Episode 7 originally aired 08/27/2007 House Season 3 Episode 10 Merry Little Christmas aired 12/12/2006 Blessings, Subject: Still's episode on TV To: " Stillsdisease " <Stillsdisease > Date: Thursday, July 19, 2012, 1:38 PM  Hi I know I saw an e-mail about A House episode of Still's Disease and another TV show. Does anyone recall the dates and programs of these shows? You can actually view them on line. Any help would be greatly appreciated. I can't tell you how grateful I am for this site!!!! a ________________________________ To: Stillsdisease Sent: Tuesday, July 17, 2012 8:08 PM Subject: introduction + prednisone question  > Welcome Mike, >My 31 year old son has stills-I beleive he was born with it. He went >on Prednisone when he was 7 years old and has not been able to wean >off it yet (24 years). He is now on 4 mil a day which is not >much--but-- the side effects varied with him as to how much he was >on at higher levels he had mood swings and his appitite was greatly >increased, his weigh went up. The weight has come of now that he is >on lower doses. He has thinning bones because of the Prednisone. To >me it is a one way street once you start it your body needs it to >function. Is your Dr a rhumatoligst? If not I would say get to a >rhumatoligst right away. This is a great group of people. Good luck keep in touch Sally (Lorens Mom)in southern Oregon >Hi Everyone, > >I thought I'd introduce myself and ask a question while i'm at it. > >First the background... >After a month of battling fevers, body aches, and fatigue, and >getting all kinds of tests and body scans, I was finally diagnosed >with Stills disease just last week. > >I've been on anti-inflammatory drugs (Naproxen) since then. >Thankfully, my fevers have pretty much disappeared. On occassion i >get some low grade fevers (99-100), but they don't bother me at >all...maybe because i've already experienced the serious stuff at >104+ in the past! >I do have muscle/joint pains that I'd characterize as 4 on a scale >of 1-10 (10 being worst). >And I have a rash that itches at times. I'd say a 5 on a scale of >1-10 (10 being worst). >And of course I still do experience fatigue. > >My doctor has recommended that I go on prednisone, 40mg per day. Her >expectation would be to reduce to 30 mg after 1 month, and to 15-20 >mg after 6 weeks, and then slowly reduce further over more time. She >explained that reduction tends to slow down as you get to lower and >lower levels otherwise the symptoms return. > >Just wanted to get a sense of others' experiences with prednisone, >as I've read about the side effects, and that is a little bit scary. > >Thanks, and glad to know that there is a support group out there like this. >-Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2012 Report Share Posted July 19, 2012 Does anyone have a good link to eitherone of these TV shows online? April Sent from my Verizon Wireless Phone introduction + prednisone question  > Welcome Mike, >My 31 year old son has stills-I beleive he was born with it. He went >on Prednisone when he was 7 years old and has not been able to wean >off it yet (24 years). He is now on 4 mil a day which is not >much--but-- the side effects varied with him as to how much he was >on at higher levels he had mood swings and his appitite was greatly >increased, his weigh went up. The weight has come of now that he is >on lower doses. He has thinning bones because of the Prednisone. To >me it is a one way street once you start it your body needs it to >function. Is your Dr a rhumatoligst? If not I would say get to a >rhumatoligst right away. This is a great group of people. Good luck keep in touch Sally (Lorens Mom)in southern Oregon >Hi Everyone, > >I thought I'd introduce myself and ask a question while i'm at it. > >First the background... >After a month of battling fevers, body aches, and fatigue, and >getting all kinds of tests and body scans, I was finally diagnosed >with Stills disease just last week. > >I've been on anti-inflammatory drugs (Naproxen) since then. >Thankfully, my fevers have pretty much disappeared. On occassion i >get some low grade fevers (99-100), but they don't bother me at >all...maybe because i've already experienced the serious stuff at >104+ in the past! >I do have muscle/joint pains that I'd characterize as 4 on a scale >of 1-10 (10 being worst). >And I have a rash that itches at times. I'd say a 5 on a scale of >1-10 (10 being worst). >And of course I still do experience fatigue. > >My doctor has recommended that I go on prednisone, 40mg per day. Her >expectation would be to reduce to 30 mg after 1 month, and to 15-20 >mg after 6 weeks, and then slowly reduce further over more time. She >explained that reduction tends to slow down as you get to lower and >lower levels otherwise the symptoms return. > >Just wanted to get a sense of others' experiences with prednisone, >as I've read about the side effects, and that is a little bit scary. > >Thanks, and glad to know that there is a support group out there like this. >-Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2012 Report Share Posted July 19, 2012 You can watch them on Amazon. Tracie To: Stillsdisease From: raincoin@... Date: Thu, 19 Jul 2012 17:20:40 -0500 Subject: Re: Still's episode on TV Does anyone have a good link to eitherone of these TV shows online? April Sent from my Verizon Wireless Phone introduction + prednisone question > Welcome Mike, >My 31 year old son has stills-I beleive he was born with it. He went >on Prednisone when he was 7 years old and has not been able to wean >off it yet (24 years). He is now on 4 mil a day which is not >much--but-- the side effects varied with him as to how much he was >on at higher levels he had mood swings and his appitite was greatly >increased, his weigh went up. The weight has come of now that he is >on lower doses. He has thinning bones because of the Prednisone. To >me it is a one way street once you start it your body needs it to >function. Is your Dr a rhumatoligst? If not I would say get to a >rhumatoligst right away. This is a great group of people. Good luck keep in touch Sally (Lorens Mom)in southern Oregon >Hi Everyone, > >I thought I'd introduce myself and ask a question while i'm at it. > >First the background... >After a month of battling fevers, body aches, and fatigue, and >getting all kinds of tests and body scans, I was finally diagnosed >with Stills disease just last week. > >I've been on anti-inflammatory drugs (Naproxen) since then. >Thankfully, my fevers have pretty much disappeared. On occassion i >get some low grade fevers (99-100), but they don't bother me at >all...maybe because i've already experienced the serious stuff at >104+ in the past! >I do have muscle/joint pains that I'd characterize as 4 on a scale >of 1-10 (10 being worst). >And I have a rash that itches at times. I'd say a 5 on a scale of >1-10 (10 being worst). >And of course I still do experience fatigue. > >My doctor has recommended that I go on prednisone, 40mg per day. Her >expectation would be to reduce to 30 mg after 1 month, and to 15-20 >mg after 6 weeks, and then slowly reduce further over more time. She >explained that reduction tends to slow down as you get to lower and >lower levels otherwise the symptoms return. > >Just wanted to get a sense of others' experiences with prednisone, >as I've read about the side effects, and that is a little bit scary. > >Thanks, and glad to know that there is a support group out there like this. >-Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2012 Report Share Posted July 19, 2012 Thank you. April Sent from my Verizon Wireless Phone introduction + prednisone question > Welcome Mike, >My 31 year old son has stills-I beleive he was born with it. He went >on Prednisone when he was 7 years old and has not been able to wean >off it yet (24 years). He is now on 4 mil a day which is not >much--but-- the side effects varied with him as to how much he was >on at higher levels he had mood swings and his appitite was greatly >increased, his weigh went up. The weight has come of now that he is >on lower doses. He has thinning bones because of the Prednisone. To >me it is a one way street once you start it your body needs it to >function. Is your Dr a rhumatoligst? If not I would say get to a >rhumatoligst right away. This is a great group of people. Good luck keep in touch Sally (Lorens Mom)in southern Oregon >Hi Everyone, > >I thought I'd introduce myself and ask a question while i'm at it. > >First the background... >After a month of battling fevers, body aches, and fatigue, and >getting all kinds of tests and body scans, I was finally diagnosed >with Stills disease just last week. > >I've been on anti-inflammatory drugs (Naproxen) since then. >Thankfully, my fevers have pretty much disappeared. On occassion i >get some low grade fevers (99-100), but they don't bother me at >all...maybe because i've already experienced the serious stuff at >104+ in the past! >I do have muscle/joint pains that I'd characterize as 4 on a scale >of 1-10 (10 being worst). >And I have a rash that itches at times. I'd say a 5 on a scale of >1-10 (10 being worst). >And of course I still do experience fatigue. > >My doctor has recommended that I go on prednisone, 40mg per day. Her >expectation would be to reduce to 30 mg after 1 month, and to 15-20 >mg after 6 weeks, and then slowly reduce further over more time. She >explained that reduction tends to slow down as you get to lower and >lower levels otherwise the symptoms return. > >Just wanted to get a sense of others' experiences with prednisone, >as I've read about the side effects, and that is a little bit scary. > >Thanks, and glad to know that there is a support group out there like this. >-Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2012 Report Share Posted July 20, 2012 Hi April I actually thought I could watch them on line, however when I tried I could not find anywhere to watch. Sorry. If I find a place I will let you know. a ________________________________ To: Stillsdisease Sent: Thursday, July 19, 2012 6:20 PM Subject: Re: Still's episode on TV  Does anyone have a good link to eitherone of these TV shows online? April Sent from my Verizon Wireless Phone introduction + prednisone question  > Welcome Mike, >My 31 year old son has stills-I beleive he was born with it. He went >on Prednisone when he was 7 years old and has not been able to wean >off it yet (24 years). He is now on 4 mil a day which is not >much--but-- the side effects varied with him as to how much he was >on at higher levels he had mood swings and his appitite was greatly >increased, his weigh went up. The weight has come of now that he is >on lower doses. He has thinning bones because of the Prednisone. To >me it is a one way street once you start it your body needs it to >function. Is your Dr a rhumatoligst? If not I would say get to a >rhumatoligst right away. This is a great group of people. Good luck keep in touch Sally (Lorens Mom)in southern Oregon >Hi Everyone, > >I thought I'd introduce myself and ask a question while i'm at it. > >First the background... >After a month of battling fevers, body aches, and fatigue, and >getting all kinds of tests and body scans, I was finally diagnosed >with Stills disease just last week. > >I've been on anti-inflammatory drugs (Naproxen) since then. >Thankfully, my fevers have pretty much disappeared. On occassion i >get some low grade fevers (99-100), but they don't bother me at >all...maybe because i've already experienced the serious stuff at >104+ in the past! >I do have muscle/joint pains that I'd characterize as 4 on a scale >of 1-10 (10 being worst). >And I have a rash that itches at times. I'd say a 5 on a scale of >1-10 (10 being worst). >And of course I still do experience fatigue. > >My doctor has recommended that I go on prednisone, 40mg per day. Her >expectation would be to reduce to 30 mg after 1 month, and to 15-20 >mg after 6 weeks, and then slowly reduce further over more time. She >explained that reduction tends to slow down as you get to lower and >lower levels otherwise the symptoms return. > >Just wanted to get a sense of others' experiences with prednisone, >as I've read about the side effects, and that is a little bit scary. > >Thanks, and glad to know that there is a support group out there like this. >-Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2012 Report Share Posted July 20, 2012 Welcome Mike, I was on Prednisone the first few months of my disease. This was back in Feb. Now I'm on Methotrioxate and it seems to work alot better. Now this is me, and everyone responds differently to meds. The Prednisone gave me horrible side effects. So of course My Rhmy took me off. Good luck to you, and you joined a wonderful,supportive group! Everyone here is such a blessing and much help! Warm regards, ________________________________ To: " Stillsdisease " <Stillsdisease > Sent: Thursday, July 19, 2012 1:38 PM Subject: Still's episode on TV  Hi I know I saw an e-mail about A House episode of Still's Disease and another TV show. Does anyone recall the dates and programs of these shows? You can actually view them on line. Any help would be greatly appreciated. I can't tell you how grateful I am for this site!!!! a ________________________________ To: Stillsdisease Sent: Tuesday, July 17, 2012 8:08 PM Subject: introduction + prednisone question  > Welcome Mike, >My 31 year old son has stills-I beleive he was born with it. He went >on Prednisone when he was 7 years old and has not been able to wean >off it yet (24 years). He is now on 4 mil a day which is not >much--but-- the side effects varied with him as to how much he was >on at higher levels he had mood swings and his appitite was greatly >increased, his weigh went up. The weight has come of now that he is >on lower doses. He has thinning bones because of the Prednisone. To >me it is a one way street once you start it your body needs it to >function. Is your Dr a rhumatoligst? If not I would say get to a >rhumatoligst right away. This is a great group of people. Good luck keep in touch Sally (Lorens Mom)in southern Oregon >Hi Everyone, > >I thought I'd introduce myself and ask a question while i'm at it. > >First the background... >After a month of battling fevers, body aches, and fatigue, and >getting all kinds of tests and body scans, I was finally diagnosed >with Stills disease just last week. > >I've been on anti-inflammatory drugs (Naproxen) since then. >Thankfully, my fevers have pretty much disappeared. On occassion i >get some low grade fevers (99-100), but they don't bother me at >all...maybe because i've already experienced the serious stuff at >104+ in the past! >I do have muscle/joint pains that I'd characterize as 4 on a scale >of 1-10 (10 being worst). >And I have a rash that itches at times. I'd say a 5 on a scale of >1-10 (10 being worst). >And of course I still do experience fatigue. > >My doctor has recommended that I go on prednisone, 40mg per day. Her >expectation would be to reduce to 30 mg after 1 month, and to 15-20 >mg after 6 weeks, and then slowly reduce further over more time. She >explained that reduction tends to slow down as you get to lower and >lower levels otherwise the symptoms return. > >Just wanted to get a sense of others' experiences with prednisone, >as I've read about the side effects, and that is a little bit scary. > >Thanks, and glad to know that there is a support group out there like this. >-Mike Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.