RE: New to the group, pain management.

April 12, 2012

Hi Whitney, Welcome again :0) My pain managment doctor first determined what

I had used over the years with all forms of pain management. We then determined

what combinations of medications I had taken, could take and what we would try

to control my pain now and then ajusted as needed. I see him every month on a

stricktly scheduled basis becasue refills through him are not called in. It is a

good experience because he is a good doctor. Wishing you well with your

decisions.

My question tonight is I'd like to know if anyone goes to a pain management

clinic and more information on them. I use pain medication on a nightly bases,

and my rheumy has no problem giving it to me so far. He understands that I need

it, but it has gotten harder to get a hold of him for refills lately. I do not

know much about what a pain management doctor does for you exactly, so any

information will help! Thanks so much!

April 13, 2012

Welcome, Whitney. We have already chatted onFacebook, and I have told you

what tiny bit I can about pain management. Therefore, I will simply welcome

you to our wonderful group. You will find much information and support here

for whatever you need/want. Weare glad you are here!

April

Sent from my Verizon Wireless Phone

New to the group, pain management.

Hey, my name is Whitney. I just joined the group and am excited to be able

to share my story with others and hopefully learn something new. I was

diagnosed with Systemic JRA when I was one year old, and I am 24 now.

Living with JRA is all I've known but I am totally okay with that. I have

been on numerous medications. Some have been a blessing and others not so

much.

My question tonight is I'd like to know if anyone goes to a pain management

clinic and more information on them. I use pain medication on a nightly

bases, and my rheumy has no problem giving it to me so far. He understands

that I need it, but it has gotten harder to get a hold of him for refills

lately. I do not know much about what a pain management doctor does for you

exactly, so any information will help! Thanks so much!

April 13, 2012

Hi and welcome!

I'm from the UK and have had a pain management consultant for a few years. I've

found it very helpful too.

Hope it works out for you

Suexxx

April 13, 2012

Welcome Whitney!

So glad you decided to join the support group. I myself am a Mother of a 29

year old daughter with Stillâ€™s disease. I come here to learn and be

resourceful as well as give my encouragement to others from my own experience

with other auto immune disorders. As far as a pain clinic. I have found that

they are somewhat difficult to deal with and many Iâ€™ve come across have the

main objective of getting people off of pain medication when they need it.

My best bet is to go to my regular doctor and he takes care of my prescriptions

for pain. Although he is not fond of just refilling them by phone. Each month

he wants an office visit where he and I can sit down and discuss the medications

and how they are working for me. I believe there is a certain amount of time in

which a doctor can just keep prescribing Class C drugs without actually having

seen the patient. I signed a written contract when I started pain management

with my doctor that stated I was to be checked monthly.

I hope you get this nipped in the bud before it gets to the point that you start

running out of your medicine and go through being without.

~~~ ~~~

From: whitney

Sent: Thursday, April 12, 2012 9:18 PM

To: Stillsdisease

Subject: New to the group, pain management.

Hey, my name is Whitney. I just joined the group and am excited to be able to

share my story with others and hopefully learn something new. I was diagnosed

with Systemic JRA when I was one year old, and I am 24 now. Living with JRA is

all I've known but I am totally okay with that. I have been on numerous

medications. Some have been a blessing and others not so much.

My question tonight is I'd like to know if anyone goes to a pain management

clinic and more information on them. I use pain medication on a nightly bases,

and my rheumy has no problem giving it to me so far. He understands that I need

it, but it has gotten harder to get a hold of him for refills lately. I do not

know much about what a pain management doctor does for you exactly, so any

information will help! Thanks so much!

April 13, 2012

Hi Whitney....My daughter has had Systemic JIA for almost 9 years now and is 23.

With the severity of her illness, and secondaries, we have moved near the

hospital for her treatments. She utilizes the same facility for all her docs

and treatments so they know everything about her. Their pain management team

knows Hadleigh well and they work with her on tapering some of her baseline meds

as well as newer issues that may require a different kind of med. Pain

management teams/clinics are well versed in their specific field and work with

your rheum doc. She has required specific assistance with surgeries and they

have helped her tremendously.

I don't know your situation/location, but for us...I usually email them with any

questions and refills and they drop off a slip in their outpatient pharmacy.

When necessary, they will require an echo and review the labs that her rheum doc

has drawn regularly. Of course, we see them when it is necessary. They have

helped Hadleigh tremendously.

*On a personal note, I have used a pain management clinic for my issues in the

past as well. Mine is mainly back pain. They were great; however, each time

that I needed a refill, I had to make an appt. and that was not very

convenient....

That has been our experience...Hope that this helped.