Guest guest Posted April 16, 2012 Report Share Posted April 16, 2012 Hi all, I'm looking for some help on any new or trial meds that might be available to try, or even a new idea of something else I could add to the mix?? I've tried pretty much everything and I'm now on the new one Tocilizumab at 2 weekly doses mixed with 1000mg IV steroids every 4 weeks. But unfortunatley, I'm getting used to the Tocilizumab after having it for 3 years now, and even the high steroid IV's are only lasting just over a week. Then I'm back feeling dreadful, you know the score so I don't need to explain about the fevers etc and I hurt so much I'm having to use my wheelchair constantly, that's when I feel well enough to get out of bed! My rheumatology professor has mentioned a few times about a stem cell transplant - here in the UK they use them when nothing else is working with some success - they only use them as a last resort as the disease isn't controlled so has very serious potential (as you all know) but I'd really like to see if there is anything at all I can try before having to do this. Any suggestions will be greatly received. I've tried all the usual meds but maybe there's something? Much thanks for your time and help Suex Quote Link to comment Share on other sites More sharing options...
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