Still's episode on TV

[Guest guest]

Hi I know I saw an e-mail about A House episode of Still's Disease and another

TV show. Does anyone recall the dates and programs of these shows? You can

actually view them on line. Any help would be greatly appreciated. I can't tell

you how grateful I am for this site!!!!

a

________________________________

To: Stillsdisease

Sent: Tuesday, July 17, 2012 8:08 PM

Subject: introduction + prednisone question

 

> Welcome Mike,

>My 31 year old son has stills-I beleive he was born with it. He went

>on Prednisone when he was 7 years old and has not been able to wean

>off it yet (24 years). He is now on 4 mil a day which is not

>much--but-- the side effects varied with him as to how much he was

>on at higher levels he had mood swings and his appitite was greatly

>increased, his weigh went up. The weight has come of now that he is

>on lower doses. He has thinning bones because of the Prednisone. To

>me it is a one way street once you start it your body needs it to

>function. Is your Dr a rhumatoligst? If not I would say get to a

>rhumatoligst right away. This is a great group of people.

Good luck keep in touch

Sally (Lorens Mom)in southern Oregon

>Hi Everyone,

>

>I thought I'd introduce myself and ask a question while i'm at it.

>

>First the background...

>After a month of battling fevers, body aches, and fatigue, and

>getting all kinds of tests and body scans, I was finally diagnosed

>with Stills disease just last week.

>

>I've been on anti-inflammatory drugs (Naproxen) since then.

>Thankfully, my fevers have pretty much disappeared. On occassion i

>get some low grade fevers (99-100), but they don't bother me at

>all...maybe because i've already experienced the serious stuff at

>104+ in the past!

>I do have muscle/joint pains that I'd characterize as 4 on a scale

>of 1-10 (10 being worst).

>And I have a rash that itches at times. I'd say a 5 on a scale of

>1-10 (10 being worst).

>And of course I still do experience fatigue.

>

>My doctor has recommended that I go on prednisone, 40mg per day. Her

>expectation would be to reduce to 30 mg after 1 month, and to 15-20

>mg after 6 weeks, and then slowly reduce further over more time. She

>explained that reduction tends to slow down as you get to lower and

>lower levels otherwise the symptoms return.

>

>Just wanted to get a sense of others' experiences with prednisone,

>as I've read about the side effects, and that is a little bit scary.

>

>Thanks, and glad to know that there is a support group out there like this.

>-Mike