Guest guest Posted June 10, 2012 Report Share Posted June 10, 2012 Good evening a and welcome to the group, I am the mother of a son with stills he has had stills for 26 years. He is 31 years old. I know your frustration with finding the right Doctor. We have doctor shopped for years and finnally found the right fit for us. This man is great and goes above and beyond the normal. We are in Southern Oregon or I would tell you to get to Dr. Chamberlin. Hope you feel better soon. Sally At 08:34 PM 6/10/2012, you wrote: > > >I was very pleased to find this group and hope I can give back to >the group too. > >My name is a and I was diagnosed with Stills Disease on Tuesday >by my rheumatologist at mass General in Boston. I live about 3 1/2 >hours from there but was not getting help her in the capital region >on NY State. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2012 Report Share Posted June 10, 2012 Thank you Sally. I am sorry to hear about your son. Difficult life for such a young person not to mention having it for so long. I agree, I have never been so frustrated with Drs as I have been in the last few months. I knew my episode in FLA was related but no one was listening and tried to separate them from my heart issue until the picture just kept getting clearer. I hope things continue well with this rheumatologist. My surgeon has been my God send and is there for me even through this. I am blessed. I am married but have no children. We have cats and dogs though. The past year has kept me from training with my dog as we do competition obedience. I also breed Bengal cats and the illness made me question if I should do that anymore but it is my passion. Costs me money to do it as we do things seriously. They have been part of my emotional therapy and distraction as well. a From: Sally Yarbrough Sent: Sunday, June 10, 2012 11:53 PM To: Stillsdisease Subject: welcome a Good evening a and welcome to the group, I am the mother of a son with stills he has had stills for 26 years. He is 31 years old. I know your frustration with finding the right Doctor. We have doctor shopped for years and finnally found the right fit for us. This man is great and goes above and beyond the normal. We are in Southern Oregon or I would tell you to get to Dr. Chamberlin. Hope you feel better soon. Sally At 08:34 PM 6/10/2012, you wrote: > > >I was very pleased to find this group and hope I can give back to >the group too. > >My name is a and I was diagnosed with Stills Disease on Tuesday >by my rheumatologist at mass General in Boston. I live about 3 1/2 >hours from there but was not getting help her in the capital region >on NY State. Quote Link to comment Share on other sites More sharing options...
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