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From: egroups

To: egroups

Subject: Digest Number 404

Date: 2000-11-16 06:20

Priority: 3

Message ID: 35A6DED19BBBD4118BB400A0C9EA57D7

There are 13 messages in this issue.

Topics in this digest:

1. RE: Pruritis.... and fatigue...a question

2. Re: Pruritis.... and fatigue...a question

3. Kelley - Job

4. Re: Denver

5. Re: Mette & Denver

6. Re: off topic/ & career

7. Re: Denver

8. Re: Mette & Denver

9. Re: Mette & Denver

10. what can we do? PSCF.org

11. Re:what can we do....pscf.org

From: Kkbhirsh@...

12. Re: what can we do? PSCF.org

From: oneavidman@...

13. Re: & career

From: oneavidman@...

________________________________________________________________________

________________________________________________________________________

Message: 1

Date: Wed, 15 Nov 2000 17:35:57 -0600

Subject: RE: Pruritis.... and fatigue...a question

Hmmm - three years ago (before diagnosis) I started having itching in the

fall (shins, shoulders, arms). After about a month I gave up and finally

found a dermatologist that recognized the condition as eczema (extensive

" rough " areas and some open sores). After topical steroid treatment, I was

finally able to control it with lotion/cream (usually). I still have a

mild topical steroid I can apply on " hot " spots.

My itching is typically worse in the winter and better in the summer (seems

to go with humidity). I try to get some sun early in the spring to head it

off. I have not had to go back to the dermatologist since the first

episode.

Note that I do not have the type of itching many of you describe as " under

the skin " - I don't know if it's just not as advanced or if it really is

eczema. At any rate, I am able to control it with lotion and occasionally,

a mild topical steroid.

I do not (yet) have the fatigue many describe (except when I know I've

overdone it). Hope this helps some.

Arne

49 - UC 1977 - PSC 2000

Alive and (mostly) well in Minnesota

Re: Pruritis.... and fatigue...a question

If you are itching you are probably in a later stage of the disease and

fatigue seems to be the most common complaint of EVERYONE in the group - at

any stage. What you are experiencing sounds very common in our group.

Peg, wife of Phil(57), UC 30 yrs, dx PSC 12/98, listed 2/2000-status 3, live

in So. Calif.

Re: Mette & Denver

Denver,

I hope that Mette's PTC goes well. That they can find and

relieve the blockage. My suspicion is that the ducts are

inflammed from the surgery and swollen shut. (Easy to make a

guess. Hard to do something useful).

Tim

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