ME -Update 2 Karina from Denmark

[Guest guest]

In the afternoon of the 3rd of May, a doctor from the Danish

Board of Health suddenly showed up at Karina’s house to

decide if she should be forcibly removed.

He physically examined her and Karina was able to answer

a few questions.

Then he and Karinas GP went out to the car to decide

Karinas fate.

That is when Karinas mom called me.

I listened as it was decided that Karina should not be

removed immediately… but that they will reevaluate her on

Monday.

I believe that this amazing GP did everything she could to

keep Karina from being removed.

She does not want her name mentioned. She is in a horrible

situation here and fighting for Karina in every way she can.

At least the family now knows that nothing will happen this

weekend.

This gives them some relief and a chance for us to re-group,

strategize and gather documentation.

The government doctor that was at Karina’s house

said that that the Board of Health is working with a

well-known Danish psychiatrist in this case: A

psychiatrist who has never actually seen Karina.

But the government sees him as an authority for

“functional somatic syndromes” so they act on

his advice.

But we still have nothing in writing from the Board of Health

and are waiting for documentation.

I can therefore not give out names yet. But they will come.

As chairman of the ME Association in Denmark (formally the

ME/CFS Association of Denmark) I have informed the Board

of Health many times that ME (ME/CFS) is not a functional

somatic syndrome – but we have been ignored.

This weekend, the association will be translating our letters

to and from the Board of Health this and about Karinas case

so we can post them.

The family has contacted a lawyer and I have contacted a

politician who has helped us before.

We are putting together info to use to contact a journalist.

We have contacted journalists before about Karina – they

get interested, make a few phone calls, do some interviews

and then suddenly the story dies….

Nothing has ever been printed. But we will keep trying.

Our website is here: http://www.me-cfs.dk/

I am sorry to say that t is still under the old name of

ME/CFS.

On April 21rst, 2012, we voted to change the name to ME

Association because the new board believes it is vitally

important that we stick to the original name of this disease

– ME – and not mix it up with CFS.

CFS is seen as a psychological disease here – so please

ONLY call it ME when you write about this disease or if you

contact anyone in Denmark about this case.

It is because of this mixing of names, that the psychiatrists

have been able to take over.

Let’s stop them.

We are also working in cooperation with the Danish ME

Association: http://www.dmef.dk/

(yes there are two ME Associations in Denmark) – to create

an on-line petition that will be directed at the Board and

Ministry of Health.

We will ask the hard questions and have specific requests.

We hope to have this done within a day or two.

Thanks again to everyone who is writing, posting and

tweeting about Karina.