Guest guest Posted March 2, 2012 Report Share Posted March 2, 2012 I am sure other's will need to correct me, but in my reading, Adult Onset Still's Disease only occurs in about 1 out of 100,000 people. It is listed as a rare disease at the NORD website. And, right now, the Healthwell Foundation has closed their funding for RA patients, but try copay.org. Make sure that your doc lists it as Reumatoid Arthritis Gail ________________________________ To: Stillsdisease Sent: Friday, March 2, 2012 2:17 PM Subject: Re: Has anyone tried Kineret injections?  thank you ill definitely ask him about that. I know its rare but how rare? thats the part i don't understand, why drug companies don't fish out stills disease patients and offer them medications for free, its not like i tried getting this disease on purpose. they would help many people wouldn't they? > > Since stills disease is pretty rare and insurance companies often don & #39;t approve any drugs for stills, my rheumatologist uses the diagnosis codes for rheumatoid arthritis when getting drugs approved. It has worked for me and is maybe something you can talk to your doctor about. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2012 Report Share Posted March 2, 2012 I am sure other's will need to correct me, but in my reading, Adult Onset Still's Disease only occurs in about 1 out of 100,000 people. It is listed as a rare disease at the NORD website. And, right now, the Healthwell Foundation has closed their funding for RA patients, but try copay.org. Make sure that your doc lists it as Reumatoid Arthritis Gail ________________________________ To: Stillsdisease Sent: Friday, March 2, 2012 2:17 PM Subject: Re: Has anyone tried Kineret injections?  thank you ill definitely ask him about that. I know its rare but how rare? thats the part i don't understand, why drug companies don't fish out stills disease patients and offer them medications for free, its not like i tried getting this disease on purpose. they would help many people wouldn't they? > > Since stills disease is pretty rare and insurance companies often don & #39;t approve any drugs for stills, my rheumatologist uses the diagnosis codes for rheumatoid arthritis when getting drugs approved. It has worked for me and is maybe something you can talk to your doctor about. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2012 Report Share Posted March 2, 2012 i was told iwas the onlyonein new england and may make the new england journalofg med. because of myimmediate reaction to the medication ________________________________ To: " Stillsdisease " <Stillsdisease > Sent: Friday, March 2, 2012 3:12 PM Subject: Re: rarity of Still's  I am sure other's will need to correct me, but in my reading, Adult Onset Still's Disease only occurs in about 1 out of 100,000 people. It is listed as a rare disease at the NORD website. And, right now, the Healthwell Foundation has closed their funding for RA patients, but try copay.org. Make sure that your doc lists it as Reumatoid Arthritis Gail ________________________________ To: Stillsdisease Sent: Friday, March 2, 2012 2:17 PM Subject: Re: Has anyone tried Kineret injections?  thank you ill definitely ask him about that. I know its rare but how rare? thats the part i don't understand, why drug companies don't fish out stills disease patients and offer them medications for free, its not like i tried getting this disease on purpose. they would help many people wouldn't they? > > Since stills disease is pretty rare and insurance companies often don & #39;t approve any drugs for stills, my rheumatologist uses the diagnosis codes for rheumatoid arthritis when getting drugs approved. It has worked for me and is maybe something you can talk to your doctor about. > > > Quote Link to comment Share on other sites More sharing options...
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