Guest guest Posted April 19, 2012 Report Share Posted April 19, 2012 I am sorry you're feeling so terrile lately. I understand your frustration. It is so aggrivating when you KNOW something is wrong and they just can't find it...even worse when you know part of what is wrongand can't figure out what to do about it. I, too have had visible, painful inflammation with bloodwork that came out showing no inflammation. I was always like SERIOUSLY!? But I can SEE it! I hope they can figure out something to help you soon. April Sent from my Verizon Wireless Phone Mediterranean fever? hi guys, little update regarding my stills. I finally seen an u of m doctor, after 2hr chat with him he decided it would be better to stop Kineret and Sulfazine. he thinks that I might have fmf so he ordered DNA tests, but I have to wait about a month for results to come in. I'm already guessing it will be negative, I don't understand y he thinks its fmf since I never had rashes on my ankles, only neck.chest.arms.knees. and my rash looks like stills rash. he gave me Colcrys .6 2x(its used for gout and fmf) a day, but that stuff is not doing anything, I have more pain in my knees than I did before, its been a week since I'm taking it. my fevers r slightly higher, luckily it hasn't been past 104 like in the beginning of January, but that's probably because sulfasalazine stays in the system for a while after stopping. has anyone been tested for it or misdiagnosed with fmf before being diagnosed with stills? I've already called him once telling him the medication is not doing anything but I was told to stick it out, he also told me that my blood work didn't show inflammation, there's no way it didn't show anything! my right knee is swollen and same thing with legs and arms, I don't get it. I've had an emg test on my right arm on tuesday, geez the needle! have u seen the needle that they use?! it hurt preeeettty badly. I came out with a conclusion that the tests was pointless, everything came out within normal limits and I received an answer " the inflammation is pressing on ur nerves that's why ur expieriecing abnormal symptoms, once u take care of ur inflammation ur symptoms should go away " I knew that from the beginning, but this new doc ordered the emg to make sure there's no nerve damage, I'm getting so frustrated, almost 4 and a half months wasted.... sooo much money wasted :-/, I'm having hard time sleeping at night again, if I'm not having night sweats then I'm waking up 2hrs later after taking ambien or zanaflex. the pain from waist down always wakes me up, and my numb feet drive me crazy :-( , and Vicodin is not doing anything either and over the counter painkillers? forget it. all I've been hearing is that its probably fibro, but no one is doing anything about it :-( sorry for sooo much complaining but honestly I feel like a parasite lately, not being able to work or do much around the house -Ewelina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2012 Report Share Posted April 19, 2012 Ewelina, Please don’t ever be sorry for too much complaining. We don’t see it that way and that is what we are here for. To support each other and help you get through these times if we can be of help. I wish you the best of luck with answers and finding the solutions that will help you get well or at least better. Lots of love and hugs, sorry for sooo much complaining but honestly I feel like a parasite lately, not being able to work or do much around the house -Ewelina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2012 Report Share Posted April 19, 2012 I totally agree with . A place to be able to complaine when you need to is part of what this place is for. April Sent from my Verizon Wireless Phone Re: Mediterranean fever? Ewelina, Please don’t ever be sorry for too much complaining. We don’t see it that way and that is what we are here for. To support each other and help you get through these times if we can be of help. I wish you the best of luck with answers and finding the solutions that will help you get well or at least better. Lots of love and hugs, sorry for sooo much complaining but honestly I feel like a parasite lately, not being able to work or do much around the house -Ewelina Quote Link to comment Share on other sites More sharing options...
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