Mediterranean fever?

[Guest guest]

hi guys, little update regarding my stills.

I finally seen an u of m doctor, after 2hr chat with him he decided it would be

better to stop Kineret and Sulfazine. he thinks that I might have fmf so he

ordered DNA tests, but I have to wait about a month for results to come in. I'm

already guessing it will be negative, I don't understand y he thinks its fmf

since I never had rashes on my ankles, only neck.chest.arms.knees. and my rash

looks like stills rash. he gave me Colcrys .6 2x(its used for gout and fmf) a

day, but that stuff is not doing anything, I have more pain in my knees than I

did before, its been a week since I'm taking it. my fevers r slightly higher,

luckily it hasn't been past 104 like in the beginning of January, but that's

probably because sulfasalazine stays in the system for a while after stopping.

has anyone been tested for it or misdiagnosed with fmf before being diagnosed

with stills? I've already called him once telling him the medication is not

doing anything but I was told to stick it out, he also told me that my blood

work didn't show inflammation, there's no way it didn't show anything! my right

knee is swollen and same thing with legs and arms, I don't get it.

I've had an emg test on my right arm on tuesday, geez the needle! have u seen

the needle that they use?! it hurt preeeettty badly. I came out with a

conclusion that the tests was pointless, everything came out within normal

limits and I received an answer " the inflammation is pressing on ur nerves

that's why ur expieriecing abnormal symptoms, once u take care of ur

inflammation ur symptoms should go away " I knew that from the beginning, but

this new doc ordered the emg to make sure there's no nerve damage, I'm getting

so frustrated, almost 4 and a half months wasted.... sooo much money wasted :-/,

I'm having hard time sleeping at night again, if I'm not having night sweats

then I'm waking up 2hrs later after taking ambien or zanaflex. the pain from

waist down always wakes me up, and my numb feet drive me crazy :-( , and Vicodin

is not doing anything either and over the counter painkillers? forget it. all

I've been hearing is that its probably fibro, but no one is doing anything about

it :-(

sorry for sooo much complaining but honestly I feel like a parasite lately, not

being able to work or do much around the house

-Ewelina