Re: Re: My questions for the future...

[Guest guest]

Mike, you and as always, :0) have sound advise. Hailey, I approved

your membership but haven’t gotten to send your welcome letter yet. I’m

, diagnosed at 19, extremely severe onset, all classic symptoms, now 54

years old and in remission for quite a few years.

I’d like to share I had the rash and it did go away. I was on steroids at the

time and that caused an acne type condition of the skin but I did not scratch as

advised especially on my face and it did go away without scarring :0) too. The

weight gain from medications did go away as well. Some medication side affects

are as bad if not harder than the disease at times depending on how severe your

case may be, but I would like to offer you hope that I have always been blessed

to have the best of care and as the medicines that my disease responded to

worked I got better and better. It often doesn’t happen fast but given how bad

it can be, I am and know many others that are, so grateful for any and all

stages of improvements and keep on looking for the next improvement whenever it

comes again. I took Naprosyn until just two years ago and although there are

many anti-inflammatories available, it always worked the best for me. It is hard

on the stomach as many of the medications we take are, and you should always be

aware of protecting that or asking your doctor how best to. Many of our members

have had pregnancies after the onset of Still’s and did well, some have

special medical needs during these times. Something that helps you and your

doctor greatly especially when having flares and at onset is to keep a small

journal of fevers, activities and joint problems or body symptoms. And not to

be forgotten is that our lives in so many ways are changed. My doctor has always

talked to me about how I am doing emotionally because it, the changes, and

stress can so affect how well or not we do with this disease and helping keep

the flares away. Rest is also the one natural thing we can do to help our body

quit attacking itself with the disease.

Our member that suggested the brochures was right. The Still’s foundation’s

website is at www.stillsdisease.org and there is so much information, articles

and peoples histories, etc there that it will help a lot. The front page has the

link for the free brochures by mail.

Thanks for getting through my longest email in some time, lol. Hope you didn’t

rest yet and fall asleep.

Smiles to all,

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