Marcy/home schooling

[Guest guest]

Marcy,

I think they want you to home school because it takes away their

financial responsibility for providing a tutor to help keep up if

he's out of school for long periods of time. Does fatigue prevent him

from keeping up during the day? After certain requirements are met, the

school system MUST provide help for .

On the other side, I've known people who did home school their children

and they did very well. It's just my opinion, but I think that you have

enough to worry about without changing your relationship with your son

and doing the home schooling yourself. He needs a Mom, not another

teacher (which is not to say that you can't supplement). Also, you know

your son better than the doctors. You know how to " read " him--trust

your instincts.

Does anyone else have first hand experience with school districts

providing tutors?

Penny

Marcy wrote:

> 's Albumin is also high can't remembe the exact and threw the

> paper away. His clooting times are " a little on the slow side but

> still within the normal range " Don't you love it whent he doctor's

> try to word things to CYA.?? 's appetite is so up and down

> these days. I know that it seems for every 5 pounds he puts on he

> loses 6. he is about 5' tall and only weighs 79 lbs. Before all of

> this started out he was 4'10 " and weighed about 85. He is very thin

> and pale most of the time. The doctor's seem to think he is doing fine

> though so I guess I shouldn't worry? Do any of the other mom's

> homeschool their children?? the school is trying to push me to

> homeschool " In the best interest of all those involved " Who's

> best interest? Surely not 's?? I think he does much better not

> being isolated and I have brought ina ll the information I can on PSC

> and sat down and talked to all his teacher the school nurse, etc.

> They all seem to be afraid of this disease and don't want to deal with

> it. Any suggestions? I am lost as to how to force them to deal with

> me and this disease fairly. Hugs,Marcy

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