Guest guest Posted October 5, 1999 Report Share Posted October 5, 1999 's Albumin is also high can't remembe the exact and threw the paper away. His clooting times are "a little on the slow side but still within the normal range" Don't you love it whent he doctor's try to word things to CYA.?? 's appetite is so up and down these days. I know that it seems for every 5 pounds he puts on he loses 6. he is about 5' tall and only weighs 79 lbs. Before all of this started out he was 4'10" and weighed about 85. He is very thin and pale most of the time. The doctor's seem to think he is doing fine though so I guess I shouldn't worry? Do any of the other mom's homeschool their children?? the school is trying to push me to homeschool "In the best interest of all those involved" Who's best interest? Surely not 's?? I think he does much better not being isolated and I have brought ina ll the information I can on PSC and sat down and talked to all his teacher the school nurse, etc. They all seem to be afraid of this disease and don't want to deal with it. Any suggestions? I am lost as to how to force them to deal with me and this disease fairly. Hugs, Marcy Quote Link to comment Share on other sites More sharing options...
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