Welcome Sara

[Guest guest]

Welcome to the group Sara,

I am glad that you have been able to read and find information from others that

is similar to yours and hope that by sharing it leads to information that will

be helpful.

I did have terrible migraines start after diagnoses and continue throughout the

years. Towards the end I saw a neurologist and took Gabapentin for some time,

which helped lessen the occurrence of them. Eventually I got them less and less

and now haven’t had them in a couple of years. I don’t know if they were

connected to my Still’s or not.

Dr. Cush will be speaking at the Still’s conference this year and I think I

will ask him about this manifestation of Still’s if I have the chance.

I would like to take use this instance of your looking up past posts to find

Harry’s and let others know that at the Yahoo’s group home page a member can

visit the past posts and use key words, names, dates or subjects to find any

past postings since the group started. It is a valuable tool.

I hope we get to know you better Sara. Wishing you all a good day,

From: jlkcsara

Subject: Meningitis and Stills

Hi Harry and everyone,

I am new to the group and found your post while searching for others who had

meningitis and encephalitis. I also had two hospitalizations- the first for

viral meningitis, and two data later, I became encephalopatic and was in the

neuro ICU for five days, and in the hospital for a total of 3 weeks while they

tried to figure out why I still had a fever. Then they figured out it was

Stills. They believe the Stills created the meningoencephalitis, and that it

could continue to do so in the future. This was in April 2012.

My main concern is my headaches. I have them every day. I have read all about

Kirk's horrible experience, and I feel terrible for him. I did wonder if he ever

had migraines prior to the Stills? (I did but they were under control-1 a

quarter until the meningitis). I am wondering if Harry's Stills presents in the

brain and cns as they believe mine does. I would like to learn more about his

experience.

..

I am seeing my rheumy for Stlls and a neuro for the headaches. They are trying

some migraine preventatives to address the headaches (nortiptyline, propranolol

and depakote) but so far, not much luck. As my CRP increases, so do my

headaches, so I think it is a systematic problem.

Does anyone have any experience with these headaches/meningitis or

encephalopathy?

Sara