Re: Liver & Stills Disease

[Guest guest]

My liver bloodwork always tests a little high too...my dr.s are keeping a close

eye on it. Their explanation is that all the meds we take task the liver.

That's why we're not supposed to drink, it adds to the liver's work. As far as

Still's causing problems, I wouldn't be surprised since it does attack the

organs also.

---- green_home_oreo wrote:

> >

[Guest guest]

My liver bloodwork always tests a little high too...my dr.s are keeping a close

eye on it. Their explanation is that all the meds we take task the liver.

That's why we're not supposed to drink, it adds to the liver's work. As far as

Still's causing problems, I wouldn't be surprised since it does attack the

organs also.

---- green_home_oreo wrote:

> >

[Guest guest]

Yes one of Stills halmarlks is liver involvement. Doesnt mean it happens

everytime but it definitely happens in stills

Sent from my Verizon Wireless Phone

green_home_oreo wrote:

>My liver bloodwork has been fairly high over the last couple years.

>My new Rheumatologist scheduled me for an appointment with a liver specialist.

Does Stills cause liver problems for anyone else?

>

>Thanks,

>

>

[Guest guest]

Yes one of Stills halmarlks is liver involvement. Doesnt mean it happens

everytime but it definitely happens in stills

Sent from my Verizon Wireless Phone

green_home_oreo wrote:

>My liver bloodwork has been fairly high over the last couple years.

>My new Rheumatologist scheduled me for an appointment with a liver specialist.

Does Stills cause liver problems for anyone else?

>

>Thanks,

>

>

[Guest guest]

I have had high liver functions since the day I first became ill and see

a live specialist. I have also had a liver biopsy (didn't hurt until the

next day when it felt like a heavyweight boxer smashed the shit ought of my

right side) and I'm due for another one.

What they found in my case is similar to what they will find

with alcoholics, and apparently this isn't uncommon. I forget the exact

term used to describe it but due to the fact that I'm not an alcoholic

(LOVE a GOOD beer, but never drank hard) the term would have an " N " in

front of it.

That is the bad news. Since I've been seeing this specialist, my liver

hasn't gotten any worse, and maybe a slight bit better. The way it has been

explained to me is that there is a 10% chance of me developing cirrhosis in

the next 10 years. The first thing my Dr. did was put my on a very high

dosage of Vitamin E as he has been following a study that vit E can help

slow or perhaps reverse liver damage. Even though my live functions are

like a roller coaster, he doesn't seem too concerned....where as my

Rheumatologist gets a bit worried about them. It really cracks me up...my

RD tells me no alcohol, no matter how little no matter what where as my

Liver Specialist told me that if I want a beer, have one, but not to have

more than 2 and don't do it everyday. That works perfectly for me as I

doubt I ever drank more that 2 - 4 cases in a year in my life, which is

between 48 to 96 beers per year...and since I've become ill I am definitely

on the low side of that figure! I almost never have a beer when it is cold

& dreary outside, which in NE Pennsylvania is about half the year!! Now,

when I am cutting the grass and it is 90 degrees out, well than that grass

isn't getting cut without me having at least 1 cold one! Besides, the beer

I like is far from cheap! I love Sam and like Yuengling, both of

which are close to $30.00/case these days....but I really like

's Imperial Stout (England) and that works out to just under $5.00 per

bottle!

I strongly advise you to find a goof liver specialist. I saw 3 before I

found one I really liked. The other important note is to make sure to have

all of your blood test results and MRIs ETC sent to each and everyone of

your Dr's! Do whatever you can to get them to communicate and work together

on your case. I have 4 main Dr's now and they all are involved in every

decision. I think they appreciate it as much as I do.....especially in my

case where 2 of my Docs are roughly 100 miles away from me & my other docs

(PCP & Liver Specialist).....

In researching to see if there was anything that my Dr's may have missed

when I first became ill it was noted that a few of my blood tests showed

elevated liver functions, but whether that was a precursor or not is up in

the air.

Feel free to ask any questions you want. You can email me direct @

kbonanny@... if you desire to do so. I know how depressing it is when

they keep on piling bad news on top of bad news, and I am very depressed

much of the time (which is why I'm rarely on list anymore) but try not to

let it get to you.

Best of luck, Kirk

> **

>

>

> My liver bloodwork has been fairly high over the last couple years.

> My new Rheumatologist scheduled me for an appointment with a liver

> specialist. Does Stills cause liver problems for anyone else?

>

> Thanks,

>

>

>

>

--

Everything in life sucks except things that should!

[Guest guest]

I have had high liver functions since the day I first became ill and see

a live specialist. I have also had a liver biopsy (didn't hurt until the

next day when it felt like a heavyweight boxer smashed the shit ought of my

right side) and I'm due for another one.

What they found in my case is similar to what they will find

with alcoholics, and apparently this isn't uncommon. I forget the exact

term used to describe it but due to the fact that I'm not an alcoholic

(LOVE a GOOD beer, but never drank hard) the term would have an " N " in

front of it.

That is the bad news. Since I've been seeing this specialist, my liver

hasn't gotten any worse, and maybe a slight bit better. The way it has been

explained to me is that there is a 10% chance of me developing cirrhosis in

the next 10 years. The first thing my Dr. did was put my on a very high

dosage of Vitamin E as he has been following a study that vit E can help

slow or perhaps reverse liver damage. Even though my live functions are

like a roller coaster, he doesn't seem too concerned....where as my

Rheumatologist gets a bit worried about them. It really cracks me up...my

RD tells me no alcohol, no matter how little no matter what where as my

Liver Specialist told me that if I want a beer, have one, but not to have

more than 2 and don't do it everyday. That works perfectly for me as I

doubt I ever drank more that 2 - 4 cases in a year in my life, which is

between 48 to 96 beers per year...and since I've become ill I am definitely

on the low side of that figure! I almost never have a beer when it is cold

& dreary outside, which in NE Pennsylvania is about half the year!! Now,

when I am cutting the grass and it is 90 degrees out, well than that grass

isn't getting cut without me having at least 1 cold one! Besides, the beer

I like is far from cheap! I love Sam and like Yuengling, both of

which are close to $30.00/case these days....but I really like

's Imperial Stout (England) and that works out to just under $5.00 per

bottle!

I strongly advise you to find a goof liver specialist. I saw 3 before I

found one I really liked. The other important note is to make sure to have

all of your blood test results and MRIs ETC sent to each and everyone of

your Dr's! Do whatever you can to get them to communicate and work together

on your case. I have 4 main Dr's now and they all are involved in every

decision. I think they appreciate it as much as I do.....especially in my

case where 2 of my Docs are roughly 100 miles away from me & my other docs

(PCP & Liver Specialist).....

In researching to see if there was anything that my Dr's may have missed

when I first became ill it was noted that a few of my blood tests showed

elevated liver functions, but whether that was a precursor or not is up in

the air.

Feel free to ask any questions you want. You can email me direct @

kbonanny@... if you desire to do so. I know how depressing it is when

they keep on piling bad news on top of bad news, and I am very depressed

much of the time (which is why I'm rarely on list anymore) but try not to

let it get to you.

Best of luck, Kirk

> **

>

>

> My liver bloodwork has been fairly high over the last couple years.

> My new Rheumatologist scheduled me for an appointment with a liver

> specialist. Does Stills cause liver problems for anyone else?

>

> Thanks,

>

>

>

>

--

Everything in life sucks except things that should!

[Guest guest]

I've had liver issues for years before the official onset of my Stills. An

all vegan diet with 1000 vitamin E a day has helped my labs.

Hope this helps.

Rick