Re: update - in resort, memorial, etc

[Guest guest]

Hello Alli,

Enjoy the spa treatments and oh the food! Get well soon. Such a sad time, but

they have each other and you in spirit.

Love and Light,

From: alli

Sent: Monday, January 23, 2012 11:42 PM

To: Stillsdisease

Subject: update - in resort, memorial, etc

Hi all,

First I want to thank everyone for your support and ideas.

The memorial for our little 'angel' Lilag will be on Wednesday afternoon. My

Nephew and his wife made some very

Wise decisions in regards to the funeral/memorial to make it easier for them

and the family. They will have a private

Viewing to say good bye (Just the two of them) on Tuesday, and then before

the rest of the family joins them for the

Gravesite memorial on Wed afternoon, Lilag will be buried. The site will

have a covered seating area and an area for flowers

That is lit. The covered seating area will also be lit up. This will be much

easier to help everyone else focus on helping and Ariane

Instead of focusing on a tiny little casket.

Unfortunately, I am not going to be able to go. I saw my doctor at 4

yesterday and she put me in the resort for pneumonia and

Orthostatic-hypotention (which we all know, seems to be what my body loves

to do when I get sick). I don't think I can even

Count how many times I have had it now.

It really saddens me that I will not be able to be there for them, but I

know that others will be there for them and I have to take care of my

Health right now. I keep telling myself that I will be there for them when

others will not be able to be there for them, but I still grieve that

I won't be able to grieve with the rest of my family. I was shocked to find

out that I had pneumonia and didn't know it. I have pain from

Swollen lymph nodes on my left side and a few on my right side all the time

and costrocondritis all the time on the left side and the pain level

Gets worse at times, so it's always hard to determine if it is something

different. Oh Well.

Anyway, Life Happens, right?

Hugs to all,

Alli

[Guest guest]

Hello Alli,

Enjoy the spa treatments and oh the food! Get well soon. Such a sad time, but

they have each other and you in spirit.

Love and Light,

From: alli

Sent: Monday, January 23, 2012 11:42 PM

To: Stillsdisease

Subject: update - in resort, memorial, etc

Hi all,

First I want to thank everyone for your support and ideas.

The memorial for our little 'angel' Lilag will be on Wednesday afternoon. My

Nephew and his wife made some very

Wise decisions in regards to the funeral/memorial to make it easier for them

and the family. They will have a private

Viewing to say good bye (Just the two of them) on Tuesday, and then before

the rest of the family joins them for the

Gravesite memorial on Wed afternoon, Lilag will be buried. The site will

have a covered seating area and an area for flowers

That is lit. The covered seating area will also be lit up. This will be much

easier to help everyone else focus on helping and Ariane

Instead of focusing on a tiny little casket.

Unfortunately, I am not going to be able to go. I saw my doctor at 4

yesterday and she put me in the resort for pneumonia and

Orthostatic-hypotention (which we all know, seems to be what my body loves

to do when I get sick). I don't think I can even

Count how many times I have had it now.

It really saddens me that I will not be able to be there for them, but I

know that others will be there for them and I have to take care of my

Health right now. I keep telling myself that I will be there for them when

others will not be able to be there for them, but I still grieve that

I won't be able to grieve with the rest of my family. I was shocked to find

out that I had pneumonia and didn't know it. I have pain from

Swollen lymph nodes on my left side and a few on my right side all the time

and costrocondritis all the time on the left side and the pain level

Gets worse at times, so it's always hard to determine if it is something

different. Oh Well.

Anyway, Life Happens, right?

Hugs to all,

Alli

[Guest guest]

Thanks , if only they had spa treatments! And oh yes, the room service is so

wonderful! Surprisingly, the nurses said what we get is better then what they

get in the cafeteria (my stomach gets upset at the thought of that). They all

wanted my meal last night and I could hardly eat it! Haha...

You are correct, I will be with my family in spirit on we'd afternoon.

So sad about Kathleen also. I hope she and lilag have already met

Hugs

Alli

>

[Guest guest]

Thanks , if only they had spa treatments! And oh yes, the room service is so

wonderful! Surprisingly, the nurses said what we get is better then what they

get in the cafeteria (my stomach gets upset at the thought of that). They all

wanted my meal last night and I could hardly eat it! Haha...

You are correct, I will be with my family in spirit on we'd afternoon.

So sad about Kathleen also. I hope she and lilag have already met

Hugs

Alli

>

[Guest guest]

Dearest Alli,

I think the pneumonia can sneak in without us knowing it and can turn

serious very fast. I'm sorry your being sick is causing you to miss the

services and know that often the upset in our lives causes extra pain and

our illness to intensify.

We are thinking of you with love and condolences. Please let us know when

you are able to be home again.

Hugs,

[Guest guest]

Dearest Alli,

I think the pneumonia can sneak in without us knowing it and can turn

serious very fast. I'm sorry your being sick is causing you to miss the

services and know that often the upset in our lives causes extra pain and

our illness to intensify.

We are thinking of you with love and condolences. Please let us know when

you are able to be home again.

Hugs,

[Guest guest]

Ali,

So many bad things going on with us all this season. I just got home from the

resort and have missed out on so many sad happenings. Now to find you have been

in the resort as well. I did see about Kathleen and your niece but my pad was

not the easiest thing to use to dig into details much. I ended up with IV

antibiotics because of allergies to certain drugs of choice. And of course go IV

solumedrol. And my bone marrow was so busy fighting infections that it stopped

pumping out red cells. Hence a transfusion last night.

During my stay, one of my night nurses just happened to be related to Bob, in

some convoluted in-law, out-law, or other relationship. She saw Stills Disease

on my chart and said that she knew someone in Florida who was " involved in

something with Stills internationaly " . I asked if it was Bob Himes, and of

course it was.

So, in Bob's honour I have diligently cleaned my email. And in honour of Cat, I

spelled Honour the " correct way " . At least for our brethren in Canada and the

UK.

Any way, in closing, Ali, my thoughts and prayers go out to you and your family.

Uncle Fuzzy

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> Hi all,

>

> First I want to thank everyone for your support and ideas.

>

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