Taping Dr. Cush's presentation

[Guest guest]

Hello all,

We have exciting news today. Dr. Cush has just given us permission to audio tape

his presentations at the conference and make them available to our support

group. Dr Cush usually gets over $1,000 per speaking engagement and is waiving

that fee only requesting the foundation pay air fare and expenses. Mr.

Hammarley has also donated as well for the three videos that are going to be

taped for use throughout the internet by reducing his prices from the normal $

10 – 20,000 dollars per video to 3,500 plus air fare, a room and expenses. I

would like to share that a couple that has dedicated their lives to keeping this

foundation running all these years donated $2,000 toward his request. The

foundation is paying for the air fare and expenses, the Orleans hotel has

compensated the room and Dr. Cush has donated the balance of the reduced fee for

the videos.

The videos will be about:

1. The disease from the patient perspective

2. What is Still's disease - Dr. Cush and patient interviews

3. Call for support of the foundation and research on AOSD.

I know we all realize what a gift this is for the awareness of Still’s and the

work the Still’s Disease Foundation has always worked towards. I would like to

say that although the generosity of others is great, the funding from the

foundation is a large amount and leaves the balance at a stressed point. We

realize that the economy is devastating for all these past years, but we ask for

those that are able to donate whatever they can, even if it’s a dollar, to

contribute to our cause. Any donations can be made through pay pal or sent to

the treasure from the web site at www.stillsdisease.org

We wish all could attend the conference but hope that this offer from Dr. Cush

will help in some way to share the information he is giving us.

Thank you everyone for your support through your kindness, sharing and caring

for others in the groups every day. That is, and always has been, the primary

reason we are all here.