Re: ME - UPdate Karina from Denmark

May 2, 2012

wow i have epstein barr virus since 1992 it is hard to live with everything

hurts and i am so fatgiued taking a shower is a real chore or eating

anything causes me to go right back to bed i take b 12 and goji extraqct for

energy but i am asking the pain managemnt for provigil for some alertness and

get rid of this fatigue i dont know what else to do what cures are there

for epstein barr virus, yesterday i went to gi doctor to find out i am

allergic to al,ost every food out there my stomach is so bloated i look 6

months

pregnant i am toxic and the cycle starts all over again as soon as i eat i

get sick and bloated and constipated now i am on cipro for a intestine

infectine for 10 days

netty

In a message dated 5/2/2012 3:32:33 P.M. Eastern Daylight Time,

j.van.roijen@... writes:

From: Marry Molendijk

Update on Karina:

Thanks for all the support and good advice I have gotten from

around the world. So great to feel the power of the

ME-community. Here is more info on the situation.

Nothing is happening today. The family is waiting for a

message from the caseworker from the Board of Health. I

am verifying that person?s name now and will share it later.

The facts are that a meeting was held about Karina?s case

at which a Board of Health doctor stated that they ?equate

ME with insanity? and suggested the girl be forcibly removed

from her home. The family is asking for a copy of the notes

from this meeting and a list of the doctors at this meeting.

We are also asking for their plan of action for her if they do

remove her.

That is all I know today ? but will post again as soon as

anything develops. Now the family has to wait until the case

worker calls them. They don?t know how long that will be.

And there is a long weekend coming up ? Friday is a holiday

in Denmark ? Big Praying Day. Seems fitting in a way?

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