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Dear ,

Sometimes people do get dual diagnoses or their diagnoses’ are changed and it

may happen with years in between. I would suggest if you have the ability to get

a second opinion maybe you would want to consider that?

As for applying for disability, it often happens that people get turned down

especially when the diagnoses isn’t clear. Getting a lawyer can help in the

process and getting copies of your records or files may also help the process.

We wish you success and I want to say you are always welcome here for support

whatever your disease is. Please keep us updated on how you are doing.

Many hugs,

From: Lbrasero

My name is and I was dx with aosd in Jan. after ruling out Lymphoma and

Hodgkins disease. My rheum. now says because biopsies from my Lymph nodes showed

necrotizing granulomatous Lymphadenitis, It is not stills and it was probably an

infectious process. The problem is that I still am having joint pain and extreme

fatigue. She also has me on plaquenil. I haven't had fever or weight loss since

feb. I don't feel much difference with the plaquenil. Has anyone else had a

similiar experience? I'm very confused , I don't feel well and I haven't worked

since nov. I applied for disability and was turned down twice and now have a

lawyer.If anyone else has had a similiar experience please let me know. Thank

you!

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