Re: hearing loss in my 2 year...finding out now?

[Guest guest]

Jodie,

When Jillian had her hearing tested, I had 2 pediatricians and even an ENT

tell me that if she had a hearing loss it would most likely be in her

" CHARGE " ear(the floppy one) I told them all they were wrong , that I

thought the loss would be in the other ear. (As an observant mommy, I

thought even though the ear was shaped normal that the opening was 1/2 the

size as her " CHARGE " ear) Guess who was right when she had the hearing

test???.......Mommy, of course...... Anyway, she failed that newborn BAER

test and at 5 months she had tubes put in and they want another hearing test

and I have neer done it because she understands EVERYTHING I say to her no

matter what tone of voice. I can be driving in the car and she can't even

see my face and I speak to her and she responds to the question or comment.

I ask her where her " nose " is, where her " toes " are and in a whisper, she

distinguishes betewwn the 2 so I have no plans to get a hearing test. If she

presents aproblem in the future, maybe, but this kid can hear a creek in the

floorboard, so that's all the hearing test this mommy needs.Her new ENT even

agrees with me. I didn't like her pediatric ENT so I am taking her to a reg.

one who never heard of CHARGE and he's 10x's better than her old one!!!!

Foley

Mom to 4, (CHARGE guy i heaven) and Jillian 22 months w/cHaRGE

hearing loss in my 2 year...finding out now?

> From: Cutch88@...

>

> Hi to all!

>

> it has been awhile since I've written...in fact I have been deleting many

of

> the messages and only been reading the ones that pertain to my 2 year old

> daughter, Madison. She will be 2 1/2 on March 1st.

>

> The reason I am writing is because she just had her hearing checked last

> Friday and tell me that they think she may have a mild to moderate hearing

> loss. She has been tested many times before and always has come out with

a

> borderline normal result. This was before she got her tubes in. Last

> Friday, was the first time she was tested since her tubes...I expected to

get

> better results because in the past she was always fighting ear infections

and

> fluid. However, she failed the OAE in both ears...previously she passed

in

> one ear and partially passed in her CHARGE ear. This audiologist also

said

> that she responded better towards her CHARGE ear...this makes no sense to

> me!!! Exactly one week before the hearing test, she had her tonsils

removed

> (and adenoids)...could there be some correlation? (maybe some

swelling?etc?)

> Or am I in denial?

>

> Anyway, we are having her tested again by the ENT this Friday...he needs

> tocheck her throat anyway. If they suspect some kind of loss too, then

what

> are the next steps? How do they determine what type of aid is needed?

>

> The weird thing is that she got her tubes placed in November and since

> December, she has finally started to try to say some words!!!

>

> Sorry to be so longwinded! Any advice would be helpful!

>

> Thanks!

>

> Jodie mom to Madison (2 years )

> and ( 6 mos and heavier than his sister!!!)

>

>

>

>

> ---------------------------

[Guest guest]

Jodie,

The type of aid will depend on the type of hearing loss. You may find some

helpful information here:

http://www.listen-up.org/hear-aid.htm

Good luck, I hope things work out, I know it's always a shock when something new

and unexpected pops up. We thought Kennedy's left ear had normal hearing for

over a year, only to find out that she in fact had a moderate hearing loss in

that ear. My only advice would be to get the aids on as quickly as possible.

Mom to Kennedy 23 mos old CHARGEr, 10, 8, and wife to Graeme

New Brunswick, Canada

Visit the " Weir homepage " at: http://www.geocities.com/SunsetStrip/Palms/5716

ICQ #1426476

hearing loss in my 2 year...finding out now?

From: Cutch88@...

Hi to all!

it has been awhile since I've written...in fact I have been deleting many of

the messages and only been reading the ones that pertain to my 2 year old

daughter, Madison. She will be 2 1/2 on March 1st.

The reason I am writing is because she just had her hearing checked last

Friday and tell me that they think she may have a mild to moderate hearing

loss. She has been tested many times before and always has come out with a

borderline normal result. This was before she got her tubes in. Last

Friday, was the first time she was tested since her tubes...I expected to

get

better results because in the past she was always fighting ear infections

and

fluid. However, she failed the OAE in both ears...previously she passed in

one ear and partially passed in her CHARGE ear. This audiologist also said

that she responded better towards her CHARGE ear...this makes no sense to

me!!! Exactly one week before the hearing test, she had her tonsils removed

(and adenoids)...could there be some correlation? (maybe some

swelling?etc?)

Or am I in denial?

Anyway, we are having her tested again by the ENT this Friday...he needs

tocheck her throat anyway. If they suspect some kind of loss too, then what

are the next steps? How do they determine what type of aid is needed?

The weird thing is that she got her tubes placed in November and since

December, she has finally started to try to say some words!!!

Sorry to be so longwinded! Any advice would be helpful!

Thanks!

Jodie mom to Madison (2 years )

and ( 6 mos and heavier than his sister!!!)

---------------------------